Discussions By Condition: I cannot get a diagnosis.

Need help with diagnosis

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Diannadee
  • February 9, 2008
  • 07:56 AM

I have had headaches daily for 2 1/2 years accompanied with squiggly lines and floaters, they dilate unevenly sometimes, also accompanies imbalance,fatigue, muscle spasms, parathesias in privates, facial numbness, pain in feet and hands occasionally, spastic bladder, dietary intolerances, now having rash 4 inches wide across hip to hip and sore lumps in rt leg, left leg had numbness knee to ankle in front for 6 weeks, now better. Have 2 herniated discs, 1 in lower back, 1 in neck. ANA positive, HLA B27 positive, MRI's ok, spinal tap 2 years ago ok. Have had past eye infections (left eye)and 1 complete dilation 2 1/2 yrs. ago. Neuro Opth exam clear 2 yrs ago. Neurologist can't figure out, Rheumatologist doesn't know either. ENT exams clear as well, but found balance caused by muscle relay to brain. Saw MS Dr. 2 yrs ago, and there were no lesions. Last MRI of brain 1 year ago. What next? No one seems to know what's wrong and I feel lousy.:confused:

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  • If you can, find a Chinese Medicine Doctor. They diagnose by the tongue, and can see what is immediately needed.I wish you the best.CPS. I've had mis-diagnosis for over 20 years from regular doctors and have used Chinese Medicine.
    Bunny_C 1 Replies
    • February 10, 2008
    • 02:50 AM
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  • the rash may indicate some type of virus..you may need blood work to determine which one...herpes, syphilis or shingles if one sided...do some research on butt rashes... http://en.wikipedia.org/wiki/SyphilisSecondary syphilisSecondary syphilis occurs approximately 1-6 months (commonly 6 to 8 weeks) after the primary infection. There are many different manifestations of secondary disease. There may be a symmetrical reddish-pink non-itchy rash on the trunk and extremities.. The rash can involve the palms of the hands and the soles of the feet. In moist areas of the body, the rash becomes flat broad whitish lesions known as condylomata lata. Mucous patches may also appear on the genitals or in the mouth. All of these lesions are infectious and harbor active treponeme organisms. A patient with syphilis is most contagious when he or she has secondary syphilis. Other symptoms common at this stage include fever, sore throat, malaise, weight loss, headache, meningismus, and enlarged lymph nodes. Rare manifestations include an acute meningitis that occurs in about 2% of patients, hepatitis, renal disease, hypertrophic gastritis, patchy proctitis, ulcerative colitis, rectosigmoid mass, arthritis, periostitis, optic neuritis, intersitial keratitis, iritis, and uveitis.
    Monsterlove 2,921 Replies
    • February 10, 2008
    • 03:54 AM
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  • Have you ever been diagnosed with uveitis (inflammatory disease of the anterior chamber of the eye)?There are a family of diseases called the spondyloarthropathies that are associated with HLA B27. Some of them cause uveitis.There are five basic groups of the spondyloarthropathies tha you may want to look up to see if any of them match your symptoms:ankylosing spondylitisposturethral reactive arthritispostdysenteric reactive arthritisenteropathic arthritispsoriatic arthritisHLA B27 can also be seen in about 5% of the healthy population, so it's possbile to have this subtype and NOT have one of the above diseases, too.It might be helpful getting a second opinion from another rheumatologist.Also, when you have one autoimmune disease, it puts you at risk for other ones. Since the above may or may not explain your neuro symptoms, three autoimmune disease you might want to look into (in addition to the above) include:Hashimoto's Encephalopathy (a complication of the thyroiditis, diagnosed by thyroid antibodes, not hormone levels)Celiac Disease (can cause neuro symptoms, including ataxia)Pernicious Anemia (leads to poor B12 absorption which can cause neuro symptoms).I hope you get some kind of answer soon.Sorry you are not feeling well.
    Anonymous 42,789 Replies
    • February 10, 2008
    • 07:48 AM
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