Discussions By Condition: I cannot get a diagnosis.

Need help, tired and dizzy all the time (food related?)

Posted In: I cannot get a diagnosis. 32 Replies
  • Posted By: Anonymous
  • November 5, 2006
  • 04:59 AM

I have been visiting my doctor for almost 2 years now trying to find out what is wrong with me and every time I go they brush me off and tell me it's nothing. Around a year ago, I asked for help because I thought it might be depression as I felt sad quite a bit, and I'd spoken to a counselor who told me it wasn't depression and wouldn't help me. I was referred to a psychiatrist who told me that I wasn't suffering from clinical depression, but helped me anyway to deal with the upset as I'd had quite a big life change at the time.
The tiredness seems to come and go, sometimes I can function for full days and other times I can only go a couple of hours without feeling exhausted. Recently it has been really bad, but I don't feel upset about anything other than being ill. When I'm awake enough to do normal things, I enjoy them and have fun.
Lately I've been having problems getting to sleep, because I feel more ill at night, and when I feel ill I get frustrated because my doctors won't do anything about it.

I mentioned to the doctor over a year ago that I believed I was suffering from a food intolerance, but because they couldn't identify it directly as lactose or wheat, they ignored it and told me just to start eating the foods again! They did an allergy test, even after I said it did not appear to be allergy symptoms. I get a severe reaction from cheese (can barely stand up if I have a sandwich-worth!), but there's something else in my diet that I've not yet identified which seems to cause it to a lesser extent. I'm a vegetarian, so the things I eat are pretty limited.

I also seem to have some form of urinary problem which has been manifesting itself as recurrent cystitis. I feel dehydrated if I do not drink at least 7 pints of water per day. Regardless of how much I drink and when, I feel discomfort around my bladder at night and need to urinate frequently.
I have also spoken to my doctor about excessive sweating, although I am not sure if it is linked as a symptom.

My symptoms:
Extreme Tiredness
Nausea, stomach pains, bloatedness and diziness after eating
Recurring cystitis
Dehydration/Frequent Urination (at night)

My doctor has done a fasted glucose test, blood iron and what they called a full blood work (showed kidney and thyroid function I believe). I have been told that these all came back normal. I have had several urine samples confirm the presence of cystitis. They are now telling me that it must be depression because I have "too many symptoms" and the tests that have been done have come up with nothing. I refuse to believe this, considering a year ago I was told that I did not suffer from clinical depression.

The bloatedness is so bad that in profile my stomach doubles in size from morning to night. I'm starting to think that the urinary problems may be because my bladder is just being squashed all the time and it is a side-effect of a food intolerance.

I really need some suggestions to take to my doctor for my next visit, as I am sick of being told it's nothing. Are my symptoms typical for someone with a food intolerance? Is there anywhere I can turn without having to change GP to get someone to test for this?
I told my doctor that milk didn't seem to affect me, but I don't drink it very often and I only really have it when I already feel ill. I have cut cheese out of my diet completely and today I had milk and felt awful afterwards. I now think the doctor won't believe me if I turn around and say it does affect me.

Please help me :(.

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32 Replies:

  • Many Doctors have a hard time diagnosing food allergies. Somethign called "Celiac Disease" an intolerance to Wheat, Oat, Rye, and Barley might be a factor. You suffer a lot of the same symptoms that include nausea, bloating, abdominal pain, constipation. You might want to ask you doctor to test you.
    Anonymous 42789 Replies
    • November 5, 2006
    • 05:04 AM
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  • u can also suffer tiredness as well =)
    Anonymous 42789 Replies
    • November 5, 2006
    • 05:05 AM
    • 0
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  • Is there a lot of sugar in your diet? If so this can cause problems. It sounds anyway like it might be worthwhile speaking to a dietician to make sure your diet is properly balanced.
    Anonymous 42789 Replies
    • November 5, 2006
    • 09:57 AM
    • 0
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  • I went through many of the same symtoms you have with the same results from doctors..."You are find, go home". Well after several years of thinking I'm crazy I began having panic attacks. What a trip that is! Anyway I went to an N.P. Nurse Practitioner. She put me on Klonapin along with paxil and I have been free from what I reffered to as "brain fog". If your symtoms are like mine, it may be anxity related. I am NOT an M.D. but it may be worth a try as I lived with brain fog for over 5 yrs. and it is so nice not having the slight dizzyness and faint feelings. Best regards, Mark
    Anonymous 42789 Replies
    • November 6, 2006
    • 03:03 AM
    • 0
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  • HI thereI just wanted to let you know I feel like i've had a lot of the same symptoms except for the cytstitis. the things that have helped me most are exercising and choosing to eat more fresh fruits and vegetables. I still have a lot of those symptoms but the exercise really helps me not to be so depressed, so does eating healthier foods. I'm not a vegetarian so i'm not sure what you do to make sure you get enough things like protein and iron.... I have been using molasses to increase my iron but i'm not sure if it really helps or not.Rose
    Anonymous 42789 Replies
    • November 26, 2006
    • 06:11 AM
    • 0
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  • studies have shown that drinking a glass of cranberry juice daily can help prevent cystitis so I suggest you add that to your diet. Food intollences can be tricky to work out. If on has a lot of motivation one way to work these out is to drink water only for a 2-3 days..then one day at a time add ONE food only back at a time (so slowly add a new thing back to your diet each day). Note how each thing you add back makes you feel. (it is suggested have water only for a few days first, as when one breaks from a food and then suddenly has it again.. ones body reacts to it even more, hence making it easier to tell if there is some kind of negative reaction there. I wonder if you suffer from "postexertional" fatigue too. IF so.. there is a possibly that you may have CFIDS (chronic fatigue immunity disfunction syndrome), food intollerances and the other things you mentioned including sweating (and insomina for whatever reasons) can occur with CFIDS. But you wouldnt have this unless you have post excertional fatigue. Just having a food intollence can make one feel tired if ones body isnt liking the food (could cause sweating, dizziness and other things you mentioned too). Eatting the wrong food for breakfast, due to my own food intollences can have me needing to go back to bed (it wipes me out completely) within 10-15 mins. Food intollences also can cause emotional symptoms as well. I have been visiting my doctor for almost 2 years now trying to find out what is wrong with me and every time I go they brush me off and tell me it's nothing. Around a year ago, I asked for help because I thought it might be depression as I felt sad quite a bit, and I'd spoken to a counselor who told me it wasn't depression and wouldn't help me. I was referred to a psychiatrist who told me that I wasn't suffering from clinical depression, but helped me anyway to deal with the upset as I'd had quite a big life change at the time.The tiredness seems to come and go, sometimes I can function for full days and other times I can only go a couple of hours without feeling exhausted. Recently it has been really bad, but I don't feel upset about anything other than being ill. When I'm awake enough to do normal things, I enjoy them and have fun. Lately I've been having problems getting to sleep, because I feel more ill at night, and when I feel ill I get frustrated because my doctors won't do anything about it. I mentioned to the doctor over a year ago that I believed I was suffering from a food intolerance, but because they couldn't identify it directly as lactose or wheat, they ignored it and told me just to start eating the foods again! They did an allergy test, even after I said it did not appear to be allergy symptoms. I get a severe reaction from cheese (can barely stand up if I have a sandwich-worth!), but there's something else in my diet that I've not yet identified which seems to cause it to a lesser extent. I'm a vegetarian, so the things I eat are pretty limited. I also seem to have some form of urinary problem which has been manifesting itself as recurrent cystitis. I feel dehydrated if I do not drink at least 7 pints of water per day. Regardless of how much I drink and when, I feel discomfort around my bladder at night and need to urinate frequently.I have also spoken to my doctor about excessive sweating, although I am not sure if it is linked as a symptom. My symptoms:Extreme TirednessNausea, stomach pains, bloatedness and diziness after eatingRecurring cystitisDehydration/Frequent Urination (at night) My doctor has done a fasted glucose test, blood iron and what they called a full blood work (showed kidney and thyroid function I believe). I have been told that these all came back normal. I have had several urine samples confirm the presence of cystitis. They are now telling me that it must be depression because I have "too many symptoms" and the tests that have been done have come up with nothing. I refuse to believe this, considering a year ago I was told that I did not suffer from clinical depression. The bloatedness is so bad that in profile my stomach doubles in size from morning to night. I'm starting to think that the urinary problems may be because my bladder is just being squashed all the time and it is a side-effect of a food intolerance. I really need some suggestions to take to my doctor for my next visit, as I am sick of being told it's nothing. Are my symptoms typical for someone with a food intolerance? Is there anywhere I can turn without having to change GP to get someone to test for this? I told my doctor that milk didn't seem to affect me, but I don't drink it very often and I only really have it when I already feel ill. I have cut cheese out of my diet completely and today I had milk and felt awful afterwards. I now think the doctor won't believe me if I turn around and say it does affect me. Please help me :(.
    taniaaust1 2267 Replies
    • November 26, 2006
    • 08:04 AM
    • 0
    Flag this Response
  • Please keep a food diary and follow the suggestions of the previous post. You can eliminate all foods and introduce them one by one. A more moderate approach would be to eat only plain fruits, rice, and green vegetables for a few days and then introduce possible allergens one at a time. I strongly suspect soy may be the food culprit. Two things set-off this conclusion---------the intermittent energy levels and your vegetarian status. Soy is hidden in everything --------I discovered my intolerance when trying to add protein and fiber to salads. 1 Tbs of soy nuts and I was out like a light for hours followed by bloating and digestive distress. Soy protein is the worst, but soy oil will create a mild reaction for me. Good luck.
    Anonymous 42789 Replies
    • November 26, 2006
    • 10:27 PM
    • 0
    Flag this Response
  • I definitely agree with the previous post to track what you eat. It can be less costly than getting a bunch of allergy tests. Or alternatively you can start some of the work yourself so that you can go in with some knowledge of how foods affect you.FOOD ALLERGIES/SENSITIVIES: Keep a food log and try to simplify your diet for a brief time to make it easier to identify the culprits or eliminate specific foods for a few days to see if you feel better off some of them, starting with the most common allergens: eggs, dairy, wheat, corn and SOY. I put soy in huge letters because a lot of vegans and vegetarians are using soy now and many aren't aware of how hard it is to digest. Some of the symptoms of SOY sensitivity is feeling sleepy after consuming it, bloating, intestinal bleeding, joint aches. (My father and I both get sleepy after consuming any Soy, my brother had joint aches--he thought he was getting arthritis.) I personally think soy is the cause of a lot of new allergies.There is something called the pulse test (which I haven't used) to identify allergens. The theory is that your heart rate will increase after eating an allergen. I'm not sure how it works, but I think you eat a single food and a half hour later you take your pulse. You should take a baseline resting pulse for comparison before you start.And I would agree with other posts that any gluten containing foods (oats etc.) should be considered as potential allergens. The bloating is often a good indicator of foods you don't tolerate well, however some foods naturally contribute to gas even if you are not allergic to them. For instance, fruit pies often cause gas because of the sugars. You may want to cut back sugars.Which brings us to the subject of candida albicans or more commonly yeast. Candida can produce all kinds of weird symptoms. I suffered from an antibiotic-induced skin rash for two years but never had a vaginal yeast infection, but I did have brain fog and low energy levels and gas. My father suffered from diarrhea as a result of an antibiotic, but never had a skin rash. My point here is that candida can manifest all sorts of symptoms (including psychosis and mental illness). Some believe it to be the cause of many diseases and a number one killer for those whose immunity is compromised.Also, make sure you are getting enough Vitamin C. Some recent research indicates that Vitamin C is critical in preventing fatigue. I believe it. My niece had mononucleosis. The old treatment was rest. She was given vitamin C injections and was back to normal in three days. And I hate to say this but some people do not do well on vegetarian/vegan diets. I have known several people who tried (including myself) to be vegetarians and ended up feeling worse. In my case I think it was because I was trying to get my proteins from eggs, dairy and grains (you know the Diet for A Small Planet approach). Turns out I am sensitive (as are many other members of my familty) to wheat and oats, soy and eggs and lactose intolerant. I was a mess. Now I eat meat, rice, quinoa, (and other non-glutenous grains), buckwheat (not a grain but a fruit) lots of vegetables, plenty of the low glycemic fruits and no sugar, eggs, milk, cheese and I feel fine.
    Anonymous 42789 Replies
    • November 26, 2006
    • 11:30 PM
    • 0
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  • I forgot to mention in my reply that pH is critical in preventing cystitis, which is why everyone drinks cranberry juice. If you drink cranberry juice get the unsweetened type if you can.Alternatively you can take more vitamin C.Okay, you often hear people say why take excess vitamin C if all you do is pee it out--isn't that a waste of money?Some people say that you can only absorb 250 mg per hour or something like that. But that is only if you are healthy. Your needs go up with illness depending on the illness. But even if you are healthy and you are peeing out vitamins does this mean they are going unused? Is your urinary tract something outside your body or is it not a part of your body too? So you take more C and you are healthy and you pee it out. Well it's not a total loss. When you pee it out you bathe the tissues of your urinary tract with C and keep them healthy and you keep your pH healthy so that it doesn't grow bacteria. It's been shown that people who eat more fruits and vegetables have a lower incidence of bladder cancer. Smokers have a higher incidence. Part of this is that smoking really uses up antioxidants such as C.
    Anonymous 42789 Replies
    • November 26, 2006
    • 11:39 PM
    • 0
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  • Consider whether you might have adrenal fatigue. It seems to be an underlying syndrome beneath many other chronic conditions, especially those that defy diagnosis.http://www.adrenalfatigue.org/whatis.phphttp://www.drmurphreestore.com/adrenalfatigue.htmlDr. Murphree also discusses Leaky Gut syndrome as related to food allergies. http://www.fibromyalgiacfsstore.com/intesinalperm.htmlGood luck.
    Anonymous 42789 Replies
    • November 27, 2006
    • 08:24 PM
    • 0
    Flag this Response
  • I had the same bloating, gas and all of the discomfort you are talking about. My doctor told me it was most likely lactose intolerance. I cut out regular milk/cheese/etc and replaced it with Lactose free milk. It has been about 4 weeks and the bloating gas and other symptoms have disappeared.My doctor said women of caucasian descent can develop lactose intolerance in middle age...I dont' know how old you are, but this may be what has happened to you. If you must eat milk products get a tablet like Lactaid that you take with your first bite and it will greatly reduce your discomfort. As for the other symptoms...not sure, but this lactose free thing worked for me. It is totally worth a try.
    Anonymous 42789 Replies
    • December 12, 2006
    • 07:09 AM
    • 0
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  • I forgot to add in my other post that one can go throu a lab like the one at www.immunolabs.com and have blood tests done to test for food intollerences IgG food panel testing. Food allergies are also tested by IgE food panels and IgE testing is the testing which usually shows up very obvious food allergies eg in which one may get a rash or whatever, where as IgG testing shows up food intollences sometimes called "hidden food allergies"). If you email immunolabs, they should get someone to contact you and send you out free info about what they do etc (Ive found them in the past quite good, they actually sent me a whole book on it about food intollences).
    taniaaust1 2267 Replies
    • December 13, 2006
    • 11:00 AM
    • 0
    Flag this Response
  • my son is having the same problem except cystitis.He is only 14yrs old,lotof stress in studies plus poor eating habits,i have given his urine and blood for testing,how to improve the eating habits,am really confused,he likes only junk food which does not have any nutritive value,he skips breakfast and early morning milk,and always vomits before going to school.pls help me to find out a solution to this problem.
    Anonymous 42789 Replies
    • December 22, 2006
    • 05:41 AM
    • 0
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  • I have many of the same symptoms that you have, plus I am also a vegitarian.I recently had a blood test and it came up that I am severely anemic.Iron deficiency anemia can cause many of the symptoms you have, especially the depression and dizzyness!!!I was put on an iron supplement and it really helped with my depression. The only thing that's bad about taking iron is this: It can hurt your stomach - so you have to take it with food.Iron deficiency anemia is VERY common for vegitarians and almost ALWAYS causes depressionHope this helps.Hope you feel better soon!!!
    Anonymous 42789 Replies
    • December 22, 2006
    • 10:01 PM
    • 0
    Flag this Response
  • based on your sypmtoms, i would say that you have either one or all of the following: candida (intestinal yest overgrowth), parasites (tapeworms, worms etc) bacteria overgrowth or a virus. Try eliminating all sugars and simple carbs from your diet.. and include an anti parasite treatment.. ie.. renew life makes a great product - paracleanse.. also, you can try taking grapefruit seed extract. ive been fighting the same issues for years.. and the only things that have kept me from being bed ridden is the above. doctors thought it was ibs, anxiety, etc etc..and had me on antacids (which makes it worse) and all the wrong modern meds... they rarely put 2 and 2 together.. and think of parasites etc.. although its textbook stuff. (ie..asthma is caused by a parasite in the lungs) Also you should try taking an herbal detox tea 3 times a day. you mind will feel cleaner and more focused...and your body lighter...especially your stomach and intestines. another thing - support your adrenals.. which is what caused you to be sooo tired.. you're body is probably fighting too many batteles and your adrenals can only hnadle so much. Try liquid siberian ginseng, or an adrenal complex.. 3 times a day. and only eat sea salt !!!! also - if you're head is filled with "mind clutter" try l theanine... 200 mgs... when need... (each dose lasta about 4-5 hrs) IT ALL WORKS WONDERS! also - powder magnesium.. helps with gas, pms, headaches etc.. and drinks tons of water.
    Anonymous 42789 Replies Flag this Response
  • check this out www.ahummingbirdsguide.com all of the sx you listed are there and I'm sure you have more you haven't even thought about until you read the sx list on that site...good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • I am having similar problems as well. I am reading a book right now about B12 deficiency. " Could it Be B12". I cannot believe how devastating this is. Vegetarians are at a HIGH risk of developing a B12 deficiency. If you think you want to investigate this, don't take any over the counter supplements or shots or let your doctor give a B12 shot before blood test....also the book points out how important it is to have a urine MMA because blood work often turns up normal. Honestly, I would read the book first before going to any doctor. Be very careful...
    2B or Not 2B 8 Replies Flag this Response
  • To original poster and anyone with celiac, food intolerance or any other allergy: THE ONLY TREATMENT I HAVE FOUND WHICH ACTUALLY CLEARS AND ALLERGY IS CALLED NAET (NAMBUDRIPAD ALLERGY ELIMINATION TECHNIQUE). NAET can pinpoint what you have allergies to, and believe it or not it could be nutrients such as protein, calcium, b vitamins, sugar, salt, and much more. Often a deficiency condition like anemia or B12 deficiency may be due to poor assimilation due to allergy! So you may still be feeling worse with supplementation, until you clear the allergy from your body. I have been getting NAET treatments for over a month and a half, and the results have been incredible! I suffered from chronic sinusitis, diarrhea, seasonal allergies, adult onset asthma, and upper back pain. Every one of my symptoms has either gone away or greatly reduced with NAET. This is a treatment which requires time and money. But it is worth every penny in my opinion. I cannot wait to learn this, and will take my first class this summer (only taught to MDs, DOMs, chirop, NP, naturopaths etc) Please google or visit www.naet.com. This treatment is just amazing! Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I have been visiting my doctor for almost 2 years now trying to find out what is wrong with me and every time I go they brush me off and tell me it's nothing. Around a year ago, I asked for help because I thought it might be depression as I felt sad quite a bit, and I'd spoken to a counselor who told me it wasn't depression and wouldn't help me. I was referred to a psychiatrist who told me that I wasn't suffering from clinical depression, but helped me anyway to deal with the upset as I'd had quite a big life change at the time.The tiredness seems to come and go, sometimes I can function for full days and other times I can only go a couple of hours without feeling exhausted. Recently it has been really bad, but I don't feel upset about anything other than being ill. When I'm awake enough to do normal things, I enjoy them and have fun. Lately I've been having problems getting to sleep, because I feel more ill at night, and when I feel ill I get frustrated because my doctors won't do anything about it.I mentioned to the doctor over a year ago that I believed I was suffering from a food intolerance, but because they couldn't identify it directly as lactose or wheat, they ignored it and told me just to start eating the foods again! They did an allergy test, even after I said it did not appear to be allergy symptoms. I get a severe reaction from cheese (can barely stand up if I have a sandwich-worth!), but there's something else in my diet that I've not yet identified which seems to cause it to a lesser extent. I'm a vegetarian, so the things I eat are pretty limited.I also seem to have some form of urinary problem which has been manifesting itself as recurrent cystitis. I feel dehydrated if I do not drink at least 7 pints of water per day. Regardless of how much I drink and when, I feel discomfort around my bladder at night and need to urinate frequently.I have also spoken to my doctor about excessive sweating, although I am not sure if it is linked as a symptom.My symptoms:Extreme TirednessNausea, stomach pains, bloatedness and diziness after eatingRecurring cystitisDehydration/Frequent Urination (at night)My doctor has done a fasted glucose test, blood iron and what they called a full blood work (showed kidney and thyroid function I believe). I have been told that these all came back normal. I have had several urine samples confirm the presence of cystitis. They are now telling me that it must be depression because I have "too many symptoms" and the tests that have been done have come up with nothing. I refuse to believe this, considering a year ago I was told that I did not suffer from clinical depression.The bloatedness is so bad that in profile my stomach doubles in size from morning to night. I'm starting to think that the urinary problems may be because my bladder is just being squashed all the time and it is a side-effect of a food intolerance.I really need some suggestions to take to my doctor for my next visit, as I am sick of being told it's nothing. Are my symptoms typical for someone with a food intolerance? Is there anywhere I can turn without having to change GP to get someone to test for this? I told my doctor that milk didn't seem to affect me, but I don't drink it very often and I only really have it when I already feel ill. I have cut cheese out of my diet completely and today I had milk and felt awful afterwards. I now think the doctor won't believe me if I turn around and say it does affect me.Please help me :(.I to have this problem. I feel like I am going to pass out from the gas on my stomach. I am lactose intolorant and have many alergies. the worst is aspartame and msg. this stuff will do all that you are talking about. I eat all organic, but I still suffer from the gas and the dizzyiness,.. have any answers??
    Anonymous 42789 Replies
    • September 12, 2007
    • 10:18 PM
    • 0
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  • Where is the bloating? Above the waist (stomach) or below the waist (intestinal)? Find out the "bug" causing the cystitis. E. coli? Look up celiac.
    rad-skw 1605 Replies
    • September 13, 2007
    • 08:46 AM
    • 0
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