Discussions By Condition: I cannot get a diagnosis.

need help sick of being sick

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • November 28, 2006
  • 09:58 PM

for the last 3 months I have been having sever pelvic pain 10cm from bellybutton on the left side. Vomiting,diarrhea,lose of appert. hurts when I have a bowel movement. I lost 22lbs. I have had CT,EGD,Colonoscopy,ultra sound, blood,x-rays and every thing comes back neg. I am on 150mcg Fent. Patch and I am taking 10mg of percocet every 4-6hrs for the pain. None of the daoctors can seem to figure out what is wrong. I even had the Pill Cam. that stayed in my stomach for 8hrs and took me a week to pass any suggestions please help..................

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  • Sounds a lot like my daughter. We never did get a diagnosis, but have noticed additional symptoms like Accute Intermittent Porphyria. It may be matter of slow emptying, but not much to be done except try a med called Motillium (from Canada). Look up Accute Porphyria and see if you have any additional symptoms. It could also point to hemachromotosis. Look up.
    Anonymous 42789 Replies
    • November 29, 2006
    • 02:47 AM
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  • Was tested for Prophyria and all test's came back neg. Tierded of being on pain meds not helping with motiliaty.Thanks for all your input.
    Anonymous 42789 Replies
    • November 30, 2006
    • 00:22 AM
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  • Since all those test have come back negative, the only thing I can think of that would cause such pain and other symptoms, would be an attachment of built up waste matter on your instestinal wall. It can be VERY painful even if the attachment is as small as a pea, and since these attachments can be so small they are often overlooked. This causes the bowel to spasm and cause a sluggish bowel and the pain is localised, unless you of course have more attachment than one, like i had.To remedy this you will need to find a naturopath who does bowel massage. It is a painful procedure but worth it, and it is done by massaging the abdomon so is not invasive. I had two massages to make extra sure all was clear.When I had my massage I emptied my entire system, small and large bowel of waste some hours before my appointment. It is easier on an empty system. One hour later I passed the offending waste. I also suggest that after you do this, if you choose this path, to eat plain yogurt for a couple of days to help heal, calm and replemish your bowel with appropriate bacteria.I am cautious of colonoscopy as more often or not they can reach the essending and transverse colon but not the decending and miss something; which is rather worrying when some are being checked for cancer, but are told all is clear because half of it was fine so the other side will show the same. Some of the rubbish doctors have tried to feed me over the years is horendous. But were're all familiar with that here.all the best,Agape,Searchingsam
    Anonymous 42789 Replies
    • November 30, 2006
    • 01:03 AM
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  • i have had pain in my lower left quadrant for just over a month, i have been hospitalized twice and they dont know why i have the pain and to top it all, i have mono, so i know exactly how you feel. i am alergic to percocet so i can't be on that. like you ive had blood tests for Crohns and any other chronic illness or infection there is and they all come back negative, i am highly concerdering that massage that guy was talking about i think you should too
    Anonymous 42789 Replies
    • December 1, 2006
    • 04:25 AM
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  • for the last 3 months I have been having sever pelvic pain 10cm from bellybutton on the left side. Vomiting,diarrhea,lose of appert. hurts when I have a bowel movement. I lost 22lbs. I have had CT,EGD,Colonoscopy,ultra sound, blood,x-rays and every thing comes back neg. I am on 150mcg Fent. Patch and I am taking 10mg of percocet every 4-6hrs for the pain. None of the daoctors can seem to figure out what is wrong. I even had the Pill Cam. that stayed in my stomach for 8hrs and took me a week to pass any suggestions please help..................Have you been tested for celiac sprue disease, pancratitis or liver disease?
    Anonymous 42789 Replies
    • December 3, 2006
    • 07:42 AM
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  • I had many of your symptoms but without the vomiting but my son had that. We both have celiac sprue disease on of the most serious autoimmune diseases and most underdiagnosed diseases in America. Good Luck
    Anonymous 42789 Replies
    • December 3, 2006
    • 07:45 AM
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  • I started to experience slight pain in my lower left abdomen....thinking it was probably gas pain & I would feel better soon. The next morning the pain was worse, I went to the doctor. The doctor did a urine test which showed trace amount of blood. I was sent home with percocet & told to go to the E.R. if it got worse. A few days later the pain spread to my entire lower abdomen, with sharp pains shooting up to my stomach area, nausea, diarrhea. The pain then spread to my lower back.I spent the next six weeks in excruciating pain, repeated visits to several doctors, a trip to the E.R., two days in the Hospital. I had urine tests, chest & back x-rays, two CT Scans with Contrast, STD tests, Blood tests, Colonoscopy, all with normal results. All the Doctors I saw said they could find nothing wrong with me. My regular doctor refused to return my calls, her staff refused to obtain my records from the Hospital. I was humiliated and still in excruciating pain. I was so desperate for relief I agreed to have a friend take me to see a Chiropractor. I walked in, explained the situation and they saw me immediatly. They took X-rays and discovered my Coccyx ( tailbone ) was pointing straight out like a finger. Why had NO ONE else seen this????? After the first treatment of electro-stimulation, heat pad, spinal adjustment, I had sixty percent relief in my abdomen. Upon my second spinal adjustment, all the abdominal pain was gone. I continued to go to the Chiropractor 2-3 days a week for the next two months before all the pain in my back disappeared. I hope this helps someone with their mystery pain.
    Anonymous 42789 Replies
    • December 4, 2006
    • 00:20 AM
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