Im running out of strength...
My daughter was born with multiple congenital defects including coarctation of the aorta, laryngotracheamalacia. malabsorbtion syndrome, development delays, glue ear, hypotonia, multiple allergies to food and environmental and many other things.
currently she is 3 years old and fed enterally, with no oral intake due to allergies, malabsorbition and aspiration. She has been dependant on TPN in the past which has resulted in a lot of blood clots.
Genetic testing has shown nothing. We live in central qld, australia and have no idea where we go to from here. My daughter is failure to thrive and short stature, as well as at least 1 year behind across the board developmentally, more for speech as she is yet to talk.
we are at the last of our teather, and really need help
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