Discussions By Condition: I cannot get a diagnosis.

need help doctors dont know

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: worried34
  • October 4, 2007
  • 03:30 PM

Well my problem started 2 yrs ago, Iwoke up with a very sore neck couldnt turn my head spent three days in bed, dr said just slept wrong way. About a week later noticed that my pinky finger on right hand was hard to move and felt different did'nt worry to much but then noticed that my ring finger was hard to move as well went to dr who said take vb12 and get more exercise so i joined the gym which made things worse. Fingers started to curl and i couldnt spread my fingers apart, 2 months later my right eye lid (bottom eyelid)drooped after lifting furniture then i noticed atrophy right hand and the right side of my face started to lose muscle tone. Had brain mri came back normal. Had nerve conduction tests done on arm it was not normal sensory nerves were fine motor nerve are damaged couldnt get reading from wrist to just below shoulder dr is confused he has not seen this before. It has been 5 months since saw nurologist but in that 5 months my right foot,right leg and my right hip has show muscle wasting, get a feel of tiring easily on right side and a deep ache in right leg and arm. Waiting on appointment with nurologist very worried only 34 and have 4 young children please help!!!!!! also i have twitching and right hand near base of thumb and in the should blade along with server cramping in fingers on right hand (I am left handed)

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2 Replies:

  • I won't pretend to be a Doctor, but I have several family members with Myotonic Dystrophy and what you are saying sounds very familiar to me.Do a search on it and see what you think.Tami
    Anonymous 42,789 Replies
    • October 20, 2007
    • 04:12 AM
    • 0
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  • Myotonic Dystrophy doesnt normally affect people this fast. Try the grip test:grip another persons fingure as tight as you can and then release, if your hand is slow in responding that may be a sign of DM, but from experience DM affects both sides of the body equally (hands, feet, lower leg muscles, heart and neck).
    Anonymous 42,789 Replies
    • November 27, 2007
    • 06:51 PM
    • 0
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