Discussions By Condition: I cannot get a diagnosis.

Need Help ASAP

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: Harvard
  • October 8, 2007
  • 02:46 PM

Within the last year I have had a grand-mal seizure (new onset), lost almost 30 pounds despite until recently a very good appetite, a small monoclonal protein spike in the gamma region was found with less than 3% plasma cells on bone marrow biopsy. I have moderate to severe pain in the right upper quadrant which radiates to the back. An enlarged liver was discovered during MRI but apparently working fine. Blood tests for liver function have come back normal. A possible early bone lesion was found on metastatic bone survey which will be rechecked in a year; and an EMG type test revealed mild to moderate poly neuropathy. A dietician has reviewed my caloric intake and is satisfied with the amount I am consuming. Still waiting on fecal fat tests to come back. I have had some recent small sugar elevations which I am able to control by diet. I feel very weak and fatigued and as of late when I eat the more I hurt. Lying down is very uncomfortable. An upper GI has been done which revealed some small ulcers and irritation of the Stomach lining. However, on followup tests the Protonix had healed the ulcers and irritation. An aspiration biopsy was done on the second upper GI which revealed a new onset of bacteria overgrowth. Amyloid has been ruled out but doctors can find no reason for the drastic weight loss or right upper quadrant pain. No Depression is in the picture. I need help fast... I finished a course of antibiotics for the bacteria overgrowth and I have been started on pancreatic enzymes;
Any suggestions on what could be wrong with me?

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21 Replies:

  • You may want to have your doctors test you for H-Pilorie. It's a stomach infection that can cause ulcers. My husband recently was diagnosed with it but doctors found that he's had it for at least 20 years. He was always told he simply got ulcers easier but it wasn't the case.I am a Type 2 diabetic, went undiagnosed for several years during which I experienced severe pain in my abdomen. Once I was diagnosed and my blood sugars were brought under control it went away. But it sounds like you've been looking into diabetes. The best way to be tested is an Ac1 blood test done while fasting. This test will give the doctors an average of the past 3 months.These are the only two things I can think of. Wish I could help more.Bobbi WhiteIowa
    Anonymous 42789 Replies
    • October 9, 2007
    • 03:24 AM
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  • Was your seizure the result of hyper/hypoglycemia?Is your weight loss due to malabsorption issues? Is your pancreas doing odd things? Insulinoma?What color is your poop?Is your biliary tract obstructed or spasm-ing?Is an MRI the best imaging for pancreatic problems?
    rad-skw 1605 Replies
    • October 11, 2007
    • 11:01 AM
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  • Thank you for your response. The doctors have no clear reason for the siezure, except to say that the EEG was abnormal. My blood sugar in the ambulance was 114. The doctors have been checking for mal-absorption problems and thus far have come up with none. The siezure is how the abnormal protein was found which led to the bone marrow biopsy. The neurologist said he believes there is something at work which involves many systems and over the course of a year I have heard many of the doctors Ive seen say my problem is "complicated" but they don't, as of yet, have an answer. My poop is "clay" in color. I hurt much worse after eating, I become bloated and my abdomen becomes miserably distended. Lying down to try to sleep at night is a problem. On MRI of the liver, there was "significant" enlargement. However, on biopsy of the liver, only mild congestion was found. On MRI of my liver, my gall bladder and pancreas looked normal in size. I have RUQ pain radiating to the back and have been put on pancreatic enzymes for mal-absorption, mainly because I don't think the doctors know what to do with me. My last visit to the doctor showed a slightly elevated WBC; maybe from the bacteria overgrowth???? As far as the pancreas goes, sugar was found in my urine which led me to an abnormal fasting blood sugar result. The sugar issues I'm having are mild and thus far controlable by watching what I eat. I am to the point of asking the doctors to do a laparotomy, as I am starting to get a little down about no diagnosis. I have a great team of doctors (knock on wood) but they can't seem to put the pieces of this puzzle together. I'm not sure if an MRI is the best way to dx pancreatic problems, but I don't think so. Again, thank you for responding and if I've given you any further insight to what to do or ask next, please respond...
    Harvard 20 Replies
    • October 11, 2007
    • 00:38 PM
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  • That significant enlargement of your liver likely needs investigation. A virus infection (like hepatitis or mono) can do that but so can other things.A lot of things going on with you sound like what happened to me when I had a gall bladder problem... but I never had seizures.Are you a type 2 diabetic perhaps or pre-diabetic? (the high blood sugar can be caused by diabetes or other things (but I had a high blood sugar and liver problems after getting a nasty viral infection Mono/Epstein Barr).A nuclear scan of the liver, pancreas and gall bladder, and ultrosound may help narrow things down. Perhaps your gall bladder isn't functioning as it should? Or you are digesting the food too slowly (which can happen in folks with diabetes, that the GI tract has a hard time emptying the stomach and moving things along)? Seeing an endocrinologist may be a good idea as you are having problems with elevated blood sugar.I'll see if I can find an article I read the other night on this situation re bowel function and diabetes. *I have been having problems myself with digesting food and read this article the other night. It gives you some things to try to help if your GI tract is behaving abnormally and causing bloating; like avoiding certain foods that delay emptying like fatty meals. large meals and even too much fiber. * The pancreatic enzymes can be helpful in reducing GI tract inflammation also. The doctors didn't just give them to you for malabsorbtion, thoguh that is the primary reason. I was on the pancreatice enzymes myself when I first got ill with pancreatitis and they helped out somewhat especially after using them awhile. I wish I never stopped them and plan to get some soon myself; to see if they will help myself during my own flare up that I am having now. But I will consult my dr first before adding them back; because I don't want to make things worse by taking the wrong stuff or delay a diagnosis of something else by treating the symptoms and not a possible underlying problem like an infection causing the malabsorbtion.Your case is complicated like mine was; hang in there. It is not easy for drs to diagnose complicated digestion problems. It often takes time to get the right diganosis or diagnose(s) (I had several problems when my health problems first cropped up. Infections of viruses, candida, bacteria and even an amoeba, my gall bladder was not functioning, and chronic pancreatitis). You also could have multiple problems going on; it sounds like your drs are working hard trying to figure it out. Keep doing what you can to work with them, be sure to tell them before trying out anything new or OTC products like immodium, and always keep the drs informed of all things you may try to help yourself when you are uncomfortable like herbal remedies. Hang in there. Hope you feel better soon.I'll see if I can find the article and post the link for you. I don't think this is causing all your problems as your liver is enlarged, you have back pains and you have a pale stool issue, but the article may at least make you aware of how having elevated blood sugar for a certain period of time can effect your digestion. It is an interesting article and the website has quite a bit of good info for diabetics also.Thank you for your response. The doctors have no clear reason for the siezure, except to say that the EEG was abnormal. My blood sugar in the ambulance was 114. The doctors have been checking for mal-absorption problems and thus far have come up with none. The siezure is how the abnormal protein was found which led to the bone marrow biopsy. The neurologist said he believes there is something at work which involves many systems and over the course of a year I have heard many of the doctors Ive seen say my problem is "complicated" but they don't, as of yet, have an answer. My poop is "clay" in color. I hurt much worse after eating, I become bloated and my abdomen becomes miserably distended. Lying down to try to sleep at night is a problem. On MRI of the liver, there was "significant" enlargement. However, on biopsy of the liver, only mild congestion was found. On MRI of my liver, my gall bladder and pancreas looked normal in size. I have RUQ pain radiating to the back and have been put on pancreatic enzymes for mal-absorption, mainly because I don't think the doctors know what to do with me. My last visit to the doctor showed a slightly elevated WBC; maybe from the bacteria overgrowth???? As far as the pancreas goes, sugar was found in my urine which led me to an abnormal fasting blood sugar result. The sugar issues I'm having are mild and thus far controlable by watching what I eat. I am to the point of asking the doctors to do a laparotomy, as I am starting to get a little down about no diagnosis. I have a great team of doctors (knock on wood) but they can't seem to put the pieces of this puzzle together. I'm not sure if an MRI is the best way to dx pancreatic problems, but I don't think so. Again, thank you for responding and if I've given you any further insight to what to do or ask next, please respond...
    Anonymous 42789 Replies
    • October 11, 2007
    • 04:02 PM
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  • Here is the link I told you about in my previous post; on how diabetes can affect the way you digest food.http://www.diabetes.org/type-2-diabetes/Gastroparesis.jspThis website at diabetes.org is a great one for many folks diagnosed as having problems or has had problems with their blood sugar levels imo. It is an interesting article; though it probably doesn't explain what your primary problem is. It may give you insight on how to manage some of your discomfort like the bloating after meals. Keep us posted; hope you feel better soon.
    Anonymous 42789 Replies
    • October 11, 2007
    • 04:11 PM
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  • Have you been tested for celiac/gluten intolerance? One way to tell if you have it is to eat a gluten free diet for a couple of months and then eat foods containing gluten for a few days and see if the symptoms get better and then return or worsen with the challenge. One of the consequences of gluten intolerance can be mal-absorbtion. Celiac is an autoimmune disease, the treatment is a gluten free diet.
    Anonymous 42789 Replies
    • October 11, 2007
    • 06:32 PM
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  • Stools that look like clay or putty may be caused by a problem in the biliary system. The biliary system is the drainage system of the gallbladder, liver, and pancreas. This condition is also known as acholic stools.The inability of the digestive system to absorb fat properly may result in stools that are light in color (yellow to gray) and appear greasy.Causes Bile is created in the liver and stored in the gallbladder and released into the first section of the small intestine (the duodenum) while food is passing through. Bile gives stool its brown color, so if bile is not being produced or if the bile ducts are blocked, the result could be stool that is pale.Common causes of stool that is pale or clay colored include: Alcoholic hepatitisBiliary cirrhosisBirth defectCystsGallstonesHepatitis A,B, or CInfectionSclerosing cholangitisSide effects from medicationStricturesTumorAssociated Symptoms Clay colored stool may be accompanied by a yellow discoloration of the skin and eyes (jaundice) or darkened urine. If these symptoms occur, a physician should be consulted immediately.Diagnosis In order to treat pale stools, the underlying cause must be diagnosed. In addition to a complete medical history, some of the tests that might be used to make a diagnosis are: Abdominal ultrasoundBlood work to test for an infectionEndoscopic retrograde cholangiopancreatography (ERCP)Liver function testsSurgery to find defects in the biliary tractTreatment Treatment will depend on the underlying cause. If the cause is the malabsorption of fats, a change in diet and vitamin supplements may be prescribed. In the case of blocked bile ducts, surgery may be required to open the ducts. If the acholic stools are a symptom of another condition, such as hepatitis, the underlying cause should be treated.
    rad-skw 1605 Replies
    • October 12, 2007
    • 11:36 AM
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  • Thank you again. Please keep any suggestions coming my way sounds like you have had or are having similar problems. I hope you feel better soon too; and I will check out the website you provided. Thanks again.
    Harvard 20 Replies
    • October 12, 2007
    • 11:40 AM
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  • Yes I went though a similar situation as you are going through now. It was a very rough time for me back then and my health problems never fully resolved. The gall bladder surgery I had helped but I was left with chronic pancreatitis and keep getting GI infections. But I am fortunate to not have had any seizures ( which would scare me) or odd findings on bone scans or marrow (never hd my marrow tested or any bone scans done).Lately things have been flaring up again as I have a prolonged fever since July and I am having pancreatic and liver problems again: so I plan to go back to doing some of the things that helped me get through the worse spots years before. I was on Pritikin diet when I first got ill and that seemed to work for me better than eating fats, so I may go back to that way of eating for good. So if the dr oks it I will go back to enzymes and maybe some magnesium along with a very bland diet that helps reduce my symptoms and pain; but I won't resume the enzymes and anything else. I also had problems with a high blood sugar level and I have some symptoms of type 2 diabetes now. The nuclear scan of my gallbladder, liver and pancreas was what was able to show that my gallbladder was not functioning as it should, and that caused the pancreatitis in turn for myself.BTW Have they ruled diabetes out as one problem you might be having along with the other things going on?*Always tell you dr whenever you decide to take over the counter meds and supplements/herbs to deal with pain and GI symptoms. When you don't keep your dr informed of any changes to what you do (or what is happening to you) you can make it harder for the drs to diagnose something going on. Be very careful about using anything for pain; because some things will mask the symptoms so well you will delay screaming for help. * I took all sorts of OTC pain remedies during my initial illnesses and though they allowed me to cope with the pain for awhile... in the end they prolonged the pain I felt before I finally was diagnosed.Unfortunately when you fall ill with a host of chronic related health problems (especially in the abdomen) it is hard for the drs to get a handle on the problems going on sometimes. At least today we have better scans than there were years ago when I first got very ill. Two recent catscans I just had saved me the trouble of being cut up for exploratory surgery; when I first was ill the technology just wasn't as good as it is now.Yes your case is complicated just as the dr described. Fortunately you seem to have a knowlegeable doctor ( a team) who is trying to get things sorted out for you. That is great, having good drs who are trying to pinpoint the problems is the most important thing to have on your side when you go through many serious and probably mostly related health issues/problems at the same time. BTW you probably don't drink alcohol because you are so sick already and may have figured out that alcohol can make things worse. Or maybe your drs also warned you about alcohal. But I will advise you not to drink alcohol anymore if you still do. Alcohol is horrible for the liver and it can cause pancreatitis; it is also bad for folks who have problems with blood sugar. I cannot tolerate alcohol and I got to a point that I got very sick whenever I drank it (even just one glass of wine caused problems). Alcohol is bad for folks with liver, stomach and pancreas problems. Best to avoid it.You wrote: A possible early bone lesion was found on metastatic bone survey which will be rechecked in a year;Make sure your drs don't forget to keep watching this small bone lesion. With all the health problems you have, it is possible that it can be overlooked and forgotten because the other issues like the stomach ulcers, blood sugar elevations and weight loss and infections are more pressing as those problems are more emergent. Could you have an oncologist take a look at this sooner than a year and review your case just to be safe? Just a thought. Did they do a brain scan also (to rule out brain cancers as cause for your seizure).I do hope you get to feeling better soon. It is stressful and difficult to have to be so sick; and very scary when the doctors cannot pinpoint what exactly is going on. But do hang in there and try to find some hope when things get very bad. Hope is the one thing that kept me going when my health was so bad and i was in so much pain that it would seem that my illnesses and the pain from them would never go away. Keep us posted. If I find any other interesting articles I will send the links your way. You might want to look for a local support group for folks with chronic health problems serious illnesses and such. It can help to have supportive people around you when you are very ill; I do hope you have such support when things get bad. Take care. Thank you again. Please keep any suggestions coming my way sounds like you have had or are having similar problems. I hope you feel better soon too; and I will check out the website you provided. Thanks again.
    Anonymous 42789 Replies
    • October 13, 2007
    • 11:16 PM
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  • Hi again Harvard ;I typed this wrong on my note below:"So if the dr oks it I will go back to enzymes and maybe some magnesium along with a very bland diet that helps reduce my symptoms and pain; but I won't resume the enzymes and anything else. "I meant to say I won't take enzymes and magnesium or such without telling my drs first of my plans. I do plan to try going back on them again; but will ask my dr first.Harvard; I do hope that you get diagnosed fully soon and that you are feeling better. It sucks to be so sick. Take care and do keep us all posted.Yes I went though a similar situation as you are going through now. It was a very rough time for me back then and my health problems never fully resolved. The gall bladder surgery I had helped but I was left with chronic pancreatitis and keep getting GI infections. But I am fortunate to not have had any seizures ( which would scare me) or odd findings on bone scans or marrow (never hd my marrow tested or any bone scans done).Lately things have been flaring up again as I have a prolonged fever since July and I am having pancreatic and liver problems again: so I plan to go back to doing some of the things that helped me get through the worse spots years before. I was on Pritikin diet when I first got ill and that seemed to work for me better than eating fats, so I may go back to that way of eating for good. So if the dr oks it I will go back to enzymes and maybe some magnesium along with a very bland diet that helps reduce my symptoms and pain; but I won't resume the enzymes and anything else...--------snip-----------
    Anonymous 42789 Replies
    • October 15, 2007
    • 03:19 AM
    • 0
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  • Thank you for your resonse. I don't drink alcohol. I just received word from the oncologist that the bone scan will be repeated in a couple of months for the early bone lesion. The oncologist said I was extremely young to have MUGUS (Monoclonal Gammapathy of Undetermined Significance) which, normally occurs in people in their 60-70's so, of course this makes them follow up on that issue every three months. It will be interesting to see how these enzymes work. I am down to 95 pounds now and energy is a problem. Also received my latest blood test results via mail and I really dont know what it all means but there were some things out of slightly out of sink and I don't know what it all means like: RBC was low at 3.61 my MCV was high at 99.5, my MCH was high at 34.3, my MCHC was high at 34.5, Neutrophils were hugh at 72.4, Eosinophils were low at 0.7 and Abs Neutrophi were high at 7.9, and my Creatinine was low at 0.5 and WBC were 10.9. The numbers are not extremely elevated or low but I don't know what things like creatine, eosinophils, neutrophils, MCV, MCHV are, or do? I wish I could offer you some helpful suggestions as you have me. But please keep me posted as to how you are feeling. It's most helpful to converse with someone who understands what you are going through. Please keep me posted on your health and progress.
    Harvard 20 Replies
    • October 15, 2007
    • 03:24 AM
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  • I am glad that they won't wait a year on that bone scan finding... to many horror storries of drs not following up such a finding and later they find out something was horribly wrong. The weight loss is scary and alarming; plus the blood labs. I am glad you are in the care of an oncologist. Keep working close with the drs.Your problems are much worse than I went through; but hang in there. You sound strong and very intelligent; the kind of things you need to help you deal with being ill. Surround yourself with supportive people.I will try to find an article that explains all the tests; most of them are counts for your various white blood cells (like eosinophils, basophils etc). Some are the avg size of your red blood cells, avg volume of your rbcs , avg iron levels of your rbcs etc.Maybe somebody here could post more for you to explain it all. Dxd ? Its been awhile since I had anemia. If your RBC is low, you are likely anemic *but there can be exceptions to this.I hope the drs can get your full diagnosis for your soon. keep working closely with them; and ask for a referrel to a teaching university if you haven't already if you continue to grow sicker and they can't figure the problems out. I'll check in here as I am able to; to see how you are doing. I have been thinking about you since I read this thread. I will keep you in my prayers also. Hugs. Thank you for your resonse. I don't drink alcohol. I just received word from the oncologist that the bone scan will be repeated in a couple of months for the early bone lesion. The oncologist said I was extremely young to have MUGUS (Monoclonal Gammapathy of Undetermined Significance) which, normally occurs in people in their 60-70's so, of course this makes them follow up on that issue every three months. It will be interesting to see how these enzymes work. I am down to 95 pounds now and energy is a problem. Also received my latest blood test results via mail and I really dont know what it all means but there were some things out of slightly out of sink and I don't know what it all means like: RBC was low at 3.61 my MCV was high at 99.5, my MCH was high at 34.3, my MCHC was high at 34.5, Neutrophils were hugh at 72.4, Eosinophils were low at 0.7 and Abs Neutrophi were high at 7.9, and my Creatinine was low at 0.5 and WBC were 10.9. The numbers are not extremely elevated or low but I don't know what things like creatine, eosinophils, neutrophils, MCV, MCHV are, or do? I wish I could offer you some helpful suggestions as you have me. But please keep me posted as to how you are feeling. It's most helpful to converse with someone who understands what you are going through. Please keep me posted on your health and progress.
    Anonymous 42789 Replies
    • October 16, 2007
    • 08:36 PM
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  • Once again, thank you for reading my posts. I am just desperate for some answers. Please reply back as to how are you feeling? I too will keep you in my prayers.
    Harvard 20 Replies
    • October 16, 2007
    • 09:31 PM
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  • Hi Harvard;Thank you for your kind concern. Yesterday I got in pretty bad shape; and the dr took a bunch of blood from me to do blood cultures, blood smears, and stuff. He is testing me for viruses like aids now. He is also considering some auto-immune diseases.I was so dehydrated yesterday and cold, it took about 20 minutes to get my blood all drawn. And the gal gave me some graham crackers because I was getting cold and clammy; where only an hr before I was running a low grade temp of 100.4.All night long I stayed cold; so I decided it was time to try adding protein into my diet slowly to see if I could tolerate it again. I found some low sodium tuna and ate a little bit of that with some rice, some puree fruit, and puree vegetables. A sprinkle of salt for eletrolytes. And some warm herbal tea. Well, the pancreatic pains came back but the advil masked it enough so I was able to get a bit of sleep. Tolerated the protein a bit better than last week, so I making progress on this it seems at this time. But the dr has now put me on lots of ibuprofen for the fever and pain; this am was the first am in weeks I awoke with little pain. It has brought the fever down; so I feel more energy. It is tempting to do too much when I am on the ibuprofen; I know I need to watch myself from doing too much too soon at this time or I will get very bad like yesterday. So I am working on finding the right mix of things I can tolerate. Basically I am on a strict Pritikin diet. Almost zero fat, high carb, and if all goes well I will be adding a small amount of easy to handle protein foods. The dr poo poohed my enzyme idea for now at least. He doesn't think it will help my fever and inflammation much. So for now, I will hold off on going back on the enzymes even though I know the enzymes worked before years ago for the same sorts of upper GI/Back pain and digestion problems. I am tired of waiting for the drs to figure out what is going on; so I just have to try to find some ways to help myself as much as possible and changing my diet back to what it was when I had pancreatitis seems to be helping (just needs some tweeking).Harvard; I do hope your get the answers you desperately need, and soon. Keep pressing those drs and keep working closely with them. Tell the drs how worried you are about your tests results and your continuing decline in health. Tell the drs how desperate you feel for some answers and to feel better. You seem to be on the way to getting the answers, but the process also seems excruciatingly slow for you. Later on I will get registered so you can pm me. I am going to try going to the grocery store now for a short trip; the ibuprofen has kicked in. Pacing myself is always a challenge; but it is nice to get out of the house when I have been down since mid summer. I have only drove a car twice this month because of this flare up or illness going on. Once again, thank you for reading my posts. I am just desperate for some answers. Please reply back as to how are you feeling? I too will keep you in my prayers.
    Anonymous 42789 Replies
    • October 17, 2007
    • 06:02 PM
    • 0
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  • I juts re-read this post. I can't believe they gave you your blood test results by mail btw. Someone should have called you and spoke to you about these results I think. Because of the findings being not all WNL (within normal limits). Personally; I'd call the dr and ask for a follow up visit to discuss these results more if the dr hasn't already planned on seeing you soon. You do deserve some answers on your blood test. BTW what was your wt before you got sick? 95lbs is low for most people; unless you are a female gymnist or jockey.Or a young kid.What helps me to digest foods might not help anyone else; but I have found staying away from fats in the diet, low to moderate amounts of lean easy to digest proteins, and carbs help. Dairy I don't tolerate when I am feeling my worse. Sometimes I must limit my fiber intake even as I am doing right now. And small frequent meals through out the day rather than just a few big meals. The enzymes helped me during the spells of pancreatitis. I also had a dr put me on magnesium at one point. I think you have much more going on though than I ever had. But maybe the enzymes will at least help you digest food better and relieve some of the digestive problems you are having. That bone scan result and your blood work seem to suggest that you have more than just one health problem going on.I'll see what I can dig up for you on your blood test.still unregistered. ;)* shopping trip was a disaster; I got weak and knew I made the mistake of doing too much too soon.Thank you for your resonse. I don't drink alcohol. I just received word from the oncologist that the bone scan will be repeated in a couple of months for the early bone lesion. The oncologist said I was extremely young to have MUGUS (Monoclonal Gammapathy of Undetermined Significance) which, normally occurs in people in their 60-70's so, of course this makes them follow up on that issue every three months. It will be interesting to see how these enzymes work. I am down to 95 pounds now and energy is a problem. Also received my latest blood test results via mail and I really dont know what it all means but there were some things out of slightly out of sink and I don't know what it all means like: RBC was low at 3.61 my MCV was high at 99.5, my MCH was high at 34.3, my MCHC was high at 34.5, Neutrophils were hugh at 72.4, Eosinophils were low at 0.7 and Abs Neutrophi were high at 7.9, and my Creatinine was low at 0.5 and WBC were 10.9. The numbers are not extremely elevated or low but I don't know what things like creatine, eosinophils, neutrophils, MCV, MCHV are, or do? I wish I could offer you some helpful suggestions as you have me. But please keep me posted as to how you are feeling. It's most helpful to converse with someone who understands what you are going through. Please keep me posted on your health and progress.
    Anonymous 42789 Replies
    • October 17, 2007
    • 08:44 PM
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  • What I found so far...I found some info that may help you understand the test results you got;but keep in mind that your dr is really needed to help interpret the findings becuase sometimes the values can be mis-leading. For instance some drugs like steroids affect the CBC results. ---------------2 links on MUGUS----------I found 2 links about MUGUS you may have already seen but I will put them here for FYI for you and anybody else reading the thread who may have some suggestions for youhttp://www.cancerbackup.org.uk/Aboutcancer/Pre-cancerousconditions/MGUShttp://myeloma.org/main.jsp?type=article&id=879-----------------------Two links so far on CBC (COMPLETE BLOOD CELL COUNT)CBC INFO... Most comprehensive and easiest to understand: http://www.nlm.nih.gov/medlineplus/ency/article/003642.htm#What%20abnormal%20results%20mean * cool pictures alsoCBC and other blood tests info. *this is more like a textbook format from a lab http://www.amarillomed.com/howto.htm-------------------You stated your RBC was low at 3.61 (red blood cell ct) low see link on RBC count http://www.nlm.nih.gov/medlineplus/ency/article/003644.htm#Normal%20Values* Lower-than-normal numbers of RBCs may be due to:Anemia (various types) Bone marrow failure (for example, from radiation, toxin, or tumor) Erythropoietin deficiency (secondary to kidney disease) Hemolysis (RBC destruction) from transfusion reaction Hemorrhage (bleeding) Leukemia Malnutrition Multiple myeloma Nutritional deficiencies of: Iron Copper Folate Vitamin B-12 Vitamin B-6 Overhydration ---------------------------- You wrote: my MCV was high at 99.5 : "Mean Corpuscular (ie cell) Volume (MCV) - This helps diagnose a cause of an anemia. ... high values suggest either deficiencies of B12 or Folate, ineffective production in the bone marrow, or recent blood loss with replacement by newer (and larger) cells from the bone marrow...quoted from Amarillo--------------------------I am looking for WBC info now. (WBC is white blood cell count)* WBCs are mediators of inflammation and the immune response. There are various types of WBCs that normally appear in the blood:Neutrophils (polymorphonuclear leukocytes) Band cells (slightly immature neutrophils) T-type lymphocytes (T cells) B-type lymphocytes (B cells) Monocytes Eosinophils -----------------------You wrote: and my Creatinine was low at 0.5 Creatinine is a form of protein found in the blood I believe. I shall look it up.------------------------Hope this helps get you started. Some of the info you may already know.Be sure to discuss the findings with the dr; because the dr needs to interpret the test results with your medical history together to make sense of the findings and determine if any findings are significant or not. And also to rule out false results that happen in a certain percentage of all tests done in a lab. Thank you for your resonse. I don't drink alcohol. I just received word from the oncologist that the bone scan will be repeated in a couple of months for the early bone lesion. The oncologist said I was extremely young to have MUGUS (Monoclonal Gammapathy of Undetermined Significance) which, normally occurs in people in their 60-70's so, of course this makes them follow up on that issue every three months. It will be interesting to see how these enzymes work. I am down to 95 pounds now and energy is a problem. Also received my latest blood test results via mail and I really dont know what it all means but there were some things out of slightly out of sink and I don't know what it all means like: RBC was low at 3.61 my MCV was high at 99.5, my MCH was high at 34.3, my MCHC was high at 34.5, Neutrophils were hugh at 72.4, Eosinophils were low at 0.7 and Abs Neutrophi were high at 7.9, and my Creatinine was low at 0.5 and WBC were 10.9. The numbers are not extremely elevated or low but I don't know what things like creatine, eosinophils, neutrophils, MCV, MCHV are, or do? I wish I could offer you some helpful suggestions as you have me. But please keep me posted as to how you are feeling. It's most helpful to converse with someone who understands what you are going through. Please keep me posted on your health and progress.
    Anonymous 42789 Replies
    • October 17, 2007
    • 09:44 PM
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  • I am sorry you are going through so much. Its easy to overdue things when you are momentarily feeling better...you end up paying for it later. Sorry your shopping trip turned out like it did but it will get better. Please be careful taking the Ibuprofen as that can flare your GI symptoms back up. It may be a temporary fix but it could cause further stomach problems down the road. Do they have you taking anything like Protonix or Prilosec? When will you get the results of your blood work back? Do the doctors give you any indication(s) of what could be going on? I've lost 30 pounds thus far. I am trying to do some work from home when its available as the lack of funds combined with the growing medical bills are taking their toll. I am VERY fortunate to have a wonderful husband and grown children who emotionally support me and that helps a great deal. I also find reading in the Bible helps when no definitive answers come. Doctor's are very smart and have been to school for a long time and studied hard in their respective areas; but I've learned that not everyone is the same and sometimes we just have to sit back and wait until "it is time" for things to reveal themselves. Thank you for the websites I will research them further. The research provided so far has been very helpful. Please don't overdue it today and do let me know what your test results turn out to be. God bless.
    Harvard 20 Replies
    • October 18, 2007
    • 00:53 PM
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  • Ok Harvard; I am registered officially as TaylorDeelwithit. You can PM now if you want. I crashed hard for the last two days. How can such a short trip set me back so hard? Still weak and lots of joint pain now. The weather is horrible and that is not helping the arthritic symptoms at all.The ibuprofen keeps the fever down; when I forget it the fever comes back. It helps the pain, but you are right about the masking the symptoms. I am glad I don't have pain meds now or I'd be reaching for them a great deal. I take Omeprazole. The Dr has me take the anti-inflammatory medicine with food. I do worry about the anti-inflammatory meds as I have had a serious hemmorrage before. The dr must be on to something, though. I feel I am getting the closest I have been to an explaination for the flare ups that I have had for years now. :) If so I will be quite relieved. I am thinking of going back to one of the RH drs now when I am having so many symptoms. Or the school of medicine in my region I went to years ago if my insurance I have now would let me. I will be seeing the dr this week for follow up. I feel glad to have him on my side, it makes a difference having a dr that will listen and work closely with a chronically ill patient especially when an illness flares up badly. Harvard You can PM me here I think, now that I am registered up officially. ;) I'll see if I can find a support group online for folks with your symptoms and MUGUS; you are going through so much and sometimes it helps to talk with others also having the same symptoms and going through the same illness related issues. I am glad you are surrounded by caring supportive people. Faith and hope always is helpful imb. Courage is also a good thing to have when you must deal with pain and uncertainty. Are there any good support groups (some groups aren't so good so you have to weed some out) in your area for dealing with serious illnesses like cancer? Have you tried this already or considered looking for a great support group? Maybe the Cancer Society or your Oncologist has some great groups that can put you in touch with other folks also dealing with issues like the weight loss and pain you have. Take care, keep in touch. Keep your hope alive as a positive outlook helps the immune system and keeps you from giving up when things get dark. As Lance Armstrong says, live strong. :cool: Time for me to get some more rest.;) And I will get back to digging up some things for you. I'll see if I can find some supportive groups online for you to check out. I am sorry you are going through so much. Its easy to overdue things when you are momentarily feeling better...you end up paying for it later. Sorry your shopping trip turned out like it did but it will get better. Please be careful taking the Ibuprofen as that can flare your GI symptoms back up. It may be a temporary fix but it could cause further stomach problems down the road. Do they have you taking anything like Protonix or Prilosec? When will you get the results of your blood work back? Do the doctors give you any indication(s) of what could be going on? I've lost 30 pounds thus far. I am trying to do some work from home when its available as the lack of funds combined with the growing medical bills are taking their toll. I am VERY fortunate to have a wonderful husband and grown children who emotionally support me and that helps a great deal. I also find reading in the Bible helps when no definitive answers come. Doctor's are very smart and have been to school for a long time and studied hard in their respective areas; but I've learned that not everyone is the same and sometimes we just have to sit back and wait until "it is time" for things to reveal themselves. Thank you for the websites I will research them further. The research provided so far has been very helpful. Please don't overdue it today and do let me know what your test results turn out to be. God bless.
    TaylorDeelwithit 382 Replies
    • October 20, 2007
    • 04:22 PM
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  • I am now officially registered as TaylorDeelwithit. You can PM now. I typed a long post and timed out; so don't know if you will get it. I am too tired to write another long post. Crashed hard since the short trip out. Weather is bad and isn't helping the arthritis pains. I am on Omeprazole right now; but do need to be careful as I once had a serious hemmorrage and lost 2-3 units of blood. I will look for some online support groups for you. Has the oncologist given you and great support groups in your area to help you deal with your illness. It can be helpful to be around others going through the same things you are dealing with. * I will also look for info on WBC tests unless you found some info already. Keep in touch. Feel free to PM me. I am still waiting for the results; but think the dr is on to something with re. to arthritis and auto-immune diseases. I am sorry you are going through so much. Its easy to overdue things when you are momentarily feeling better...you end up paying for it later. Sorry your shopping trip turned out like it did but it will get better. Please be careful taking the Ibuprofen as that can flare your GI symptoms back up. It may be a temporary fix but it could cause further stomach problems down the road. Do they have you taking anything like Protonix or Prilosec? When will you get the results of your blood work back? Do the doctors give you any indication(s) of what could be going on? Thank you for the websites I will research them further. The research provided so far has been very helpful. Please don't overdue it today and do let me know what your test results turn out to be. God bless.
    TaylorDeelwithit 382 Replies
    • October 20, 2007
    • 04:29 PM
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  • You may want to get your adrenal glands checked if your having upper right quadrant pain. The seizures may be tied in with it. Sounds like the stool problem is gallbladder related. Probably needs to be taken out.
    Anonymous 42789 Replies
    • October 20, 2007
    • 06:28 PM
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