Discussions By Condition: I cannot get a diagnosis.

Need help

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Unknown00
  • October 10, 2009
  • 08:39 PM

Ever since I was small, I’ve been suffering from some sort of illness. When I was smaller, I would get an intense spinning sensation and some other sensation I’ve been unable to describe. I can only recall vomiting once due to this illness. I believe I also suffered from sensitivity from light as well. I don’t think I ever lost my balance during the sensations. When I was a toddler, I fell a lot. But from what I can remember, I never really had any balance issues. The closest I’ve came to describing the sensation is either dizziness or lightheadedness. I’ve noticed that if I spin around just a few times, I experience the same sensation as the one I can’t describe. Nothing is spinning as what you’d expect to feel after spinning around. But, I just have to spin a few times though. I also noticed that repeatedly blowing up a balloon can give me the same indescribable sensation. It’s those two occurrences which leads to think dizziness or lightheadedness. One doctor said that if nothing is spinning then it’s not dizziness. But I’ve heard of “vague symptoms”. It’s where you experience a mild form of a symptom which can make it difficult to describe or diagnosis. So I have no idea if I’m experiencing a mild form of something, if it’s possible. I was thinking it could be migraines. Although, I normally don’t experience pain. This year is the first time I ever had chronic headache with the sensation. But I’ve heard of silent migraines where the individual doesn’t experience any pain. I’ve also heard that migraines run in families. My grandfather had severe migraines that kept him in bed for days. My mom has chronic headaches, but has never been diagnosed as migraines. My dad has had migraines. My dad also had motion sickness. So from my research, that puts my around at least a 50% chance of migraines. As I was growing older, the spinning sensation lessened. I haven‘t vomited since the first time and it seems light doesn‘t affect me like it used to. Generally, I’d get this sensation mildly before it got to its peak. After that, it’d lessen and go away. Usually the sensation only lasted days when I was younger. When I grew older, it turned into anywhere from a week to several weeks. This year it has lasted the longest by far; five months and still going. When I was smaller, it seemed like Colby cheese was one of the factors that triggered the sensation. But I can eat Colby now seemingly without a problem. I‘ve also noticed that if I smell an odor I can experience the sensation as well. But it usually only lasts for a few seconds then goes away. One encounter was while I was in a body shop and I smelled the primer paint for a car or something. It was a strong smell, but I didn’t feel like getting a headache or anything; just the sensation. I don’t know if you could call that a trigger, because if it was then wouldn’t the sensation last weeks like normal? Another thing that seems to bother me is rigorous exercise. I don’t have a problem riding in a car without the sensation, but when I’m experiencing it is when it becomes a problem. Whoever is driving and takes a turn, irritates the sensation. Generally, anything I do can aggravates it. That includes walking, talking, loud noises or eye movements. Pretty much anything. Not too long ago I had a balance test done. It showed that I have some damage to my left inner ear. Something about signals not being received properly or something. My doctor didn’t really go into detail. I also had a MRI with contrast done, and it came back good. I’ve had a lot of tests done, and they should rule out a lot of the major illnesses. I’ve seen an ear, nose, and throat specialist. From what I’ve told him he never went down the road of a possible inner ear problem. I always had pretty good coordination and everything. Migraines can cause a disturbance in the central nervous system which I’m experiencing. It seems like it’s either a head, inner ear, or possibly some blood pressure/vessel condition. The last blood test I had was years ago, and it said I had an iron deficiency. I thought of Iron Deficiency Anemia, but I kind of doubt it seems to “change” with age. One doctor said migraines change with you. I was told by a neurologist that I have optic migraines. Another neurologist told me I had vertigo. One other doctor was thinking I might have Nonallergic Rhinitis. He said the inside lining of my nose was pale, which is a sign for that. And given that I have a chronic cough, runny nose, and my mucus is white points to allergies I would think. I also will find myself to have a little pressure on the upper bridge of my nose, but it doesn’t last long. Not to mention that odor can affect me. I’ve tried a medication for the things I’ve mentioned. None of them seemed to work. Maybe I didn’t give them enough time or maybe I needed to try a different medication. I’m not sure. I’ve taken Topamax for migraines; Flonase and Rhinocort for Nonallergic Rhinitis, and Paxil for optic migraines. I can’t remember what I took for vertigo, if I did take anything at all. Also, I think just about every time I went to the doctor for anything, he’d tell me I had a lot of ear wax. So I don’t know if that may cause a blockage or an infection which could lead to this. I know something is disturbing my central nervous system. It explains why pretty much anything I do affect the sensation. I just need to find out what’s causing it and hopefully that’s the root of this indescribable sensation that has plagued me for so many years. I know migraines can cause a disturbance. I have a family history of them. Just all these years without pain is odd, but I suppose it’s possible. Again, this was the first year I ever had headaches with the sensation. Is there a connection, or just a coincidence. I recently toke Topamax for migraine. At 50mg it seemed to take away the headaches, but the sensation remained. I was on 50mg for awhile, and then the sensation started getting worse. So the doctor told me to take 75mg of Topamax. About five days after, I started to feel better. A few more after, it actually felt that if I went up one more dose I’d actually stop experiencing the sensation. I started taking 100mg, and later on in the week or so it actually felt that maybe the extra dose might have actually reversed some of the positive effects of the 75mg dose I was taking. Eventually, I ended up having side effects taking Topamax so I no longer take it. I just wonder if the improvement I felt taking Topamax means anything. The sensation can vary, but for it to feel that bad then go to pretty good.. I don’t know. I can be fine, then out of no where I’ll get hit by this sensation. I haven’t really noticed any triggers other than maybe Colby cheese, but that was years ago. My nose was congested and running. That’s another first with the sensation, or maybe just a coincidence. I’ve been under some stress, which can cause tension headaches. But I’ve been under plenty of stress before and never gotten any. So, I’m not really sure where to go from here. Any help would be greatly appreciated. Thanks for your time.

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