Discussions By Condition: I cannot get a diagnosis.

Need assistance

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: ProfessorHall
  • January 20, 2008
  • 06:52 PM


I am desperate. Help. I am retired. I went to an ENT doctor and the all day testing of my inner ears was all negative. I can hear fine but I have problems understanding speech, especially on the phone. I have ringing of both ears. Recently, sometimes I have problems talking or I may lose my voice. I can choke and choke, and this is without any food or fluids. My closed MRI's, evoked potentials, and lab tests were all negative. I am not allergic to anything. I am on hypothyroidism medication as my main medication. I am not diabetic. I am in bed 24/7 because of undiagnosed, vast and numerous, progressive and relentless, non-stop neuromuscular problems that began overnight, including severe vertigo and neuropathy below the knees. I have shooting and stabbing pains. I have numbness and tingling, hot and cold sensations. I was very recently in the hospital for a few days for severe pain from head to toes. The hospital gave me IV Solu-Medtrol and IV saline solution, which greatly helped. I have gradually lost my diaphram, esphogeal, and digestive muscles. I won't have ventilation or tube feeding. I have a perfect cardiac history. Recently, I have vertigo so severe that it literally throws you to the ground. I can barely walk because the vertigo causes severe staggering. I have severe ataxia of gait. Sometimes either or both leg or/and either or both arm will suddenly give out, then later, the legs or/and arms are fine. I remain positive but I am astounded and shocked that I cannot be diagnosed as having something wrong. Help. Mr. Dana Karl Hall

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  • I'm sorry you are in so much pain and have all the other symptoms. Why are you on thyroid replacement? Do you have Hashimoto's autoimmune thyroiditis? There is a rare complication of this that most doctors have never heard of called Hashimoto's Encephalopathy. It can cause ataxia, fatigue, headaches, weakness/paralysis, swallowing problems, and language difficulties, as well as other symptoms. I do not know that it causes such severe pain, however, so perhaps this is not what you have or perhaps you do have this and are a rare case with severe pain.The diagnosis is made typically by a neurologist who has heard of it who checks your thyroid antibodies, which are elevated.Treatment is steroids, which is interesting since they seem to have already worked in your case.Perhaps you should seek the care of a neurologist who is willing to make a solid diagnosis- be it HE or whatever is actually the source of your symptoms.I hope you get answers and feel better soon.
    Anonymous 42,789 Replies
    • January 21, 2008
    • 04:04 AM
    • 0
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