Discussions By Condition: I cannot get a diagnosis.

Need advice to figure this out

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: mathieu
  • March 12, 2009
  • 01:52 AM

I am a 30 y.o. male who has been living with chronic knee pain for years now( was told it is chondromalacia) that always been worse with weather change and that can be very high on the scale pain with or without exortion.

Within the past few years, it has progress to other joints, making even my toes hurt. The main joints that are painful regularly are both knees, ankles, all toes, wrists, neck, shoulders and my shoulder blades give me a hard time too.

To add to this, I had lymph nodes removed in my groin (right side) because they were enlarged.

Although all was clear with what was removed, i seem to have problems with my lymph glands off and on... in my arm pit they get very tender and sometime swollen off and on. Same goes in the groin area on both side.

My muscles aches off and on without reason... and often accompany my joint pain on the scale level and area affected. My lower back experience pain that don't seem linked to strain or work or anything at all either.

I seem to more and more search my words when I speak. Although it seem so unrelated to all of this is not a usual thing for me although english is my second language. It gets frustrating... I lose my train of thought or although I know what I am trying to say I can't find the words that goes with the thought. I mix people name at work and it is upsetting by moment how it can affect random daily basis tasks.

My fatigue level fluctuate without reason either. I don't do anything different yet one week it is easy to get up and go about my day and other week like this week, I can hardly get myself out of bed and feel extremely exhausted all day long. Like my whole body is falling asleep on me.

All Doctors ever come up with is that my knees and other joints hurt because of martial arts when in fact, it doesn't impact anything more than work or daily life. I know because I haven't went to martial arts in 4 months now( non-related reason) and everything hurts as much as ever.

If the doctors can't find anything wrong with me, than why am I in so much pain?

The only thing that seem to bring relieve is Naproxen and it depends on how severe the pain is. (if severe it often doesn't do much for me)

I can walk and do regular activities most day but the pain is constant regardless if I rest or do something.

I'm at a loss as what is going on with me really...

Thanks for any help

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17 Replies:

  • Have you had any blood work done? Tests for thyroid dysfunction or arthritis? Are you on any medication other than the NSAIDs?
    Harmonium 322 Replies Flag this Response
  • I had blood work done about a year ago. Nothing came out of it. No no other medication at this moment.
    mathieu 4 Replies Flag this Response
  • I would ask for a TSH, free T4 and free T3 (to check your thyroid) and ANA and Rheumatoid Factors. Also check yourself for the Fibromyalgia tender points, or ask your doctor to do so. It sounds to me as if you have Rheumatoid Arthritis, but I'm no doc. I'm going through similar pains and just received a positive ANA (high). I'm going to a rheumatologist for further testing.
    Harmonium 322 Replies Flag this Response
  • I forgot SED rate, that would probably help too.
    Harmonium 322 Replies Flag this Response
  • Sounds a lot like what I went through before I found out I had Lyme disease. Knee problems, then back and neck problems,occaisional chills, cold sweats, bad sleep problems, disorientation, memory problems, blurry vision, always hot, sweating, night sweats, I would turn pale sometimes and itch all over. All of this, and more for 10 years. Then, after an injury it got worse. Stabbing pains, carpal tunnel, numbness, tingling, muscles twitching, chest pains, balance problems, Confusion so bad I would have to pull over when driving because I couldn't remember where I was going, severe fatigue, losing muscle control, mixing up names, searching for words, burning pain like fire, arthritis. Does this describe your symptoms?
    william rathbun 7 Replies Flag this Response
  • What I would like to know is are your joints inflamed, especially fingers and knuckles? Are they red and shiny? do they ache to the touch? Have you noticed nodules around the effected joints? And do your hands look strange to you at all, like they are deformed (bent fingers/toes)? If you have none of the symptoms mentioned above, I would rule out Rheumatoid Arthritis. In any case, RA generally effects far more women than men (75% are women). Gout effects far more men than women, and can mimic symptoms of RA. Gout can also effect multiple joints if left untreated.Hope that helps...
    NeverGiveUpBoy 26 Replies Flag this Response
  • I agree with Harmonium regarding the blood tests,but I think you need to be on a prescription strength NSAID.
    richard wayne2b 1232 Replies Flag this Response
  • my knuckles and fingers do not look different than years ago and they are defenitely not red and shiny neither deformed. If I recall well the blood test last year was to check for arthritis and came back clean. That is when she started telling me it was all caused by martial arts which is ridiculous like states before. My upper arms feel so tired this morning for some reason starting from my shoulders to elbow. Same with upper legs. Things are different everyday as for how much and what bother me. Right now this morning it just feels really heavy. Don't know. It always feels like all my joints are asleep when I get up in the morning. Lingering pain keep on allday and often goes from bad to worse. But mornings are so hard cuz my body feel so heavy and stiff. Either way that is what I feel today
    mathieu 4 Replies Flag this Response
  • Shoulder and pelvic girdle symptoms often mean that you have a type of myopathy.Get a CPK blood test to rule this out(or in).
    richard wayne2b 1232 Replies Flag this Response
  • Have you had any blood work done? Tests for thyroid dysfunction or arthritis? Are you on any medication other than the NSAIDs?To clarify, the last time I had blood work done, it was mainly related to arthritis but had come back clear. Only other medication I take is Testosterone Cypionate.Sounds a lot like what I went through before I found out I had Lyme disease. Knee problems, then back and neck problems,occaisional chills, cold sweats, bad sleep problems, disorientation, memory problems, blurry vision, always hot, sweating, night sweats, I would turn pale sometimes and itch all over. All of this, and more for 10 years. Then, after an injury it got worse. Stabbing pains, carpal tunnel, numbness, tingling, muscles twitching, chest pains, balance problems, Confusion so bad I would have to pull over when driving because I couldn't remember where I was going, severe fatigue, losing muscle control, mixing up names, searching for words, burning pain like fire, arthritis. Does this describe your symptoms?Knee problems: dailyOccasional chills: yesCold sweats: very occasionalBad sleep problems: every other nightDisorientation: occasionalMemory problems: occasionalBlurry vision: short laps, several times a day every other dayAlways hot: noAlways sweating: no but sweating more than shouldNight sweats: occasionalTurn pale: always pale and turn red easilyItch all over: Occasional and bad when soNumbness: occasionalMuscle twitching: off and onChest pain: off and onBalance problem: Off and onConfusion: occasionalSevere fatigue:yes, dailyMuscle control: noMixing up names: dailySearching for words: dailyBurning pain: dailyArthritis: not diagnosedSigh...hope it helps and hard to concentrate so probably still forgetting some stuff I should mention... sorry
    mathieu 4 Replies Flag this Response
  • You have a lot of things that could be caused by late stage Lyme. I would look into it. With Lyme, symptoms come and go, can be mild or severe. Also, it can do almost anything to you, as it gets in all your joints and organs. There are a lot of videos on youtube about lyme. I talked to a testing facility today, called "any medical test now". They told me you can get a western blot there for $89. Good luck
    william rathbun 7 Replies Flag this Response
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  • Sounds very much like Lyme disease to me. All the symptoms, escpecially the dementia and the progression of your pain in the joints (knees), could very well suggest that problem. Go for the tests, but tell your doctor you want that specific one done. The medical fraternity seems to be split down the middle where Lyme is concerned. Dont worry. There are treatments available for Lyme, incl. anti-biotics. It clears up in days, if diagnosed correctly.
    NeverGiveUpBoy 26 Replies Flag this Response
  • I am kinda confused when it comes to lyme disease. does it go away forever after treated? is it chronic? yeah i need to figure out when it will be possible to have an appointment with my doc. with the new job it is kind of hard to take time off...anyways... i really been having a hard time today. although my joints and muscles been hurting, the worse today was the constant struggling when talking like if i cant find the right words and stutter almost. it was bad and frustrating for sure...
    mathieu 4 Replies Flag this Response
  • There are no easy answers when it comes to Lyme. One of my friends was off of the antibiotics for about a year and a half, but she has recently tested positive again, and has gone back on antibiotics. If you think Lyme is what is causing your problems, you should find a specialist. It is not easy to find a Dr that will help you if you have Lyme. The people at ILADS helped me a lot.
    william rathbun 7 Replies Flag this Response
  • Sorry I don't have any advice..Just wanted to say ...............If you're not trusting the diagnosis given keep pushing until you are. I know how frustrating it can be, but NEVER give up until you're satisfied. I wish you the best of luck :)Sammy http://www.undiagnosedillness.org
    Anonymous 42789 Replies Flag this Response
  • Sounds like MS???
    Anonymous 42789 Replies
    • February 3, 2010
    • 11:15 AM
    • 0
    Flag this Response
  • Sounds like MS??? Yeah, I had people telling me to get checked (tested?) for M.S. right before I got a positive Western Blot for Lyme Disease. I looked up symptoms of M.S., and I had almost all of them. I don't know how good that symptom list was, but I had most of what they had listed. Anyway, hope you find the right answer.
    william rathbun 7 Replies
    • February 4, 2010
    • 00:31 AM
    • 0
    Flag this Response
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