Hello, I'm a 22 year old female (about 5'7, 128 pounds) who has been dealing with an undiagnosed illness for almost two months now. It began when I came home from college and became easily shaky/out of breath/fatigued on exertion.. most notable when I did my weekly workout routine (just jogging and some light weights). I went to the doctor and she told me I was "subclinical hypothyroid" (based on thyroid blood work she took) and prescribed me armour thyroid medication 15 mgs. I waited to take the medication, in the meantime I was getting shakier and weaker over the course of a week. Finally one day at my boyfriend's house, I waited too long to eat a meal (normally I eat frequently every 3 hours or so), and I got an intense episode of tachychardia, shakyness, shortness of breath and weakness that continued to get worse over a few days. I began the armour medication (thinking my problem was related to the mild hypothyroidism) after three days of feeling like this and it simply worsened my symptoms. I discontinued the medication after one week of symptoms worsening. It got so bad I went to the emergency room where they didn't note anything too unusual other than: high blood sugar at 130, elevated white blood cell, slightly lowered red blood cell, and slightly low potassium. They simply told me to follow up with my primary care doctor.
My current symptoms include: weakness, shakyness, fast/pounding heart rate, inability to exert too much energy (I can walk around my bedroom a little, get up to the bathroom but other than that I am in bed for most of the day), constant insatiable hunger as in the need to eat something almost every two hours otherwise I get even more shaky, out of breath, and weak. Even when I do eat, I still feel extremely hungry. And I have been losing weight, regardless of how much I eat (17 pounds since this started, I used to be at my normal weight of 145 or so). I've also experienced numbness and tingling in my arms and legs that comes and goes. Finally, I have experienced episodes of lower back pain (seemed like kidney pain), which went away when my diet changed (I began eating a higher protein, low carb diet), because I noticed consuming breads, pasta, sugary fruits made me feel even more shaky.
My family suspected diabetes and took me to an endocrinologist. She took the Hb1AC test as well as my fasting blood glucose. The results were 5.5 and 82, respectively. She told me my results were perfectly normal and she had no further questions. She also checked my thyroid and adrenal function, and stated they were normal.
free t4: 1.36
Adrenal: ACTH STIM TEST
30 mins: 32.2
1 hour: 34.3
My family and I are lost as to what to do. And it's getting very impractical to feed me almost 5-6 meals per day. We bought a home blood glucose meter to check periodically as well, especially when I start to get very shaky or out of breath without food, and my blood sugar seems to always be in the 80's. Once I checked in the middle of the night, when my shakyness was really bad and it was 71.
Does anyone have any clue as to what could be wrong? What sort of specialists or doctors should I go see? Also, I wonder if my low carb diet could be skewing my blood test results (the only reason I eat this way is because it seemed breads/fruits made me more shaky)? On a side note: my mother was recently diagnosed for Chagas disease (which is a tropical parasitic illness), so I don't know if that's a possibility too.