Discussions By Condition: I cannot get a diagnosis.

nausea, vomiting, severe stomach cramps

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • October 24, 2008
  • 02:11 PM

Hi, I could really use some help before I pull all my hair out. I have many symptoms and
many other diseases. I have been diagnosed with Osteoarthritis, Rheumatoid, fibromyalgia, irritable bowel, hyatal hernia, severe acid reflux, hemmroids,endometriosis, depression, anxiety. When I wake up each morning, I have no energy and I feel like no blood in my body, i always have diahreah and half that time I vomit also. regardless, I am always nauseous in the mornings and it sometimes goes into the afternoon. I'm almost always freezing, although most nights I switch as quickly as my mood swings at being hot and clammy to freezing and white skin. I am very stiff and unbalanced especially for a few hours in the morning, but often times all day long. when I was working, by the time I returned home, I was so sickly and exhausted. I recently had a radical hysterectomy, but I have felt this way before the hysterectomy. I had high blood pressure badly before the hysterectomy and it hasn't came back so far, but before there were many times it got quite high. so far the gasterologist has said I have adhesions in my small intestines. my arthritis doc has put me off work for several weeks and I hope it doesn't make things worse in the long run, but I am sick or extremely tired everyday and when I seem to go out among people I tend to end up with a fever and flu like symptoms at least for a day. my legs, feet, arms and hands get numb a lot and I feel when the blood starts circulating again. recently, I had a blood vessel in my right eye bust, took forever to heal but I have also been told by physicians I have a slow healing process. I also have busted blood vessels at times on my face or legs, my ligaments are weak. I broke my middle finger cleaning the carpet. it ended up being the ligaments. my eyes have gotten extremely worse. I have a lazy left eye but it seems my right eye is getting weaker.I get confused, lose my confidence which I always have been comfortable in my professional life.I am lethargic, and even though i've worried about having my career and my own money, I feel like I just have to give up working. I can't handle the responsibility of work and my health is way too inconsistent. I am having trouble either with my bladder of kidneys where I have to go immediatly when I feel the urge or I start going in my underwear and have a pain in my uretha. When I was a child I had severe leg cramps and sometimes still do,complicated and I'm sure I forgot many things but anybody who could help I appreciate it!

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  • Hi, I just read your concerns and couldn't help but to think of my sister. My little sister has had many of the same problems as you, and after treading back and forth to the doctors, she was finally correctly diagnosed with Chrones diseas. Chrones disease displays many sysmtems as the other illnessness you have been 'diagnosed' with and therefore can often be easily overlooked or misdiagnosed. This is the same with another similar disease, Ciliac disease, which can cause many of the same concerns, so I strongly suggest having a look at that as well. Obviously, due to the uncertain nature of these diseases, depression and anxiety may become prevalent, so if you do find out you may have either Crones or Ciliac, the sooner you find out the sooner your treatment, and feeling better can begin. Just ask yourself a coupel of quick questions and if you answer yes, it may be very possible you need to get check out for these. Do you find yourself getting more sick after eating certain types of food? If you hadn't made the connection before, it may be worth trying gluten free food for a few days, and see if that helps. For some reason, gluten seems to irritate these types of illnesses. Gluten free food may be a little difficult to find and stick to, but more and more people are finding they are having problems with gluten and shops are now providing gluten free alternatives. Also, have you found you might be slightly lactose intolerant, again something that comes about with these diseases. Sometimes, weight gain or weight loss can also be atributed to these diseses as well. I really hoped that may have given you some insight, just maybe google chrones or ciliac and have a more thorough look at their symtoms and see how relevant it is to you. Good luck with it all and I would love to find out how you go with everthing:-)
    simone25 1 Replies
    • November 10, 2008
    • 02:38 AM
    • 0
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  • I agree with the previous post. I have ulcerative colitis that for years was misdiagnosed as hemorrhoids (they could have said IBS too).
    lstevens 9 Replies
    • November 12, 2008
    • 01:27 AM
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  • If the things the other two have said have been ruled out (and anything else people suggest)... from your symptoms.. there is a possibility you have chronic fatigue immunity dysfunction syndrome (CFIDS). I am sick or extremely tired everyday and when I seem to go out among people I tend to end up with a fever and flu like symptoms at least for a day. flu like symptoms after exertion eg exceeding ones "limit" and doing too much when not well, is quite classical in CFIDS.. along with having a ton of other symptoms too. I suggest for you to check out http://wwcoco.com/cfids/bernesx.html Low blood pressure is the norm in CFIDS, with up to 95% in this illness having low BP.. but in 5% of us with it, things go the other way and the sympathetic nervous system dysfunction involved in it.. can instead create high blood pressure at times rather than the low. One quarter to 75% (depending on what study one reads) of fibromyalgia patients.. have CFIDS too. Fibromyalgia is just ONE of the symptoms of CFIDS. CFIDS.. studies have shown that only 10%-20% of patients out there... have gotten a proper diagnoses!!! the other 80% are out there still trying to find out what is wrong with them.
    taniaaust1 2267 Replies
    • November 12, 2008
    • 02:08 AM
    • 0
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