Discussions By Condition: I cannot get a diagnosis.

Nausea, Vertigo Spells, Headachey (eye related?)

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: ellenrenee
  • January 2, 2009
  • 02:58 PM

I started getting daily nausea (like a sinus infection in my head not in my stomach) and periodic severe vertigo/dizzy spells about 1 month after I had PRK eye surgery. I was told it was not related to the surgery by the surgeon. I had lasik in 00 and then my eyes started deteriorating but I had too thin of cornea so had to have PRK the 2nd time (06). It didn't work and I still have my eyes changing all the time and cannot keep glasses or contacts - they are always either too strong or too weak it seems to go back and forth. That is why I think the eye issue may be related...?

I have been for the past 2 1/2 years through a multitude of tests. ENT dr says all clear, had MRIs and CAT scans, and all balance/inner ear tests. Also had full allergy workup on environment factors - all clear. All normal they say. Had blood workup by primary care dr - all clear. Sent me to a neurologist and they say I have migraine variants/atypical migraines. Been treated for the past 9 months with various migraine meds of which none have helped. I think it may not be migraine, because I have daily issues feeling nauseated (head only - no vomiting can eat just fine.) Also when I try working out (which is what i used to do a lot of) I can only do about 15 minutes before being overwhelmed by nausea/slight dizzyness. Then I get every few months a huge spell of vertigo that leaves me bedridden it is so bad. I will be in bed from 3 days to 2 weeks. Been on about 10 different meds for the vertigo - did nothing or very little. I have no other symptoms and have also seen a chiropractor to help with my stress and headaches.

Any ideas??? I feel yucky every day and cannot do things I used to. I would be SO grateful for some ideas on what to check out next because this has really reduced my quality of life.

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9 Replies:

  • You didn't say whether or not you have ringing in your ears or hearing loss.Next, see Cogan's Syndrome.
    richard wayne2b 1232 Replies
    • January 2, 2009
    • 03:20 PM
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  • Also,what meds are you on?And lead,mercury, and tin poisoning can cause vertigo.
    richard wayne2b 1232 Replies
    • January 2, 2009
    • 03:26 PM
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  • I do not have ringing in ears or hearing loss. Meniere's is ruled out. I saw 2 ENTs and a vestibular therapist and there is no inner ear problem. However, I did neglect to mention that my ears do feel full and somewhat sore inside - but they are always checked out fine. All drs tell me they don't know why my ears are like that.
    ellenrenee 3 Replies
    • January 2, 2009
    • 03:32 PM
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  • Meds I'm on now (and these are new since a couple months ago as they keep switching them): lexapro 10 mg, neurontin 900 mg I am also on seasonale generic birth control pills and have been for 4-5 years.
    ellenrenee 3 Replies
    • January 2, 2009
    • 03:34 PM
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  • Meds I'm on now (and these are new since a couple months ago as they keep switching them): lexapro 10 mg, neurontin 900 mg I am also on seasonale generic birth control pills and have been for 4-5 years.I have my grandmother who's been suffering from the same kind of problem, same thing for her nothing seem to really work. We really feel hopeless, how do you feel about? Have you made any progress or found some therapy that worked for you recently?
    Anonymous 42789 Replies
    • January 23, 2010
    • 05:18 PM
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  • I have my grandmother who's been suffering from the same kind of problem, same thing for her nothing seem to really work. We really feel hopeless, how do you feel about? Have you made any progress or found some therapy that worked for you recently? Well since this was written I got more symptoms (chemical sensitivity, headaches, neck pain, stomach issues) and am now diagnosed with lyme disease. I started antibiotics in Nov and have gotten a little better but still have bad days. Hopep you can figure out what is wrong with your grandma. Don't give up. Keep doing research and seeing different doctors until you find out!:)
    ellenrenee 3 Replies
    • January 24, 2010
    • 04:53 PM
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  • If it's worse when you sit or stand up or after using the bathroom, it could be neurocardiogenic syncope. It is easily tested for by a Cardiologist using a tilt table test. The other thing you might consider is going to a vision training specialist. They might be able to pick up on something a regular eye doctor would not test for such as problems where brain is not communicating correctly with your eyes. Good Luck!
    Anonymous 42789 Replies
    • January 24, 2010
    • 09:24 PM
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  • What are the ingredients in your bcp? Could those times coorelate?
    Anonymous 1 Replies
    • August 15, 2014
    • 05:19 AM
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  • Did it ever go away? I've had the same exact problem after PRK with them saying it isn't related and been through the same thing with ENT. I have had this going on for 6 months and just want to feel normal and carry on with normal life.
    Anonymous 1 Replies
    • September 28, 2015
    • 01:01 PM
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