Discussions By Condition: I cannot get a diagnosis.

nausea, fatigue, radically changed taste in mouth... please help!

Posted In: I cannot get a diagnosis. 35 Replies
  • Posted By: Anonymous
  • June 2, 2007
  • 00:59 PM

Please help me!
I'm 30 years old, male 30, no history of diseases really.
Now i'm really ill, and all the doctors say different things.


JUST BEFORE
I had two minor „blackouts“ last summer. Both times while walking stairs during long distance walks, both times without eating that much. After drinking and sleeping it went away pretty quickly.
At that time a weird kind of smell appeared in my mouth, and i've had it since. It's just getting worse, sort of sweet, butterish, like it tastes when u have a cold.


IT ALL GETS SERIOUS
Now, Dec 30 attack three comes. I'm carrying heavy boxes and suddenly i get a wild nausea, start sweating and have to sit down. I went a sleep for the rest of the day.
After that my life has been ***l.
# my hands and neck are SHAKING after activity, usually even when i wake up
# i feel constantly SEA SICK, even more so when moving/riding cars etc. (its cool when i lay down). Nausea increases from activity.
# severe muscle fatigue
# peep sounds in my nose (for 5 months!!!)
# cracking stiff neck and pain, to the point that sometimes i can hardly move it.
# HANDS get cold when lifting them for like 2 minutes
# i'm extremely HUNGRY, eat like 6 times a day, and whenever i fail to eat i get sweaty, nervous, pale and totally helpless.
# sound sensitive with a horrible shaking in the ear
# i'm NOT sleep-tired (i sleep 9 hours a day, never during the days)


OLD PROBLEMS
i've had some difficulties health wise over the last 10 years
# i've had recurring chest discomfort when breathing in for almost 10 years (like 10 times a year)
# i've had muscle pain in the back and neck, worsening when resting. Nausea and „bad stomach“ for the first 2 hours a day.
# if i sit down in a bad position for like 20 minutes i get terrible pains.
# i've therefore been tested for morbus bechtrews (negative) and reumatic diseases (neg).
# i've been mysteriously tired in the morning+afternoon, but very awake in the evening
# hypocondriac or not, i've always felt there's somethings systemically wrong with me.


DIAGNOSIS
i've seen a whole lot of doctors and specialists in 5 months. They all say different things.
# one says lyme's. I tested negative in the standard test.
# one says stress. Thing is i'm not stressed, not depressed. I DID work a lot during 3 months fall of 2006 but that was for THREE months. I'm usually a slacker taking 12 weeks vacation during the summer and things like that.
# third one says mercury poisioning
# fourth says it's a mystery, cant help you
# last one says post-viral fatigue.


Excuse me for the long post, just thought i'd tell as much as i can.


Can anyone please help me?
What doctors/alternative medicine guy is right???
what should i do?
My house doctors claims it's stress (because of all the normal blood tests etc) so i've started doing yoga, drinking anti stress-tea and seeing a psychologist (we have nothing to talk about except for daily events and movies).


Please help me! I'm getting tired of this mystery.


Best /nikl

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35 Replies:

  • That taste in your mouth might be ketones on your breath. Something might be wrong with your pancreas and insulin production. If your body doesn't get enough "food" in the bloodstream (sugars etc) then you start burning your stored fat . Ketones in urine and on the breath a by-products of this (ok, this is very simplistic, but I hope correct). Get tested for diabetes. Also, how are your teeth. Do you have a filling that is leaking and which gives you a bad taste in the mouth. Do you eat a breakfast high in protein. Maybe you feel better in the evening because you've had a good meal. Diabetes can do a lot of damage if you don't get it ruled out. Eat sensibly until you can see your doctor. Only natural sugars and not much of that.
    rad-skw 1605 Replies Flag this Response
  • That taste in your mouth might be ketones on your breath. Something might be wrong with your pancreas and insulin production. If your body doesn't get enough "food" in the bloodstream (sugars etc) then you start burning your stored fat . Ketones in urine and on the breath a by-products of this (ok, this is very simplistic, but I hope correct). Get tested for diabetes. Also, how are your teeth. Do you have a filling that is leaking and which gives you a bad taste in the mouth. Do you eat a breakfast high in protein. Maybe you feel better in the evening because you've had a good meal. Diabetes can do a lot of damage if you don't get it ruled out. Eat sensibly until you can see your doctor. Only natural sugars and not much of that.thanks for the reply!i think they've tested for diabetes (blood test, not urine) and nothing showed as far as i know.according to a specialist i went to, i also have a mild "cronic" infection in my throught (its red basically) that they can't explain, it's just there.maybe that has something to do with the annoying taste...?/nikl
    Anonymous 42789 Replies Flag this Response
  • Sounds like some insulin resistance going on. Are you diabetic? Also sounds like lactic acidosis (dont quote my spelling) which is serious. Dont give up til you get a DR who makes you feel better. I was accused of being a hypochrondriac until I found a DR who was able to link all my random symptoms together and tell me I had polycystic ovary syndrom. I know about both the insulin resistance and lactic acidosis because they are related to my illness and the lactic acidosis can be caused by the medication I take for it.
    Anonymous 42789 Replies Flag this Response
  • I bet the changed taste in mouth is from sweet/sour/bitter?
    Anonymous 42789 Replies Flag this Response
  • I bet the changed taste in mouth is from sweet/sour/bitter?sorry if i'm stupid now, but do you mean that sweet/sour/bitter NOW is the dominating taste?it kind of is. sweet and bitter for sure, not so much sour i'd say.please explain your thoughts...!stuff that make the taste worse i 1) eating (10 minutes after), 2) exercise (totally weird) and especially water, fat, sugar, and tasteless stuff such as water.hmm...best /nikl
    Anonymous 42789 Replies Flag this Response
  • After exercise, ketones will be more pronounced. You are not on Adkin's diet, are you? Do other people think your breath smells fruity?
    rad-skw 1605 Replies Flag this Response
  • After exercise, ketones will be more pronounced. You are not on Adkin's diet, are you? Do other people think your breath smells fruity?
    rad-skw 1605 Replies Flag this Response
  • After exercise, ketones will be more pronounced. You are not on Adkin's diet, are you? Do other people think your breath smells fruity? no, i'm not on atkins.other people do notice it. its not fruity really, more like inflammation like/sweet.i have more mucus coming up than usual.i checked the lactic acidosis symptoms, and i dont have high puls, anemia and i'm not vomiting.
    Anonymous 42789 Replies Flag this Response
  • That sure does sound like an Insulin problem. But, it also sounds to me like a Thyroid problem. Have you had your TSH, T3, T4 tested? Sometimes even if it is slightly out of range it can cause extreme symptoms, which a lot of doctors won't give credit to.Good luck. I feel your pain; I'm in the same situation!
    Anonymous 42789 Replies Flag this Response
  • That sure does sound like an Insulin problem. But, it also sounds to me like a Thyroid problem. Have you had your TSH, T3, T4 tested? Sometimes even if it is slightly out of range it can cause extreme symptoms, which a lot of doctors won't give credit to.Good luck. I feel your pain; I'm in the same situation!yeah, i've had the whole thyroid bunch tested. i didn't know it was that hard to interpret the result though. how much is "slightly", if u know?also, any thoughts, anyone, on how to go about checking the insulin thing? i've had blood glucose tested and as far as i know it was normal.thanks!, /nikl
    Anonymous 42789 Replies Flag this Response
  • your symptoms are indicative of Chronic Fatigue Syndrome. Nausea fatigue and the taste change are very common with this. Look into information on CFS or google Myalgic Encephalomyelitis
    Anonymous 42789 Replies Flag this Response
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  • your symptoms are indicative of Chronic Fatigue Syndrome. Nausea fatigue and the taste change are very common with this. Look into information on CFS or google Myalgic Encephalomyelitishi,wow, really? is the sweet strange taste indicative of CFS?it's not like stuff i eat taste so much different, it's more that i have a episodes of a funny taste regardless.also, when u have CFS, don't u have to sleep and rest for a really long time after youve done something (long walks etc)? i just have to take a 10 minute break now and then...i feel muscle weakness all day long though.../nikl
    Anonymous 42789 Replies Flag this Response
  • nikl...don't let the name fool you. Your symptoms indicate it. especially the taste change. Google symptom checkersenter your symptomssee where it takes youreally
    Anonymous 42789 Replies Flag this Response
  • nikl...don't let the name fool you. Your symptoms indicate it. especially the taste change. Google symptom checkersenter your symptomssee where it takes youreallyyes you are right, as far as i can see. i have a lot of those symptoms.and i recently went to a stress rehab specialist, saying (after 4 hours of examination) that this WAS NOT a burnout kind of thing, i was to well of cognitively.anyway, isn't one of the major symptoms that it takes A LOT of time getting well after exercise/long walks and such things? for me it by no means takes the 24 hours i've heard about, i just need a nap once in a while.except for feeling equally fatigued all the time that is.what have you heard about this recovery time?/nikl
    Anonymous 42789 Replies Flag this Response
  • Please help me! I'm 30 years old, male 30, no history of diseases really. Now i'm really ill, and all the doctors say different things. JUST BEFORE I had two minor „blackouts“ last summer. Both times while walking stairs during long distance walks, both times without eating that much. After drinking and sleeping it went away pretty quickly. At that time a weird kind of smell appeared in my mouth, and i've had it since. It's just getting worse, sort of sweet, butterish, like it tastes when u have a cold. IT ALL GETS SERIOUS Now, Dec 30 attack three comes. I'm carrying heavy boxes and suddenly i get a wild nausea, start sweating and have to sit down. I went a sleep for the rest of the day. After that my life has been ***l. # my hands and neck are SHAKING after activity, usually even when i wake up # i feel constantly SEA SICK, even more so when moving/riding cars etc. (its cool when i lay down). Nausea increases from activity. # severe muscle fatigue # peep sounds in my nose (for 5 months!!!) # cracking stiff neck and pain, to the point that sometimes i can hardly move it. # HANDS get cold when lifting them for like 2 minutes # i'm extremely HUNGRY, eat like 6 times a day, and whenever i fail to eat i get sweaty, nervous, pale and totally helpless. # sound sensitive with a horrible shaking in the ear # i'm NOT sleep-tired (i sleep 9 hours a day, never during the days) OLD PROBLEMS i've had some difficulties health wise over the last 10 years # i've had recurring chest discomfort when breathing in for almost 10 years (like 10 times a year) # i've had muscle pain in the back and neck, worsening when resting. Nausea and „bad stomach“ for the first 2 hours a day. # if i sit down in a bad position for like 20 minutes i get terrible pains. # i've therefore been tested for morbus bechtrews (negative) and reumatic diseases (neg). # i've been mysteriously tired in the morning+afternoon, but very awake in the evening # hypocondriac or not, i've always felt there's somethings systemically wrong with me. DIAGNOSIS i've seen a whole lot of doctors and specialists in 5 months. They all say different things. # one says lyme's. I tested negative in the standard test. # one says stress. Thing is i'm not stressed, not depressed. I DID work a lot during 3 months fall of 2006 but that was for THREE months. I'm usually a slacker taking 12 weeks vacation during the summer and things like that. # third one says mercury poisioning # fourth says it's a mystery, cant help you # last one says post-viral fatigue. Excuse me for the long post, just thought i'd tell as much as i can. Can anyone please help me? What doctors/alternative medicine guy is right??? what should i do? My house doctors claims it's stress (because of all the normal blood tests etc) so i've started doing yoga, drinking anti stress-tea and seeing a psychologist (we have nothing to talk about except for daily events and movies). Please help me! I'm getting tired of this mystery. Best /niklHave you seen a ENT doctor to rule out any sinus or ear, nose or throat disorders. You can have a bad taste in your mouth from post nasal drip. They can run a CT of your sinus cavity and see what is going on. Also do you have any teeth with root canals. Ever had your wisdom teeth taken out. Hope this helps.
    Anonymous 42789 Replies Flag this Response
  • Have you seen a ENT doctor to rule out any sinus or ear, nose or throat disorders. You can have a bad taste in your mouth from post nasal drip. They can run a CT of your sinus cavity and see what is going on. Also do you have any teeth with root canals. Ever had your wisdom teeth taken out. Hope this helps.yes, i saw an ENT doctor a month ago. he said i did have a troubled area in my throat, no bacterial infection though.also, yes i have root canals, yes i've had wisdom teeth taken out (1), and yes i've had recurrent sinus infections the last 10 years.i'm going to to a sinus xray in a couple of day.what about the root/wisdom problems you mention?best /nikl
    Anonymous 42789 Replies Flag this Response
  • Have you seen a ENT doctor to rule out any sinus or ear, nose or throat disorders. You can have a bad taste in your mouth from post nasal drip. They can run a CT of your sinus cavity and see what is going on. Also do you have any teeth with root canals. Ever had your wisdom teeth taken out. Hope this helps.yes, i saw an ENT doctor a month ago. he said i did have a troubled area in my throat, no bacterial infection though.also, yes i have root canals, yes i've had wisdom teeth taken out (1), and yes i've had recurrent sinus infections the last 10 years.i'm going to to a sinus xray in a couple of day.what about the root/wisdom problems you mention?best /nikl
    Anonymous 42789 Replies Flag this Response
  • Have you seen a ENT doctor to rule out any sinus or ear, nose or throat disorders. You can have a bad taste in your mouth from post nasal drip. They can run a CT of your sinus cavity and see what is going on. Also do you have any teeth with root canals. Ever had your wisdom teeth taken out. Hope this helps.Speaking of which!i just got back from my 2nd visit to this ENT doctor.i turned out i tested positive for.... TWAR (Chlamydia pneumoniae)normal antibody test value is 40, i had almost 300.i don't know much about TWAR, but i've heard from some specialists that the (can) give CFS like symptoms.does anyone know anything about TWAR and its symptoms/treatments?i was ordered a 4 week special antibiotic treatment.best /nikl
    Anonymous 42789 Replies Flag this Response
  • research Clamydia Pneumoniae in relation to Chronic Fatigue Syndrome. You will find more than just CP mimiking symptoms of CFS. Many CFS patients may also test positive for syphillis, clamydia, HH6 and many others like Lyme, Lupus, EBV and others.Have you doctor confirm or refute CFS as a diagnosisIt will save you a lot of time and energy. MC
    Anonymous 42789 Replies Flag this Response
  • research Clamydia Pneumoniae in relation to Chronic Fatigue Syndrome. You will find more than just CP mimiking symptoms of CFS. Many CFS patients may also test positive for syphillis, clamydia, HH6 and many others like Lyme, Lupus, EBV and others.Have you doctor confirm or refute CFS as a diagnosisIt will save you a lot of time and energy. MCi see, thanks for the information.so what does that mean?if you get rid of the CPn virus, with the right sort of (combo) anti-biotics,are you saying you still wont be well?also, cfs as a diagnosis seems to be very much up to which doctor u have.1 doctor has suggested cfs, 4 have refuted it. they say i'm not "tired enough". (and that's true, i'm not that tired.)is that correct about CFS though? do you have to be VERY tired?thanks,/nikl
    Anonymous 42789 Replies Flag this Response
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