I have been looking for an answer for years. I have been diagnosed IBS, but it does not seem right. First, I am usually perfectly regular (1/day)and can still be miserable. There is not any real pain, crampy or otherwise, and the symptoms are caused, not relieved, by moving my bowels.
Soon after BM, nausea and bloating (w/distension) begin. These can be very bad. I can also 'swoon', feels like a drop in BP, and be very weak, fatigued, cold, dizzy and mental fog. In general, PM is better than AM, just because the longer the time after the BM, the better I feel. I can go 3-4 days (w 1 BM/day)sometimes and feel basically good w/ little gastro symptoms at all, then suddenly (after BM will start it) be bad. If I have more than 1 BM/day, I will feel bad for sure.If I should miss my BM a day, I will feel good.
I have had many tests- colonoscopy, endoscopy, blood work(parasites,H Pylori, occult blood, liver function, more) , ekg, barium swallow, allergy tests and more. Endo showed something DR thought was Barrett's, did biopsy, but came back negative. He put me on PPIs. (never have heartburn) Sometimes they helped for a while, but seem to end up making me tend toward diarea, and therefore I feel worse than without them and I quit. Another gastroDR saw my endo pics and said it looked like 'irratation'. These confusing results are the only results I have from so many tests.
Had a homeopathic type DR say I need liver detox, that BM action causes reflux back into upper GI due to bad liver function. He wanted me to order meds from an online place that would not tell me what they were, but were prepared to take about 2 hundred bucks. DR was hard to understand and a little wierd, but some people swear by him. I feel a clean and detox might be of some value, but sometimes I feel good, so I am so confused.
Can anybody make sense of these symptoms? Got any clues? I can rarely find any similar cases to compare to after extensive searches for years.
Thanks, Pete, new guy
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