Discussions By Condition: I cannot get a diagnosis.

Natural light (sunlight) makes me tired

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Anonymous
  • January 4, 2010
  • 09:28 AM

I've tried to explain this problem to a doctor but she didn't believe me. Sunlight makes me sleepy. When I am in a place with natural lighting I am very tired, I can't focus, I have trouble keeping my eyes open, I'm disoriented, my mind is foggy, I have every symptom of severe fatigue. When I move into a room with little or no natural light, my mind clears and I wake up. I am alert and focused at night or in moderate artficial lighting. Strong fluorescent or full spectrum lights cause the sleepiness as well, but not as severely as sunlight. Even if I have had a full night's sleep and have only been awake for an hour or two, I can fall asleep in a sunny room. This doesn't happen in a dark or artificially lit room.

I know this isn't caused by sleep deprivation, depression, caffeine or drug withdrawal, or any of the normal causes of fatigue because I am only affected in sunlight, never in dark or artificial light. As soon as I walk into a sunny room I get sleepy and disoriented, but when I go back into a dark or artificially lit room I wake up again. My fatigue is being caused by sunlight - what I need to know is what could be behind this and if there's any treatment.

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  • I've tried to explain this problem to a doctor but she didn't believe me. Sunlight makes me sleepy. When I am in a place with natural lighting I am very tired, I can't focus, I have trouble keeping my eyes open, I'm disoriented, my mind is foggy, I have every symptom of severe fatigue. When I move into a room with little or no natural light, my mind clears and I wake up. I am alert and focused at night or in moderate artficial lighting. Strong fluorescent or full spectrum lights cause the sleepiness as well, but not as severely as sunlight. Even if I have had a full night's sleep and have only been awake for an hour or two, I can fall asleep in a sunny room. This doesn't happen in a dark or artificially lit room.I know this isn't caused by sleep deprivation, depression, caffeine or drug withdrawal, or any of the normal causes of fatigue because I am only affected in sunlight, never in dark or artificial light. As soon as I walk into a sunny room I get sleepy and disoriented, but when I go back into a dark or artificially lit room I wake up again. My fatigue is being caused by sunlight - what I need to know is what could be behind this and if there's any treatment.I get the same thing! I cant go out till the day is almost over, if i want to be able to some degree enjoy it. If i go out earlier i cant function, and i wont recover till the next day or 2!
    Anonymous 42789 Replies
    • August 16, 2010
    • 04:21 AM
    • 0
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  • I think there was a television series about people with this condition.Does your skin change in anyway when you go into the sun, ie appear sparkly
    Anonymous 42789 Replies
    • August 16, 2010
    • 02:33 PM
    • 1
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  • You have extreme photophobia and need to be examined by an opthalmologist to determine if you need treatment for something serious with your eyes.
    Monsterlove 2921 Replies
    • August 16, 2010
    • 07:17 PM
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  • I get the same thing! I cant go out till the day is almost over, if i want to be able to some degree enjoy it. If i go out earlier i cant function, and i wont recover till the next day or 2!Thank you to both of you. People seem to disregard this as being a symptom. This is one of my most frustrating symptoms. It also takes me a day or two to recover. I have barely left the house at all in the last 6 months. I also have extreme heat sensitivity, spasms and pain in my eyes that have effected my vision, burning prickly feeling in my skin, chronic diareha, my teeth are falling out, unbearable back/neck/head pain, and I fall a lot now. I get confused often. I am not sad, and I don't "freak out" about things that are not a big deal. Bad doctors are a big deal. I do physical therapy exercises most everyday. I eat a mostly all organic diet and take vitamins. I brush twice a day with a very soft bristle brush and floss three times a week. I am not on any medication or drugs of any kind. My feet and hands fall asleep at least 5 times a day. I have no idea what is wrong with me and my doctor does not care.
    Anonymous 42789 Replies
    • August 16, 2010
    • 07:19 PM
    • 0
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  • Thank you to both of you. People seem to disregard this as being a symptom. This is one of my most frustrating symptoms. It also takes me a day or two to recover. I have barely left the house at all in the last 6 months. I also have extreme heat sensitivity, spasms and pain in my eyes that have effected my vision, burning prickly feeling in my skin, chronic diareha, my teeth are falling out, unbearable back/neck/head pain, and I fall a lot now. I get confused often. I am not sad, and I don't "freak out" about things that are not a big deal. Bad doctors are a big deal. I do physical therapy exercises most everyday. I eat a mostly all organic diet and take vitamins. I brush twice a day with a very soft bristle brush and floss three times a week. I am not on any medication or drugs of any kind. My feet and hands fall asleep at least 5 times a day. I have no idea what is wrong with me and my doctor does not care. hi unregistered...i guess you are in a country where you are stuck with the same doctor (if you keep going to doctors till you find one who pays attention to your symptoms). There are conditions in which the sun can affect one and trigger off symptoms.. autoimmune conditions. Offhand thou i cant think of the names of the ones i've heard about in the past.. umm one is Systemic Mastocytosis, sun can trigger it off but your case doesnt appear at all like the one person i know has this (as that is an allergic autoimmune response), so i think it's something else. There is another autoimmune condition .. it starts with a "P" which sun triggers off but i cant remember the symptoms either. These sun triggering conditions are rare and ones most doctors will miss diagnosing due to lack of knowledge on them. These illnesses do cause tiredness in response to sun. Keep hunting for the name of what you have got.
    taniaaust1 2267 Replies
    • August 17, 2010
    • 04:42 AM
    • 0
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  • I just found the name of one of the other conditions in which the sun can cause issues in. Porphyria (ive no idea what symptoms it causes so anyone here with problems will have to find that out themselves). It can cause burning skin like one poster mentioned thou. http://www.drinkdeeplyanddream.com/realvampire/porphyria-info.html
    taniaaust1 2267 Replies
    • August 17, 2010
    • 04:52 AM
    • 0
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  • Your a Vampire... fang banger
    Anonymous 1 Replies Flag this Response
  • omg.. im not the only one! i never understand how all the other people dont feel the same way. like no one i ever meet ever said they felt the same way. i always thought im kinda crazy for it and try to ignore it... but its kinda difficult when you feel like fainting and get moody and irritated and drowsy etc. i never feel that way at night or when the sun is down. its always when its bright sunny and lots of people around.. it makes me feel so awful
    Anonymous 1 Replies Flag this Response
  • You haven't received a reply for 4 years... And you know what? I'm experiencing the same exact thing you do. :(
    Anonymous 1 Replies
    • October 16, 2014
    • 00:23 PM
    • 0
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  • This seems like extreme photophobia, it maybe caused due to neurological effects of Chronic Fatigue Syndrome. There's a doctor at Stanford University, Infectious Disease by the name of Dr. Montoya who is familiar with CFS.
    Anonymous 1 Replies
    • November 10, 2015
    • 08:20 AM
    • 0
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  • Me too! Sunlight makes me very sleepy. So does light that mimics it. It is so wonderful to discover I'm not alone. Doctors keep shrugging it off. I do best in the morning and evening on cloudy days, or at night. I really wish doctors would take this seriously. It is a struggle to manage my life, especially in summer. I spend most of my day headachey and sleepy. I do agree with some of the suggestions here about there being an autoimmune link. I do have "polyendocrine syndrome" - I have a laundry list of autoimmune active, remission, and subclincial-but-monitoring conditions - myasthenia gravis, diabetes, polycystic ovarian syndrome, arthritis, and monitoring for possible Cushings and Hashimoto's. I thought perhaps this was a part of it, but the response from medical professionals has been stares and shrugs.
    Anonymous 1 Replies Flag this Response
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  • My Rheumatologist years ago asked me if the sun made me tired. I said not really and he said people with blonde hair, fair skin with either low or high c3 or c4 blood test results can have this and since I fit all the criteria he was wondering if I felt tired in the sun. Don't recall if he gave me a name for it
    Anonymous 1 Replies Flag this Response
  • I have this same problem, I got actual sun stroke twice in my life, once in California and once in Arizona, as you can imagine Arizona was ***l for me. I moved to Washington and it's been much better but during the summers when the suns the brightest I get the same thing. I just gone out to walk the dog and was out for like 5 minutes I get super light headed and dizzy on the verge of passing out. I come inside it takes a few moments of drowsiness then I start feeling better. But I hate the sunlight been dealing with this my whole life and never knew it was an actual problem, but as I get older it seems to have gotten worst. To the point of not going out to do anything until sunset. I now do groceries at midnight in the 24 hour Winco nearby.
    Anonymous 1 Replies Flag this Response
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