Discussions By Condition: I cannot get a diagnosis.

Mystery virus lasting 4 months now..

Posted In: I cannot get a diagnosis. 25 Replies
  • Posted By: Anonymous
  • May 24, 2007
  • 05:51 AM

I have had the most unlikely illness that began in February. I had been having severe diarreah and then it was as though I had a shock type of episode. This occured after a lot of stress and I was having an I 123, iodine uptake tesy done for thyroid nodule... I then became so ill.. I had a burning sensation then cold chill sensation all at once. Ran a low temp. I then was overall fatigued and was in pain from head to toe, literally. Wierd pain and twitches in my arms also began then, pain in my calves, dark sunken in eyes, eyes hurt, had blurred vision, chest and lung pain, liver pain, kidney pain(not able to drink any caffine) could hardley eat, lost about 15 pounds in two weeks!

Here it is 4 mo. later... Symptoms are not as severe as begining. This is what is going on now- I have had heart palpitations very frequently, tingling in my arms, bee sting pain on legs arm and neck, strange pain in shoulder and tired all the time. I as well have had a lot of stomache upset and dizziness. Ears poping, TMJ pain also!
So many odd symptoms.
I had always been healthy prior. I had thyroid checked by two specialists and all is fine and not causing this.
One of three kids are having this all happened so is my Mom and two friends, as well as two of my Mom's friends have had some symptoms too, not as severe.
I believe this is a virus.
I showed EPV (mono) in system from past... Never had before. I know it is in the same virus as shingles and chicken pocks, ***k sackie and I had all three. The shingles/ chicken pocks were severe, when I was 19- had both ! Odd, it even caused an elleous (MSP?) It shut down my bowls, and liver- I wondered if this virus is similar? Or if this had anything to do with!? Knowing some of those viruses can cause permenat nerve ending damage!
The type of neurological pain I am enduring comes and goes!
Most symptoms disappear only to return!
Any help will be much appreciated!
Thanks!

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25 Replies:

  • Dear Jet...please look around this forum with titled threads containing your similar symptoms(there are many, including my own) there are many on this site with same/similar symptoms nodular thyroid is also a consideration with this illness ME/CFS- you can google symptom checkersenter symptomsthat's what I did and how I found the info Good Luck and be well...mommy cat
    mommy cat 1654 Replies Flag this Response
  • I know people all over have these symtpoms, but if there are a lot of people in a concentrated area, MAYBE we could get more attention to this mystery virus. I have had a scarily similar experience, and I can see it spreading around too, very scary. I've been like this for almost 2 years, and I've noticed it flares with people, very frequently..I for example only have a couple good days at a time, maybe a handful of moderate days and then bad days that seem endless. Once I went about a month feeling about a 3 out of 10, typically I'm a 5-8. I use numbers to explain to my boyfriend how bad the virus is bothering me on any certain day. He suffers mildly..some people are less affected I suppose. In an case, What State, near which major city do you live????? Maybe you can e-mail others close to you, and if there are enough people the health dept can be contacted. I for one do not want to be sick for the rest of my life. I'm young, I want to have children, I'm not healthy enough, this stinks to high heaven, what in the ***l is it????Mommycat, I know you are big on ME, but have you considered this could be something different or worse? Radiation poisening, water or food contamination, biological/chemical/viral warfare, or some not yet discovered yet virus??? I think it's ok to mention ME, but you may be scaring people off when there may be something legitamely going on here that needs to be brought to the health/government administrations, and CFS and ME are vague and uncurabem this could be something entirley different, so, please, where are you from? and if anyone else out there feels a sickness they have not ever experienced, start telling Dr's and others...
    Anonymous 42789 Replies Flag this Response
  • I am certain that this illness is not from my thyroid situation. One doc mentioned CFS... I think that diagnosis is the best they could come up with. I am not buying that.I really am interisted in what is the cause of this sickness. I do believe it is viral in origin.I also believe that it is transmittable. I assume this since there are so many others around me that have becomeill w/ such similar symptoms. I live in Kentucky.I have been in touch w/ another guy who has suffered like this for four years and he is from Oklahoma. Others in the UK even! I am really begining to believe that this may have something to do with the zoster virus.... that deals w/ viral diseases like shingles, chicken pox, cox sackie, EPV mono, CMV, chlamidia/ yeast infections and jock itch and more. I think this since I, my son, and Mom have had small bumps that itch on the hands... Son has jock itch and serious rash on legs lasting since Feb. and 4 yr. old daughter has been slightly ill not as severe, but has had recurrent yeast type infections..I know cox sackie is more often a child hood illness but, I actually had it when I was 20 and my kids contracted in day care. I mentioned at the age of 19 I contracted the shingles and chicken pox all at once RARE, yes.. I was so ill then and had some organs shut down. I contracted from a geriatric patient whom they were uncertain what she had for several weeks.. The EPV is similar in classification. I wondered if this is how they found mono in my system. As I said, I never had mono and had rarely been signifigantly ill until two winters ago I had pneumonia and pluresey. I have had so many more colds and a weakened imune system for the past two years leading up to this. My son who is 13 has not been as ill as my 11 year old. My 4 year old has been much more ill that the 13 year old.The boys both has chicken pox @ ages 2&3.Daughter was vaccinated for the virus.My husband has had a few bad days and some fatigue and malaise.Others like my Mom has been very effected.Friends and even children close to my family now have some eerie symptoms like the heart plapitations and tingling in arms/ hands!I go for MRI next week. See a Nuerologist in two weeks.Hope to find some answers soon!I hate to think I AM CAUSING OTHERS TO BE ILL!I try to keep my spirits up and strength.I know I am fortunate that I have nothing worse than I do. I am thankful it is not a death sentance or cancer. It is just so unfair my kids mom and friends are now all having terrible ailments!I don't know where to go from here. I hope the Neoro can help somehow.There has to be an answer out there!I will keep searching.Thank God I have great health insurance!
    Anonymous 42789 Replies Flag this Response
  • Have you looked into anemia or diabetes? These things can cause an increase in hearrate, fatigue, muscle pains, etc. I doubt you have either, but it's definiately a possibility, especially given how common diabetes is, and the range of symptoms.
    samssf 9 Replies Flag this Response
  • Have you read "Contagious joint pain thread?there is info regarding this that you speak ofit does seem that waymany in my area are experiencing strange things tooradiation?virus?still wondering...
    Anonymous 42789 Replies Flag this Response
  • The amount of radiation in an I-123 uptake is small and is excreted from the body. I thought maybe you experienced an iodine allergy. Did you have your "shock" during or right after your exam?
    rad-skw 1605 Replies Flag this Response
  • If you are really convinced it is viral, there are specific natural things to use for it. Since all the "regular" docs can't get it, how about the use of a natural health pro ? I know on this boar that the ab ove is a radical idea, but hey, don't know until you try.
    Anonymous 42789 Replies Flag this Response
  • I think you may be having geopathic stress due to the New Madrid fault, see http://en.wikipedia.org/wiki/New_Madrid_Earthquake .. I regret there may be a massive earthquake fairly soon. I'm not sure FEMA &Co. can afford to be honest about it .. And I hope that those who say all this are deluded.
    Curly Stooge 319 Replies Flag this Response
  • Your doc said CFS and you don't buy it...why not?
    Anonymous 42789 Replies Flag this Response
  • If one is already ill, radiation only weakens them, no?
    Anonymous 42789 Replies Flag this Response
  • I think you may be having geopathic stress due to the New Madrid fault, see http://en.wikipedia.org/wiki/New_Madrid_Earthquake .. I regret there may be a massive earthquake fairly soon. I'm not sure FEMA &Co. can afford to be honest about it .. And I hope that those who say all this are deluded.What's the frequency, Kenneth?
    Anonymous 42789 Replies Flag this Response
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  • I wanted to add that the doc has been concerned w/ the tingling and pins and needle sensation I keep having. Often I will feel like I was stung on the leg or that cold or hot water has been poured on my leg in spots... Had a MRI today. They did the scan then returned after they were done and said they wanted to do contrast. I hope there is no problem there! I do not know how all this ties in to the other things that have occured. Even my doc that said CFS is not really satisfied w/ that being the cause.I am not chronically fatigued. I become that way some. Lately it has been MUCH better. It seems to come in waves. I will have the heart palpitations a couple days, then the tingling of arm or in finger and hands. Then I will get the over all tired and run down feeling. I also keep having aches in my jaw, teeth. It is a cycle that seems to nearly end only to knock me down again! I do believe this is more than the average ailment. It is not only I who has had this. I am glad that it is not cancer or anything fetal!I just want my life back. My son is doing better. He has had a few bad recurrences though is improving !One other thing I will add is that I keep having peeling hands! I wondered if it is a fungal thing??My son has had a rash for past four months and is now fading, treated w/ Zeasorb anti-fungal.. doc did not know what to do, apt for derm in two weeks, now he has peeling feet!I believe this alll has something to do w/ it! I asked the doc if the radiation would havve caused me to have the shock.. said NO!It was one and a half weeks from the I 123 until all the other things began! Thanks for all the help and feed back!But, CURLY STOOGE- no I do not think it has to do w/ an earthquake, nice assumption though!
    jetjet77 6 Replies Flag this Response
  • PLEAE DONT DISREGARD THIS You sound like you are intolerant to monosodium glutamate which is in nearly all of the food we eat that is packaged. If you do your research on this you WILL find your answer. Here are some of the things i have learnt about the symptoms you have described which i have now been cured from."IT COMES IN WAVES" - i noticed this aswell and now know that this is a classic characteristic of a food related intolerance because the substance level accumulates, and drops as it is dealt with by your liver. The varying amount of MSG in the food you are eating is what is causing these waves, but be aware that the MSG is absorbed in the later stages of digestion and therefore there is a lag between what you eaT AND WHAT YOU FEEL. If you are at a low point in the accumulation cycle then you might not notice much because you are below your threshold. Lets say one day you have some takeout for lunch, then say some taco and salsa for tea. you will raise your level. The next day you might eat something high in msg like say a hot dog. You will trip your switch but not until the next day and the food correlation will not be as easy to make. MANY people who say they have tried elemination diets fail because of this reason.WHY YOUR SKIN IS AFFECTED - there is free glutamate salts in the chemicals added to soaps, body washes and shampoos. THIS IS WHY your skin is effected in this way. Go and discuss this with these people:http://www.msgmyth.com/discus/messages/320/472.html?1152316604YOUR RELATIVES ARE AFFECTED - because you intolerance is part of your genetic makeup. My son had attention deficit and rashes that we never got diagnosed when he was an infant. My daughter has head aches. My youngest daughter wakes up in the morning some times with a swollen eye. Since i have been diagnosed i can now do the correlation between the food they have eaten. MY brother has IBS, my sister has given much of her adult life to migraines. please dont do what i did and spend many years asking your doctor for more tests before you test the advice i am giving you.MSG is not an allergen it is a toxin. You feel so run down because your liver is constantly trying to detoxify your blood. Doctors will try and send you for an allergy test for this but as i said its a toxin not an allergen.A common misconception is that MSG is only used in chinese or asian cooking. This is far from the case. the following flavour enhancers just to name a few are what are giving you your greif and if you remove thes you will notice improvement within a bout 1 week. MSG effects your endocrine system. PLEASE do your own research on this you will find a good amount of information at msgmyth.com. here is the list of items you need to avoid. Just to give you an indication when i was diagnosed with this I went to my pantry and out of 60 items there were only 5 that did not have any of this stuff in it:MSG, Gelatin, Calcium Caseinate, Monosodium glutamate, Hydrolyzed Vegetable Protein (HVP), Textured Protein, Monopotassium glutamate ,Hydrolyzed Plant Protein (HPP), Yeast Extract, Glutamate, Autolyzed Plant Protein, Yeast food or nutrient, Glutamic Acid, Sodium Caseinate, Autolyzed Yeast YOU ARE GOING TO BECOME A CHEF, MY FRIEND. Good luck and i am back here to help you and anyone else tomorrow. I am sure this is your problem.
    Anonymous 42789 Replies Flag this Response
  • HiI contracted a nasty mystery virus which began as a sore throat (but did not clear up), and then spread, organ by organ, around my body.I now have all the symptoms of chronic fatigue syndrome (deep fatigue, short term memory problems, depression, plus many more). These all began as a result of this virus.For anyone interested in reading about this rather awful mystery virus does, please see here:http://chronicsorethroat.wordpress.comI am amazed that such a blow to health can be caused simply by a sore throat respiratory virus, one that you easy pick up, and which is easy spread.I myself was badly hit by this virus. Others that also caught it did better than me (not such a heavy blow), but still had very noticeable drop in energy, etc.
    Anonymous 42789 Replies Flag this Response
  • Have you read "Contagious joint pain thread?there is info regarding this that you speak ofit does seem that waymany in my area are experiencing strange things tooradiation?virus?still wondering...could it have anything to do with chemtrails by chance...if unsure look them up you may have seen them or see them all the time and not even realize what it is that u are actually looking at...look up in the sky after you search on the word "chemtrails"
    Anonymous 42789 Replies Flag this Response
  • For anyone who does not know what chemtrails are, I highly suggest watching some videos by Clifford Carnicom. This is real just like Lyme, CFS, Fibromyalgia, Gulf War Illness, mycoplasma and ureaplasma infections and even Morgellon's disease. mycoplasma http://www.whale.to/m/scott7.html#IV_-_COVERT_TESTING_OF_OTHER_DISEASE_AGENTS_ There is a whole lot of info out there on all of these topics and I highly recommend that you all read and learn. GHWB is not going to come on the TV and tell you that everyone has mycoplasma infections, that they are spraying metals and chemicals along with parasites, fungus, bacteria, viruses, molds ect from airplanes or that they have created the first synthetic(nano-technology) biological weapon for which no natural immunity exists. It's called Morgellon's. Any of you that are experiencing painful lesions on the skin that ooze amber colored or clear gel-like fluid, feel stinging, biting, pinching sensations, have strange "hairs" growing out of different places or are finding things in your skin that just don't belong there....chances are, you have Morgellon's disease. Here's info from the Mayo clinic on Morgellon's... just showing that it's real. http://www.mayoclinic.com/health/morgellons-disease/SN00043 The good news is that you are not alone.The bad news is that the CDC/NIH are dragging their heels in investigating it because they already know exactly what it is, who made it, who put it here and why.The other good news is that there are forums set up on the web and docs, researchers, scientists, microbiologists and patients are working on it as well. http://lymebusters.proboards39.com/index.cgi?board=rash Here's just one. Seems many with Morgellon's also have Lyme. I had CFS and Fibro which I have been told is brother and sister Lyme. Welcome to the matrix Neo. stay well and stay informed. mommy cat
    mommy cat 1654 Replies Flag this Response
  • interesting
    Anonymous 42789 Replies Flag this Response
  • thanks.. yes, all very interesting. mycoplasma causing all of our new and emerging dis-eases. Plum Island chemtrails Morgellon's all connected. all making us ill. stay well and stay informed mommy cat
    mommy cat 1654 Replies Flag this Response
  • Please contact me if possible as I have the same symptoms including fever for the last 13 days I also live in KY.:confused:
    bestwon 1 Replies Flag this Response
  • I have had the most unlikely illness that began in February. I had been having severe diarreah and then it was as though I had a shock type of episode. This occured after a lot of stress and I was having an I 123, iodine uptake tesy done for thyroid nodule... I then became so ill.. I had a burning sensation then cold chill sensation all at once. Ran a low temp. I then was overall fatigued and was in pain from head to toe, literally. Wierd pain and twitches in my arms also began then, pain in my calves, dark sunken in eyes, eyes hurt, had blurred vision, chest and lung pain, liver pain, kidney pain(not able to drink any caffine) could hardley eat, lost about 15 pounds in two weeks! Here it is 4 mo. later... Symptoms are not as severe as begining. This is what is going on now- I have had heart palpitations very frequently, tingling in my arms, bee sting pain on legs arm and neck, strange pain in shoulder and tired all the time. I as well have had a lot of stomache upset and dizziness. Ears poping, TMJ pain also!So many odd symptoms. I had always been healthy prior. I had thyroid checked by two specialists and all is fine and not causing this. One of three kids are having this all happened so is my Mom and two friends, as well as two of my Mom's friends have had some symptoms too, not as severe. I believe this is a virus. I showed EPV (mono) in system from past... Never had before. I know it is in the same virus as shingles and chicken pocks, ***k sackie and I had all three. The shingles/ chicken pocks were severe, when I was 19- had both ! Odd, it even caused an elleous (MSP?) It shut down my bowls, and liver- I wondered if this virus is similar? Or if this had anything to do with!? Knowing some of those viruses can cause permenat nerve ending damage!The type of neurological pain I am enduring comes and goes!Most symptoms disappear only to return!Any help will be much appreciated!Thanks! hey Jet, just a quick thought, have you been on any medication for long periods of time e.g anti-depressants, anti-biotics (amoxyicillin)? best advice is to have tests done for it, i'd even get scans done to, MRI or CT.
    MEDICALNUT101 3 Replies Flag this Response
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