Discussions By Condition: I cannot get a diagnosis.

mystery illness ,5 yr. old daughter with cronic sinus,kidney and ear infections

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: tnmom1974
  • December 10, 2008
  • 09:17 PM

SOMEONE OUT THERE HAS TO KNOW SOMETHING.....PLEASE
My 5 yr. old daughter has recurrent sinus, kidney and ear infections.
This has been going on since May 2008. It is the same everytime we go to the hospital.
white blood cell count is anywhere from 17,500 to 21,000.
urine culture always negative(no UTI)
fever 104.5
sinus infection
double ear infection
severe kidney infection
bronchitis (this last time , this is a new symptom)

Doctors solutions???
shot in each leg of antibiotics
back the next day for more shots
10 day round of antibiotics
go home and call us if she gets worse
within weeks of being off the antibiotics ALL SYMPTOMS return
We go back to the hospital (or doctors if open) for all the same tests ,same results, same treatments

In May she was diagnosed with mycoplasma infection. This was the first time all these symptoms started. 5 doctors later she was finally tested for mycoplasma.
I am wondering if there is a link to mycoplasma and all these recrrent infections that all happen at the same time.
here are some of the tests done

IGG,IGA,IGM,IGE(elevated ige)
allergy test (negative)
ch50
4 kinds of titers
countless cbc's
x-ray on sinus cavity2x's( 1 before and 1 after 3 weeks of antibiotics)
ultrasound and reflux test on kidneys

Basically if she is not on antibiotics she is very sick within weeks.No doctor can figure this out.
ANYONE out there have you seen, heard of this before?
My son is 20ms. old he also got the mycoplasma infections. He has NO PROBLEMS. Not one issue.
please help

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8 Replies:

  • Try here: http://www.aaaai.org/aadmc/ate/category.asp?cat=10358
    aquila 1263 Replies
    • December 11, 2008
    • 03:23 PM
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  • Thank you for the link to the website, but itt is for doctors only to pose questions to other doctors. I will keep looking and keep praying that someone has seen this before.
    tnmom1974 5 Replies
    • December 11, 2008
    • 06:21 PM
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  • Actually, the web site link I sent is a pretty good list of conditions associated with elevated IgE. Yes, it was written by a doctor for another doctor. But if *you* look at it again, you will know what your doctor is thinking about, and if you print it out and bring it with you to your next appointment, you can ask your doctor what has been thought about already about your child. If you're really lucky, it may perhaps point out some possibilities s/he may not have thought about yet. Best wishes.
    aquila 1263 Replies
    • December 11, 2008
    • 06:48 PM
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  • Thank you for responding. My daughter was bit by a tick a few years ago. On her head behind her ear. These symptoms seem to start in May, 2 years later. I do not know much about Lyme disease. But I will look into it. I have her in for blood work tonight for a second round of immunoglobin blood work and an appointment with a urologist on Monday. Thank you again.
    tnmom1974 5 Replies
    • December 12, 2008
    • 10:43 PM
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  • tnmom: my daughter had constant upper respiratory infections and ear infections when she was about 2 - 3 years old. Here's a suggestion that may work for you - it did for me. Get her off ALL DAIRY products! Dairy products create excess mucous production EVEN if your child is NOT allergic to dairy - dairy is still BAD for children! No dairy - get it ALL out of her diet - no ice cream, no cheeses, no cow's milk, no butter - nothing that has any hint of dairy. You will even need to check packets of food to be sure there is no dry milk or powdered milk in them. There are hidden milk products in many processed and packaged foods (e.g. donuts, cakes, pies, pastries, etc.) It worked for my little girl! All her problems cleared up!
    Anonymous 42789 Replies
    • December 13, 2008
    • 06:36 PM
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  • I had ear infections all the time when i was little, and still had them when i was 25 but not as much. I had to wear a winter hat in the summer as a child whenever it was windy outside or i would get an ear infection, and the cause for me was an overgrowth of candida. It can spread to the kidneys and everywhere so please please make sure that she does not have a candida overgrowth. It can cause all of these problems when it spreads in the body, and many more. There is a really great tv-show that you can watch online about fungal infections. Please watch at least a couple of shows. The link is here: http://www.knowthecause.com/Shows/TodaysShowNowStreaming/tabid/113/Default.aspx You can also write to them and ask them what they think. Candida emits over 100 poisons that lowers the immune system and doctors are not trained to spot candida. Please keep her head really high when she sleeps when she has colds, almost sitting. This prevents sometimes, and tell the doctors to be extremely careful when looking in her ears with the device with a light on that they use to peek with. It hurts extremely much, it is still the worst pain i have ever felt. Staying off of milk is also a very good tip since it causes the body to produce lots of mucous to protect itself from it. You can see this really much if you feed a child with a cold milk and she / he will get a really slimy caugh. Please write to me if you have questions. I discovered the reason just a few months ago and am treating my infection right now. Best Wishes, Sandra
    Angellore 13 Replies
    • December 14, 2008
    • 09:43 PM
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  • I will look into that. We took her to the urologist yesterday. Kidneys look good. Then spent the rest of the day at Children's Hospital getting blood work done. He suggested to see a infectious disease doctor next. I will make that appointment after we get the results of her titers from the allergist.
    tnmom1974 5 Replies
    • December 16, 2008
    • 09:21 PM
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  • I'm glad to hear that you will look into it. These are two good informational pages about candida. http://www.qfac.com/detox/candida_salvia_test.htmlhttp://www.thefinchleyclinic.co.uk/nojavascript/products/pdf.documents/Conquering_Candida.htmhttp://www.docgeorge.com/Candida.htmlI really recommend reading these pages and educating yourself! When i asked my doctor if she could help me, she just said that i could not have an overgrowth if i did not have a comprimised immune system, and that she had no way of testing if i had an overgrowth or not. Most doctors really have no education about this problem, so make sure you check which way they test her for it and look it up; is it a good way to spot it or not? There is a really easy test that you can do for her at home, it just requires a glass of water. You can find it in the first of the links above. Make sure to do it first thing in the morning, before she has lots of time swallowing. And it might not be nesessary to cover all of the surface like that test says, i usually just cover a bit but i still get strong results from it. It is not completely sure that it will show results if she has an overgrowth, but if she gets a positive result in the test, then she definately has an overgrowth. It is only when there is too much of the yeast that it grows these "roots". Please let me know how it turns out, and just write me if you have questions about anything.Merry Christmas btw.. only one week to go.. =)
    Angellore 13 Replies
    • December 17, 2008
    • 01:14 AM
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