Discussions By Condition: I cannot get a diagnosis.

mystery illness

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: jenmorgan
  • March 29, 2009
  • 11:38 PM

I have been struggling with a mystery illness for almost five years.
My first symptoms started after returning from a short term trip to rural Honduras in 2004.
My First Symptoms were- Diarrhea, Chronic Fatigue,Nausea, Vertigo. I went to the Doctors and was tested for parasites/ giardia- and nothing came up.
I was then referred to a GI Specialist- told I had IBS.

After a few months, my symptoms seemed to subside somewhat, so I went back to Honduras where I then spent the next three years. In the first year I developed new symptoms and started alternating between a distended stomach/ bloating/ soft stools...
Being told I probably had parasites, I started taking regular cycles of parasite med's. (Tinidazole)

Gradually more symptoms started- Irregular menstrual cycles/ yellowness of the eyes (not sure if this was related)/mucus stools/

I returned to the states and took myself off of all dairy and gluten...
I eventually started having dairy again, but have remained off of gluten.

Still more symptoms have developed in the past two years- I have mucus and excessive sputum reflux. Regurgitation after eating. "Epsiodes" not related to any specific foods that I can tell where it is difficult to swallow- even my own spit or talk during these episodes. Last 5-8 hours each time.
Other symptoms that have developed are vertigo
Sensitivity to Light- Nausea
Bone Aches
Kidney Aches
Pressure under Sternum

I have tried some homeopathic medicine
Doctors test Liver Function/ Celiac- all results normal
I recently was tested for Hep B (for which I had no vaccine)
and HIV- both results negative.

Currently- Little to no gluten consumption/ try to do the "Master Cleanse" detox every 3-4 months..

Any thoughts or ideas? My symptoms seem to be getting worse and I have a general feeling of being "ill" all the time. I honestly cant remember the last day that I felt 100%...

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11 Replies:

  • Although i am not a medical professional, i went through a year of sympton treating doctors and $35,000. I was told it was my galbladder, my pancreas, i had every known test known at the time, and finally went to an ALTERNATIVE medical doctor, and within 5 minutes found out what was affecting my health. I had cavities within the gum linings of my teeth that were eating away at the nerve endings to the different parts of my body. I had 5 oral surgeries and several teeth pulled and have fully recovered. Before having this done, i had lost 33 pounds in a month, was eating dry cheerios and bananas with water. that was my diet for several weeks. i still am lactose intolerant but other than that am healthy. I am not saying this is the cure all for what is ailing you, but it's worth a try and may save your life. Muscle testing and teeth and gum testing are awesome ways to see where the problem lies, and when you are able to see an Alternative Medical Specialist, they will know where to look. Good Luck, i hope this helps.
    Anonymous 42789 Replies Flag this Response
  • first of all i would like you to clear a few pointsyour ageyour dietry habbits?your stress levels?when and where are you symptomatic most?have yo tested esr? if yes what was the report?have you undergone endoscopy/ colonoscopy/sigmoidoscopy?
    ashishkumarrastogi 14 Replies Flag this Response
  • Have you aked the doctors for more testing of the bowel, as above post :endoscopy/ colonscopyhttp://kona.kontera.com/javascript/lib/imgs/grey_loader.gif/ sigmoidoscopy and maybe even Camera capsule. Also might be worth having some allergy testing done, allergies can pop up out of no where after eating the same foods for years, so just a thought. I hope you find the cause Sammyhttp://www.undiagnosedillness.org
    Anonymous 42789 Replies Flag this Response
  • Try mixed connective tissue diseasecure research "antibiotic protocol"good look
    sue kershaw 5 Replies Flag this Response
  • Thanks to all who are posting, I welcome any insight.To answer some of the questions that were asked:I am 26 yrs old- these symptoms started when I was 21I have a healthy lifestyle- I eat mostly natural foods- few preservatives- no gluten- My stress level is normal... I have a pretty laid back personality and though some times my job CAN be stressful, I have learned to deal with life as it comes and know that tomorrow will look brighter.I do not particularly notice a trend in my symptoms as far as being triggered by certain foods- except that sometimes eating meat is extremely difficult- I will have those "episodes" of regurgitation/ difficulty swallowing/ talking (etc) for hours after eating meats- especially when they are dry.I do not live close to a cell tower that I am aware of- but will have to look further into that.I HAVE had allergy tests performed- I showed NO allergies to anything on the tests...Hope that helps for some of you all-
    jenmorgan 3 Replies Flag this Response
  • Thanks to all who are posting, I welcome any insight.To answer some of the questions that were asked:I am 26 yrs old- these symptoms started when I was 21I have a healthy lifestyle- I eat mostly natural foods- few preservatives- no gluten- My stress level is normal... I have a pretty laid back personality and though some times my job CAN be stressful, I have learned to deal with life as it comes and know that tomorrow will look brighter.I do not particularly notice a trend in my symptoms as far as being triggered by certain foods- except that sometimes eating meat is extremely difficult- I will have those "episodes" of regurgitation/ difficulty swallowing/ talking (etc) for hours after eating meats- especially when they are dry.I do not live close to a cell tower that I am aware of- but will have to look further into that.I HAVE had allergy tests performed- I showed NO allergies to anything on the tests...Hope that helps for some of you all-no endoscopy???
    ashishkumarrastogi 14 Replies Flag this Response
  • Check out pancreatic issues. They can fit your symptoms. Your doc may need to do an ultrasound of your abdomen. I'm not sure exactly what you have (although pancreatitis is likely, IMO) but I would be the jaundice is a BIG clue.
    Harmonium 322 Replies Flag this Response
  • Please research MIXED CONNECTIVE TISSUE DISEASE and ANTIBIOTIC PROTOCOL for cure. Good luck Sue Kershaw
    sue kershaw 5 Replies Flag this Response
  • No- no endoscopy/ colonoscopy/ ...etc.I have not had health insurance for the past few years and therefore have not been as extensive in my search for a cure as I could have been. However, in the past year, my symptoms have gotten more severe and occurred with regularity- I am searching for health insurance now, and then will set up an appt. to get the various tests performed.Any ideas as to good health insurance for those who have none, and only have limited income?
    jenmorgan 3 Replies Flag this Response
  • No- never had an endoscopy or any other test of the sort... only blood work.If I had to prioritize one of those tests- which do you think I should get done?I have been without health insurance for years now- making it so that I have not searched for answers as extensively as what I could have. However, in the past year I have seen my symptoms worsen and grow in intensity and duration... I am in the process now of looking for insurance. Any thoughts as to good health insurance plans for those with little income?
    jenmorgan 3 Replies Flag this Response
  • Let me tell you about yourself. You have some form of teeth irregularities or have had since you have had your second set. One of your decendents-possibly Grandfather suffered exposure to "poisoned gas" and remained ill til they died of unknown illness OR they had all thier teeth removed and lived to a ripe old age.Could be 1st World War,Gulf war,Hiroshima or was a miner where there was an accident from which they managed to escape.Other family members could be Alchoholics,suffer from anorexia and could have died at an early age or had all thier teeth out.Any could have died with undiagnosed illness. But you will have a History of family having problem teeth. You are sometimes so tired that you have to sleep but its not a normal one,if you check whoever you were with you will find that 3 days later they have a virus/cold. Sometimes you are hyper active this is when a new virus hits you. You never ever have colds! Any help Regards
    sue kershaw 5 Replies Flag this Response
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