Discussions By Condition: I cannot get a diagnosis.

Mystery Diagnosis? Desperate for help!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: jiggs_star
  • August 24, 2009
  • 01:52 PM

I'm looking for answers... please help... I don't know what else to try! I am posting a list of my symptoms and when they started. I have all of them still and they are getting worse exponentially! Please send me any ideas you have.

Childhood


·Asthma
·Allergies to environment and foods
·Lethargic/slow-moving
·Frequent ear infections

Early Teens


·Heavy Painful Periods begin
·Fatigue
·Extreme Acne - dermatologist
·Frequent throat infections

Late Teens


·Granuloma Annulare on legs and feet
·Depression
·Fatigue gets worse
·Pain and Heaviness in Legs
·Difficulty Focusing on School
·Hair Loss
·Always cold
·Irritability
·Mood swings
·Diarrhea/constipation
·Waking unrefreshed
·Chronic infections and illness

Early Adult


·Heart rate skipping beats and speeding up – Holter Monitor Test
·Chin Whiskers
·Difficult to lose weight
·Dizziness
·Irritability to touch
·Eye floaters
·Eyes sensitive to light

Last 3-5 Years


·Asthma flare/ use of GERD pillow helps
·Allergies flare - peanuts, nuts, shellfish, soy, wheat, dairy, egg all removed
·Sensitivity to chemicals and fragrances
·Anxiety appears
·Panic Attacks/fight or flight response randomly kicking off 10 times a day
·Heavy legs and chest
·Difficulty swallowing – gi series
·Inflammation in throat – upper endoscopy
·Chest pain on left side
·Itchy extremities relieved by repeated scratching
·Forgetfulness and trouble remembering words and placement of articles
·Slurring of certain word combinations
·Placing objects in strange places i.e. pot in freezer instead of cupboard
·Nerves feel heightened sense – highly strung or on fire
·Back pain in lower back
·Mood swings are worse
·Obsessive compulsive tendencies
·Intense salt cravings
·Eye disorientation with certain movements
·Low sexual desire
·Dry eyes – can’t wear contacts anymore
·Extreme irritation
I keep having to pee all the time, especially at night. I also have sweats in my sleep.



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  • I'm looking for answers... please help... I don't know what else to try! I am posting a list of my symptoms and when they started. I have all of them still and they are getting worse exponentially! Please send me any ideas you have. Childhood ·Asthma ·Allergies to environment and foods ·Lethargic/slow-moving ·Frequent ear infections Early Teens ·Heavy Painful Periods begin ·Fatigue ·Extreme Acne - dermatologist ·Frequent throat infections Late Teens ·Granuloma Annulare on legs and feet ·Depression ·Fatigue gets worse ·Pain and Heaviness in Legs ·Difficulty Focusing on School ·Hair Loss ·Always cold ·Irritability ·Mood swings ·Diarrhea/constipation ·Waking unrefreshed ·Chronic infections and illness Early Adult ·Heart rate skipping beats and speeding up – Holter Monitor Test ·Chin Whiskers ·Difficult to lose weight ·Dizziness ·Irritability to touch ·Eye floaters ·Eyes sensitive to light Last 3-5 Years ·Asthma flare/ use of GERD pillow helps ·Allergies flare - peanuts, nuts, shellfish, soy, wheat, dairy, egg all removed ·Sensitivity to chemicals and fragrances ·Anxiety appears ·Panic Attacks/fight or flight response randomly kicking off 10 times a day ·Heavy legs and chest ·Difficulty swallowing – gi series ·Inflammation in throat – upper endoscopy ·Chest pain on left side ·Itchy extremities relieved by repeated scratching ·Forgetfulness and trouble remembering words and placement of articles ·Slurring of certain word combinations ·Placing objects in strange places i.e. pot in freezer instead of cupboard ·Nerves feel heightened sense – highly strung or on fire ·Back pain in lower back ·Mood swings are worse ·Obsessive compulsive tendencies ·Intense salt cravings ·Eye disorientation with certain movements ·Low sexual desire ·Dry eyes – can’t wear contacts anymore ·Extreme irritationI keep having to pee all the time, especially at night. I also have sweats in my sleep. Sounds like you may have more than just one thing going on.....You don't report your family history or any diagnostic testing you have gone through. I would take the timeline you just posted to a doctor and go body system by body system, ruling out things until a diagnosis can be found. Keep looking until you find a doctor who will take you seriously and not just dismiss you. You may need referrals but make sure you have one trusted general practitioner or internal medicine doctor coordinating and helping you to interpret all the testing and results. It is their job to help you, but you have to insist on advocating for yourself because your health is your responsibility. Don't be afraid to research your questions, ask ALL of them so you can feel confident that you are being heard, and remember that you "know" your body better than anyone else does.After a doctor's visit with complete physical examination with vitals and family history, I would suggest you have a Complete CBC/diff (Manual not automated) to check for anemia or blood dyscrasias/disorders. Also Chem 25 with TSH, T3, T4, HGH, LDH, female hormone panel, Liver Panel, and vitamin screen to check for any obvious metabolic/renal diseases (hyper/hypothyroidism; parathryoid disease, pituitary dysfunction, PCOS, diabetes) as well as any vitamin deficiency issues. Cardiac issues could be a source of your extreme fatigue so an ECG should be done to rule out any obvious problems. And if you are having repeated bouts of asthma exacerbations, a chest Xray or Ct may be necessary to rule out respiratory issues.Autoimmune deficiencies or autoantibodies may also be the source of the many complaints you have had over the years, especially because of the allergies/sensitivities/granuloma annulare diagnosis. Also sleep apnea/sleep disturbances/anxiety/depression or other brain chemical imbalance could be a partial factor. Another thought may be fibromyalgia/chronic fatigue syndrome/central somatization but I would hate to see someone classify you into that category without a complete and total elimination of other treatable diagnosis because they often "basketize" everything that is going on with you into that category after you get the diagnosis. Hope this helps. Blessings from someone who has been there....good luck!
    Anonymous 42789 Replies
    • August 25, 2009
    • 03:54 AM
    • 0
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