Discussions By Condition: I cannot get a diagnosis.

mysterious painful sores

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: skylark
  • May 3, 2008
  • 01:10 AM

I have been to three doctors and been tested for everything they could imagine, but they still don't know what it is.

Here are the symptoms:
1. red bumps along the hairline around the lower part of my vulva that are often inflamed and indistinguishable until the irritation dies down
2. begins as itchiness, progresses into the type of maddening discomfort/pain that one experiences with a bugbite that itches tremendously but you know that if you scratch it it will hurt. A lot.
3. during bad outbreaks the irritation gets to the point that I feel pinching as if pubic hairs are being plucked from a single bump with every step I take (it is so uncomfortable/ painful that I want to cry). This usually only happens when I have to walk a lot. Then the skin on the top of the bump turns white and dies. When the dead layer comes off the skin underneath is a raw red.
4. Currently reoccurs every few months (though doesn't always progress to symptom #3), generally right before or towards the end of my period.
5. Lasts from 1-3 weeks (usually only 1-2 unless it gets bad)

This has been going on for four years now. It was a lot worse when I first started getting outbreaks. Of course, I thought it was herpes, but I've had three tests now (including a blood test) and they all came back negative, along with tests for bacteria. The first outbreak occurred when I was in the Amazon, so there's the possibility that this may be something rare in the U.S.

Any help would be greatly tremendously appreciated.

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4 Replies:

  • could be herpes zoster (shingles). caused by the same virus that causes chicken pox...this is not like genital herpes! It is usually induced by stress and by being immunocompromised. It can occur anywhere on the body. I had a similar case under my arm...hurt like ***l!!
    Anonymous 42789 Replies Flag this Response
  • Sounds like Hidradenitis suppurativa - take a look at pix on yahoo - does it look anything like that?
    Anonymous 42789 Replies Flag this Response
  • Have you seen a copy of your blood work? Sounds exactly like herpes 2. You may be getting false negatives. Go get a copy of that blood work and report what all three of them say. What you need to do is get one cultured the next time you break out. You should also get a syphilis test. The best and most accurate blood test is the Western Blot but the blood needs to be transported to Washington safely:http://www.racoon.com/herpes/WB_test.htm
    Monsterlove 2921 Replies Flag this Response
  • I have been to three doctors and been tested for everything they could imagine, but they still don't know what it is.Here are the symptoms:1. red bumps along the hairline around the lower part of my vulva that are often inflamed and indistinguishable until the irritation dies down2. begins as itchiness, progresses into the type of maddening discomfort/pain that one experiences with a bugbite that itches tremendously but you know that if you scratch it it will hurt. A lot. 3. during bad outbreaks the irritation gets to the point that I feel pinching as if pubic hairs are being plucked from a single bump with every step I take (it is so uncomfortable/ painful that I want to cry). This usually only happens when I have to walk a lot. Then the skin on the top of the bump turns white and dies. When the dead layer comes off the skin underneath is a raw red. 4. Currently reoccurs every few months (though doesn't always progress to symptom #3), generally right before or towards the end of my period. 5. Lasts from 1-3 weeks (usually only 1-2 unless it gets bad)This has been going on for four years now. It was a lot worse when I first started getting outbreaks. Of course, I thought it was herpes, but I've had three tests now (including a blood test) and they all came back negative, along with tests for bacteria. The first outbreak occurred when I was in the Amazon, so there's the possibility that this may be something rare in the U.S. Any help would be greatly tremendously appreciated.This is very close to what I have; Hurts like ***l to pee. The clinic says you have herpes, the doctor says no you don't. Waiting on culture from clinic and bloodwork from doc, symptoms have started going away now. When I get my results I will post them, FYI I have been diagnosed with a UTI try having them test for that. I have started taking Red Marine algae, has strong anti-viral properties in it.
    Anonymous 42789 Replies
    • January 29, 2010
    • 00:35 AM
    • 0
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