Discussions By Condition: I cannot get a diagnosis.

Mysterious muscle swelling

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By:
  • April 26, 2007
  • 05:45 AM

Since two years ago I began this journey with both feet swollen to twice the normal size, extremely painful and they turned a purplish color. That finally resolved, but later I began having my wrists and forarms just suddenly swell so much that I couldn't move my fingers or wrists for the tendon pain. It always begins suddenly--I'll just be doing something and notice that a place really hurts and next find that it is grossly swollen and dark red, also there is a lot of inflamation and heat. Sometimes my hands will swell so bad that I cannot use them or even try to make a light fist. The swelling seems to affect the muscles and tendons and the swelling will be so much that if I press my fingers into the swollen places it leaves deep indentations. All the Docs have said when I go in to show them is, Gee, that must be painful! It's so painful that I can hardly stand the pain and this last time both hands swelled then it moved to my wrists and up into my forearms. It had just begun to go away when I looked down about an hour ago because it had started hurting really bad and there was this grossly swollen area just above my left thumb and now my right thumb is swollen and the swelling is already going into my right forearm again. I usually have a brief period of not having the swelling and pain, but this time I'm getting no respit at all and it hurts so much! I have Common variable immune defeciency, Hashimoto's thyroiditis, Lupus anti-coagulant with thrombosis to my superior vena cava and left and right sub-clavian veins. I had part of my left lung removed because of an opportunistic fungal infection had caused two lesions close to my heart. My Pulmonary Doc and surgeon thought it was cancer, but thankfully it wasn't. I would just like an answer to what is causing me so much pain and I am beginning to lose function in the areas affected when they swell. I wonder if I am going to totally lose the ability to use my hands and when my feet swell it is affecting my ability to walk. I have to wear the Croc type shoes to just wear shoes. I can't walk in anything else. I also have neuropathy in my feet that is not causes by diabetes. Thanks for listening. I am losing hope that I will ever be pain free again.

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