Wow, I have just stumbled across this incredible forum in search of clues for what might be going on in my particular case.
Essentially, whenever I move or increase my heart rate, my legs feel like they are swelling up because they can't circulate the blood properly. This brings on an intense pressure that is absolutely nighmare-ish. The only position that does not bring on this feeling is sitting down at rest with my feet up. Once the pressure subsides, a deep intense ache plus tingling and burning sets in, worse at particular spots in both calves.
Here is some background, and the full explanation of the many other connected symptoms...I had shin splints last year off and on, but only when running. At the end of last December, I got a very deep massage done to my calves. This is the turning point - after this everything changed and has continued to progress at a constant rate. I immediately could no longer do any type of activity without bring on leg pain. Over the past 11 months, the threshold of activity that will bring on this bizarre swelling/pressure has been reduced to even using my arms while sitting with my feet elevated. The tingling/burning/tightness sensation has gradually migrated up my legs, through my spine, to my neck, arms and hands, head, face and eyes, although to a much lesser degree than in my calves. I have a few small red dots that look like pin *****s at various locations on my skin, but more on my legs. My eyes are always moderately blood shot, in fact I can feel a twitch from time to time when it happens.
I have given many modes of treatment a fair chance, including physio, acupuncture, naturopathic remedies, and nerve and blood pressure medication. So far all imagineable blood tests, MRI's, CT scans, compartment pressure test, and 2 EMG's, have all come back normal so the doctors are united in this not being a serious concern and something I will have to learn to live with, and clearly do not understand the symptoms I describe as they are 'not clinically relevant' according to them.
The only real explanation offered came from my GP, who thinks it is some sort of regional pain disorder. This does not explain the circulation problems, so my leading researched guess is vascular neuritis, ie the nerves are acting up and not operating the blood vessels properly, which in turn bothers the nerves...a positive feedback downward spiral!
Any thoughts, wisdom, similiar experiences, tests to request?
Thanks in advance, be strong people it is the only way to make it :) .