Hi My name is Dave. I am 41yrs old from the Vancouver, BC area. 6'8 260lbs. Here is my story among the countless others who suffer with misdiagnosis. I apologize for the lengthy post.
Its been 7 years now of countless doctors, therapists, alternative practitioners and to this day no one has an answer or even a clue for that matter. I have had back pain that started in low back7 years ago and has progressively worsened through the years to encompass my entire spine from buttocks to cervical. This in turn contributes to many symptoms across many areas of the body but primarily upper body.
The primary most dominant symptom is Constant pain in my entire spinal column that radiats outward. It is always there but varys in intensity brought on by motion and activity. Any activity, including just cleaning, laundry, cooking, stretching, walking around.
Needless to say my life consists of struggling work (office work now, came off as field technican) and then going home to lie down. The only real effective relief comes from lying down at least 6 hours. I am forced to work because disability doesn not pay enough to cover alimony and my basic life necessities.
Secondary and significant symptoms include in order of severity
Numbing/tingling and pain attacks in arms hands fingers.
Fatigue and feeling Lathargic
Occasional skin pulsating up and down for about a minute
Balance Issues particularly when eyes closed
Ringing in ears
Pain attacks in legs and feet
Tests Done- All are negative for anything significant
Bone Scan with contrast
Approx 40 blood tests
Spinal tap (Lumbar Puncture)
Igenex Certified Complete Package LYME test.
Homeopath,Osteopath, Naturopath (and every path in between)
Pharmaceutical Drugs ( I hate these)
I have seen and or currently seeing a neurologist, Rhemuatologist, Orthapedic Dr.
All of these Professionals are dumbfounded. All therapies have not provided any relief.
Fibro Myalgia has even been dismissed 3 times from 3 different doctors
This is not in my head as some have suggested. If could trade this pain and life for one painfree i would in a second. I dont remember what a day without pain is like. I am 40 years old. I would rather be outside, playing golf, and doing normal things.
Other than the debilitating pain and constant fatigue, I am healthy meaning that I never get sick. Never get the flu , and rarely have a cough and cold. I take in countless vitamins and minerals and supplements. Tried detox treatments, and herbal remedies.
At this point, I would rather be told what i have with terminal illness than not knowing. At least knowing what you have you can fight and target it.
Thanks for your time in reading this post.