Discussions By Condition: I cannot get a diagnosis.

My son has muscle weakness. Tourettes?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: pigsmiling
  • May 28, 2010
  • 03:03 PM

My son has muscle weakness (really, he is a weakling), and it is hard for him to gain weight. He is on the very low percentile.

I'll start from when I say it started. When he was 2 years old he got very sick. Vomiting, lethargy, loss of appetite and loss of weight. This went on for 2 weeks. In which I brought him to the doctor twice and was told it was just a virus going around. When he started feeling better is when I noticed the muscle weakness. Again the doctor told me it was from being ill. During the following years I continuely went back to the doctor in regards of it. To be told I was over reacting.

Needless to say he still is fighting with his muscle weakness. He is now 12 years old. I changed doctors 5 years ago.

He had a brain scan that was normal.

He was diagnosed with high anxiety and Tourettes Syndrome 4 years ago. (I don't agree with this one, he only experiences flailing of the arms and distortion of the face when he is excited.)

The doctor feels that the Tourettes is causing his problems, and has done nothing further.

He has been seeing a physical therapist 2x a week for the last 4 years. Not much improvement.

I have been told that his physical abilities ie. throwing, kicking, running, etc. are that of a 4 or 5 year old.

Can anyone give me some ideas to help my son?

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