Discussions By Condition: I cannot get a diagnosis.

My Sister Has Been Sick for 6 weeks

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: 4MySister
  • August 26, 2008
  • 00:44 PM

My sister has been very sick for 6 weeks now and no one can seem to tell us what is wrong. She cannot eat, she is very fatigued, sleeping hours a day and too tired to do any of her normal activities. She has had a constant low grade fever (100 to 102) for 6 weeks solid. She has night sweats, almost every night, and she has lost over 15 lbs, and she was too thin to start. She has no appetite and food makes her nauseous.

She has been to a GP, an Oncologist (she is a breast cancer survivor) and an Infectious Disease specialist and they have done many tests, ruling out many things, but unable to tell her what she has.

They tell her that her "SED rate", or "CED rate" (??) is very high, over 100, but we don't know what a normal "SED rate" would be. They told her that she is anemic, and her red blood count is low. They told her there is blood in her urine samples. They told her that there is a "thickening" in her lungs, and possible granulomas, which might be Sarcoidosis, or might be unrelated to her symptoms.... but still no diagnosis, and they just keep telling her to come back for more tests.

They have ruled out Lyme disease, Lupus, Lymphoma, Valley Fever (?), many other fevers that are viral and known in her area.

She is in a small town, and I almost think she should go to the nearest big City and go to a really good hospital's ER, but she says they would probably send her home without a diagnosis.

Does anyone have any input? I'm getting really scared as this goes on and she continues to lose weight and energy. She is fading away, and its really scaring us.

Thanks for any feedback!

Worried Sister

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5 Replies:

  • It's possible that the breast cancer was really sarcoidosis & she was misdiagnosed. Try here: http://www.ncbi.nlm.nih.gov/pubmed/17314619 It's also posible that this is a complication of breast cancer: http://www.chestjournal.org/cgi/content/abstract/89/5/762
    aquila 1263 Replies
    • August 28, 2008
    • 06:45 PM
    • 0
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  • Also: http://en.wikipedia.org/wiki/Sarcoidosis#Signs_and_symptomsand http://en.wikipedia.org/wiki/L%C3%B6fgren_syndrome
    dizzy lizzie 192 Replies
    • August 28, 2008
    • 08:30 PM
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  • Thank you, Aquila and Lizzie, She is still losing weight, still unable to eat, and still having night sweats, though she had 2 good nights w/o sweats. The Infectious Disease Dr found nothing. I don't know if she should take the first opinion, of her Oncologist, that it is nothing related to her breast cancer? Or if it could be something they should check out further just in case? We're bewildered and worried, and they keep sending her home telling her to drink Ensure and some other meal replacements, which she can't even swallow. Thanks for any advice. I will follow up with her.
    4MySister 2 Replies
    • August 29, 2008
    • 11:41 PM
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  • This sounds very serious - ensure is not enough to help her...I highly recommend getting referrals and going to a larger hospital for more testing. What was her treatment for the cancer? When did she finish her treatments and how long has she been cancer free? I am sorry for all you are going thru. I hope you get some answers soon. Best wishesDOM
    acuann 3080 Replies
    • August 30, 2008
    • 01:14 AM
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  • She has been cancer free for approx 5 yrs. She had surgery, but did not have chemo or radiation. I believe she was tested for Lyme disease but will let her know that the tests may not always give a true negative. I know the Infectious Disease specialist ran 3 sets of tests and told her they can't find anything. They asked her to come in again in 2 wks, after their annual vacation, but she is too sick to go on like this for 2 wks, in my opinion. She is going back to her GP to ask for help with the symptoms, and I have already suggested she go to the nearest City for a bigger hospital , and maybe she will do that next. Thank you all for your kindness and your suggsestions - Worried Little Sister
    4MySister 2 Replies
    • August 30, 2008
    • 00:15 PM
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