Discussions By Condition: I cannot get a diagnosis.

My pain is all in my head!

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: SLJones77
  • May 10, 2010
  • 09:00 PM

If I hear that ONE more time I'm going to scream!

7 years ago I had a massive pulmonary embolism. Was hospitalized and started on Coumadin and Lovenox. I continued to have EXTREME pain in my lung where the clot was.

In subsequent VQ scans, they found evidence of 3 additional clots that dissolved on their own.

Now, here's where the problems comes in. 7 years later, I'm still having pain. Somedays 10 out of 10 and most days 5 out of 10. I'm on a moderate amount of pain medication that helps on my normal days. However, when the pain increases SO bad, my pain medication doesn't cut it. This has caused me to visit the ER on numerous occasions. They always do a CT to rule out another emoboli and now their worried I'm going to get cancer because of the amt of scans I've had. In addition, because I'm not having more emboli's I'm being told by the docs that the pain is in my head and I have a "blemish" on my record as a drug seeker.

Today I am having a rough day. I'm in a lot of pain and the meds aren't touching it. I talked to my doctor and he wants me to go back to a psychologist (which I TOTALLY agree with). But, that doesn't help my pain now does it? Do I seriously have to live in this much pain? I honestly think its inhumane!

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