Discussions By Condition: I cannot get a diagnosis.

My next step is ???

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • June 12, 2010
  • 07:56 AM

This is my first time posting, hopefully I'm doing it right.

Less than a year ago, I was a runner, perfectly healthy. One day, I woke up with the left side of my head tingly. Blew it off as a pinched nerve, it was gone in two days. That weekend, I started having trouble with my bladder. Urgent care thought it was a UTI, but there was no infection. Suddenly, lymph nodes in weird places started to swell. I am still undertain if this was from the medication to treat the UTI I didn't have or not. Both sides of my neck and the back of my head swelled. Also the groin.
I was tested for momo. Negative. Blood work, low platelets caused from the medication.
Head tingled again, went to Neuro who did a MRI with scan. Ultra sound on bladder, showed nothing. MRI with contrast.. nothing. No lesions.
Left side of face went numb and my eyeball started feeling numb as well. Neuro wasn't doing a good job, so I went to a new one. He told me I had a pinched nerve and sent me on my way. Two days later, my right shoulder started to hurt and left side went numb. I went to my regular doctor who sent me to an MS specialist. He had me do an MRI on my spine and guess what??? NORMAL. He told me I may never find out what is wrong...

I started getting tremors all over my body. They flare up with stress
The right side of my tongue feels like it's going numb.
All of the sudden all my muscles feel weak as if I've been working out for hours, but I haven't. They are ache and sore. My joints hurt as well.
I have had a urodynamics test for my bladder and I'm still waiting for results to see if it's neuronic and related to all of this. (it's painful three weeks out of the month and I leak)
It's frustrating me, because I find it impossible to exercise.
The doctor didn't see lesions, so as of right now, I don't have MS.

I forgot to mention. My muscles "jump".. not in one area, but all over. It feels like there is a little man inside my skin trying to jump out. It's now and then, not all of the time. It's never in the same area. It can be in my leg or in my behind, shoulder or back... sometimes arm.

Has anyone else had these issues and what would be your next step? I'm a 34 year old female who has never had any health issues until a year ago. I'm a single mom trying to raise my son on my own, so yes.. I'm really freaked out. Thank you...

Reply Flag this Discussion

2 Replies:

  • What you're describing could possibly be a type of myelitis caused by a previously dormant herpes zoster virus. It is the same virus that causes chicken pox in kids, and practically everyone has it. Once you get over it the first time, the virus remains in your body usually hiding out in the spine, and can re-emerge at any time as an outbreak typically called shingles. Usually, this comes with an external manifestation, such as sores or rashes but it doesn't absolutely have to. Symptoms can vary widely and include musculoskeletal, neurological, and other manifestations depending on which nerves and muscles are affected by the virus. Typically symptoms worsen with stress, and can become quite painful and sometimes debilitating. The attacks are usually self-limiting and will resolve on their own, but consult your physician because treatment with particular antiviral medications can sometimes significantly reduce the severity of an outbreak.
    gregtfish 67 Replies Flag this Response
  • It could be an issue with B12.. i've seen some with similar symptoms who turned out that they had B12 deficiency (it can cause all kinds of weird neurological symptoms). If this is the case, the supplements you get at chemist may not be enough.. many need injections to treat or certain kinds of B vitamin (eg more active B formulas as some have trouble absorbing or with conversions or may have methylation issues so may need different Bs). (some who have had B12 deficiencies have had their test results dismissed as they were just in lower ranges but it turned out to be the issue so beware any B12 results which are at the lower end of normal. (I myself have found most doctors dont seem to know much about B12 esp when it comes to complex issues with it. i suggest to check out the following thread http://forums.wrongdiagnosis.com/showthread.php?t=9948
    taniaaust1 2267 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.