Discussions By Condition: I cannot get a diagnosis.

My Life Is A Living ***l.please Help.

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: GotHealth????
  • January 14, 2008
  • 05:19 AM

Up until I was 16 years old I never understood what bad health was.I always heard people say to someone going through a hard time "atleast you got your health" and I thought that didn't make sense.This person lost there job and your telling them atleast they have there health.EVERYONE HAS THERE HEALTH.Atleast thats what I thought back then.I've never been to a hospital
other then when I was born.I've had very good health all my life.Symptoms I have collected over the years that I still have with no diagnosis.
heat intolerance/musty body odor 97
Emotions amplified Fear,Anxiety,Nervousness 98
Brain fog unable to concentrate 98
body acne 99
Heart murmur/ 99
shortness of breath/chest pain 00
palpatations 00
incomplete evacuation/fecal bodyodor after bowel movement 01
Emotions prduced heavy sweating(anxiety,nervousness,excited) 01
chest discomfort after drinking alcohol the next day 01
alcohol intolerance dropped.Started to black out alot even when drinking as
little as 5 to 6 beers.02
Anxiety,nervousness,fear caused me to feel like I was going to have a bowel movemnt I had to fight it back. 03
lifting small objects (i.e a box with a laptop in it)for 5 mins made me sweat heavly and caused feces type body odor. 03
drinking alcohol caused musty bodyodor.04
feces body odor alternating with musty body odor.04
drinking alcohol caused feces body odor 05
ingesting food made me feel like I had to have a bowel movement right away.05
ingesting food no matter what it was caused feces body odor 06
Bowel movements not solid kind of watery and extremly foul smelling. 07

All of these symptoms are hitting me at the same time and I haven't been the same since I was 16.My social life is non-existant.I dodge my friends and have missed some of there weddings and child births.I get this feeling like I don't know them anymore whenever I'm around them.Its like my world stopped while everyone elses just kept going.My best friend confided in me last year that he was going to marry his girlfriend in a quiet ceremony just for close friends and immediate family members and I don't know if he did or not.I haven't spoken to him since last march.I don't realize how much time I've been not around my friends till they all start talking bout the things they have done and alot of things get brought up.Havent travled anywhere in forever.I'm almost 30 years old and I haven't had that expirence most early and mid 20 something people have.I have been going to doctors for like 9 years and they haven't told me a ***n thing.I've had chest x-rays,abdominal ct scans,stress tests for my murmur,thyroid tests,colonoscopy, and am/pm blood cortisol tests.The cortisol test is the only one that has came back abnormal.
My pm cortisol was 21.7.The doctor got the tests and never mentioned it.I came back to him after I discovered the result was abnormal and he told me I was okay.6 months later I had the test done again with a different doctor with the extact same result and he told me I was okay to.I'm running outta options.I feel like i'm going to die sometmes and I can't do anything about it.I haven't been happy in years.I CAN NOT GO ON LIKE THIS.I am so angry with how my life is going.Can anyone offer me any advice.Can you recommend doctors that give a ***n about there patients.I live in maryland if that helps.When the weather gets warmer my sweating and feces/musty body odor gets worse.I NEED HELP.

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17 Replies:

  • yorifuji okuno syndrome? note the heart murmur. Look up foul smelling stool.
    rad-skw 1605 Replies
    • January 15, 2008
    • 11:08 AM
    • 0
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  • Where are you in MD?....I can give you the name of an EXCELLENT GP who can refer you right where you need to be. Been with her for 5 years and she's been the absolute best in taking care of my health....
    beachboatfan 2 Replies
    • January 16, 2008
    • 08:00 AM
    • 0
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  • The way you react to alcohol makes me suspect Hodgkins Disease. Please get checked for it. http://www.nlm.nih.gov/medlineplus/hodgkinsdisease.html Do you have any lumps in your neck? You may want the cortisol checked by a endrocrinologist. That can explain your depression, too.
    Monsterlove 2921 Replies
    • January 16, 2008
    • 10:06 AM
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  • Thanks for the responses.Beach boat fan i'm in glen burnie md right nowbut i'll travel anywhere so I can get my health back on track.Monster love I never thought of hodekins.I'll try to also get that looked at.My pm cortisol levels (from the blood test) were out of range twice.Neither doctor said anything about it.They were 21.7 with a reference range of 13.7-16.7.Both times the results were the same and the tests were done 6 months apart.The first doctor was an endo.I haven't been able to get a 24 hour urine cortisol test because the doctors just told me I was okay and I shouldn't be upset that they didn't find anything.I suspect the problem I have has something to do with my cortisol levels being to high because of the way my emotions are being affected.I'm never calm and I get anxious,nervous very very easy.My anxiety and nervousness have disrupted my digestive tract.My bowel movements are very foul and not normal at all.I can never seem to have acomplete evacution and whateva doesn't exit the bowl starts to reek from my pores and my breath.I may have a pituary tumor because of the heat intolerance that I suffer from.I really want to get these tests done but its hard when the doctors act like complete *******s and ignore "what your feeling everyday".I might have to fork up some money and ordermy own tests from one of the online labs because right now there are no doctors willing to help me and my life has been on hold for a long time now.I can't even find a reason why I won't be able to go on this date with this girl.I haven't had an active dating life.I'm always hiding from the opposite sex when I sense they are attracted to me.My health problems are to much to deal with then I have the regular stresses in life that go along withit and then my cortisol level is already to high.This is to much to take.
    GotHealth???? 3 Replies
    • January 24, 2008
    • 05:27 AM
    • 0
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  • Don't give into your illnesses, don't let them claim you.Believe in ****s? pray,and don't let them control your life. -Body acne-right there with you, get in the sun, use a soap like dial that doesn't clog pores. Try some different products, trial and Error, DRINK LOTS OF WATER AND TAKE VITAMIN E.-Try getting a cullonic for that one problem. -Stay away from alcohol-Exercise-water will help with body odor, stay away from garlic and other bad foods.-Chest pains, look at supplements like vitamin E and other Herbal supplements for HEALTHY HEART, will say to maintain healthy heart on the label.-Eat right, take care of yourself inside and out, stay active
    vfemmes 9 Replies
    • February 7, 2008
    • 07:57 PM
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  • By your post it sounds as if you are suffering from anxiety and depression (stress and depression can affect cortisol levels!). Has your doctor put you onto medication for the anxiety and depression? Anxiety and depression will make other issues seem worse than they really are, so it's important that you are treated for the anxiety and depression and then take things from there. Also avoid alcohol and make sure you drink plenty of water. You could have a build up of toxins in your system causing body odour and hence that alcohol is only making things worst.
    taniaaust1 2267 Replies
    • February 8, 2008
    • 00:26 AM
    • 0
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  • These are the diseases which have foul-smelling stool. Cystic fibrosis Gluten-induced enteropathy ( sprue , celiac disease) Malabsorption Idiopathic steatorrhea (fatty stools with no known cause) Disaccharidase deficiency (insufficient amounts of the sugar-digesting enzymes) Short bowel syndrome Crohn's disease Ulcerative colitis Infectious colitis (colon infections) Chronic pancreatitis Celiac seems the most likely. Also depression is very common when celiac is undiagnosed.
    rad-skw 1605 Replies
    • February 8, 2008
    • 11:53 AM
    • 0
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  • Im not sure if you are this bad with the body smell.. but this may also be something to consider if it's very bad. If others are noticing your body odour and finding it offensive too, (I sympathise, I have horrid body odour in which others sometimes do comment on..so far, I havent been able to find out why but the smell in my case seems to be genetic thing).. anyway, if your sweat and everything is very bad, you could have something like Trimethylaminuria, it's not common thou and most doctors know nothing at all about this illness. This is also known as rotten fish syndrome but NOT ALL cases smell like rotting fish, some individuals have other horrid smells. "The syndrome often has very negative psychological effects on sufferers: social exclusion that leads to depression, low self esteem and anxiety. Dr Luis Sierrasesumaga, director of the Department of Paediatrics at the Clinic University of Navarra, North Spain, said: "The problem can be so serious that some patients can get to their teens without stepping out of their homes because of rejection. A number of victims choose jobs where they have to be on their own. Some smoke a lot to disguise the smell. Diet changes Trimethylaminuria is a metabolic illness where the liver cannot metabolise trimethylamine, a chemical produced by naturally occurring intestinal bacteria properly. It can be triggered by a kidney or liver infection or the excess intake of the chemical choline, which the body turns into trimethylamine. "
    taniaaust1 2267 Replies
    • February 9, 2008
    • 05:40 AM
    • 0
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  • Thanks for the replys.taniaaust1 i'm familiar with Trimethylaminuria.I've been on curezone and the msn bodyodor support forum for years.My odor seems to be linked with my anxiety and heat intolerance.It used to be a musty odor but since my anxiety got worse it affected my bowel and then it changed it to a fecal type of odor cause I wasn't able to empty out my bowel completely.I'm waiting on my insurance to get back so I can finish with my cortisol testing.I feel once my anxiety goes away everything else will to.I can't go on anymore like this.Life is leaving me behind.To many years have gone by me already.
    GotHealth???? 3 Replies
    • February 20, 2008
    • 04:40 AM
    • 0
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  • Check candida glabrata yeast.
    Anonymous 42789 Replies
    • February 27, 2008
    • 07:16 PM
    • 0
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  • "My odor seems to be linked with my anxiety and heat intolerance." One sweats more at those times and that may be why you are noticing the odor at those times. I actually when researching my own medical stuff in past couple of days.. came across an illness which produces a "MUSKY odor" like you've described. Unfortunately now I've forgotten what it was, I'll try to find it again as I know no one has mentioned it here yet. I too have just found out I abnormal cortisol. (That was ONE of my symptoms Ive been researching past few days).
    taniaaust1 2267 Replies Flag this Response
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  • addisons disease is the only thing i can think of that affects cortisol. please google it, read around then update on wether or not you think thats what you have
    LymeTime 65 Replies Flag this Response
  • sorry.. i just spent an hr.. going throu stuff i remembered I'd been throu in past few days..but couldnt find the thing i'd read. The illness which produced musk odour, I think from what i remember, was something metabolic.
    taniaaust1 2267 Replies Flag this Response
  • I had applied for health insurance but got an email that I was declined.The only thing i've ever been diagnosed with is Mitral valve prolapse and that isn't something that is deadly.I don't understand why they declined me.I had got insurance twice before this.I wanted to use the insurance to try and get further testing done on my cortisol.Hopefully Kaiser will accept me.The state insurance is way to much Its almost a car note.Theres this program that helps give health care to people with no insurance i'm going to investigate it on monday.Hopefully it can help me till I get my insurance.Thanks to everyone who took there time out reply.I'll research your suggestions and hopefully I can get on the right track.
    GotHealth???? 3 Replies Flag this Response
  • Hi,Have you found a good Endocronologist to test you for Addison's Disease?Try lots of water, a high potassium and high protein diet, and no alcohol. Good luck, let us know how you are.Teresa
    TeresaC 41 Replies Flag this Response
  • addisons disease is the only thing i can think of that affects cortisol. please google it, read around then update on wether or not you think thats what you have i wi would like to email lymetime i believe he can help me
    Anonymous 42789 Replies
    • December 16, 2008
    • 03:42 AM
    • 0
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  • addisons disease is the only thing i can think of that affects cortisol. please google it, read around then update on wether or not you think thats what you have i wi would like to email lymetime i believe he can help meits been 6 months 3 of which ive been living in my truck an havent seen my daughterwho is 4. i pay rent for a house thats killing memy email is sunyata1981@aol
    Anonymous 42789 Replies
    • December 16, 2008
    • 03:48 AM
    • 0
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