Discussions By Condition: I cannot get a diagnosis.

My doctors need a kick in the butt...Can't Get a Diagnosis.

Posted In: I cannot get a diagnosis. 26 Replies
  • Posted By: ShowJumper18
  • December 8, 2008
  • 08:21 PM

I'm 16 years old and have been having ongoing symptoms for about a year now. They started abdominally and I have recently began having other (possibly unrelated) symptoms as well. My doctors have yet to give me a diagnosis. Can anyone help?

These are my symptoms:

Naseua (90% of the time)
Dizziness
Fatigue
Constant Headache
Confusion/Disorientation
Weakness
Bruising easily
Heart palpatations
Sharp pain in the lower left of my stomach
Medications/Tests:

Blood tests for anemia, thyroid, blood sugar; all came back fine
EKG; haven't gotten results yet
Naproxen; no effect on the headaches
Hyosciamine/Protonix/Prevacid/AcipHex/etc. for the stomach pain; some relieved the pain but most had no effect (I have since discontinued the use of any type of medication for my stomach/pain happening less frequently but more painful when it does)
The doctors just can't seem to come up with a diagnosis. :( This is becoming increasingly difficult and frustrating for me. It's starting to affect my performance both in school and out, it's becoming hard for me to do my everyday activities. If anybody has an idea of what could be wrong, I would love to hear. Thank you for reading.

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26 Replies:

  • Get checked for celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm This site doesn't include all they symptoms possible with celiac disease. Headache is one of them.
    aquila 1263 Replies
    • December 8, 2008
    • 08:36 PM
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  • it sounds like you could have heavy medals and candida, mold and fungus in your blood stream. if you did a cleanse to get rid of all these toxins, you might be surprised on how much better you'd feel. if you want more info, just check out yeastinfectionadvisor.com their website is very helpful, has lots of information. hope it helps you. all the best!
    greaterhealth 2 Replies
    • December 8, 2008
    • 09:58 PM
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  • Get checked for celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm This site doesn't include all they symptoms possible with celiac disease. Headache is one of them. Thanks. My grandfather was diagnosed with Celiac, and they considered it to be a posibility with me but they never confirmed it.
    ShowJumper18 10 Replies
    • December 8, 2008
    • 10:04 PM
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  • My mom just informed me that they did a blood test for Celiac as well and it was negative. Thanks for the other ideas. I'll read those links.
    ShowJumper18 10 Replies
    • December 8, 2008
    • 11:14 PM
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  • How is your diet--be specific..do you eat junk food or drink pop or coffee?
    Monsterlove 2921 Replies
    • December 8, 2008
    • 11:59 PM
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  • research POTS syndrome / dysautomonia. It is hereditary and is mostly in females.Good LuckPam
    pamelasmc 82 Replies
    • December 9, 2008
    • 00:30 AM
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  • How is your diet--be specific..do you eat junk food or drink pop or coffee? No, I'm not big on junk food at all. I have some chocolate once and a while but not much else in the 'candy' category. I don't drink any soda at all. I'm an athlete and try to eat healthy. I drink lots of water, but I do have a soft spot for tea as well.I don't eat a lot of meat, but it's not cut out of my diet.Lots of fruits/veggies.I also eat quite a bit of pasta and soups.Yogurt is a favorite of mine.Really those are the staples of my diet. Since I've gotten sick my appetite has been suffering a bit.
    ShowJumper18 10 Replies
    • December 9, 2008
    • 02:06 AM
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  • I have another doctors appt. tomorrow. Does anybody else have suggestions? Are there certain tests or questions I should be asking about?
    ShowJumper18 10 Replies
    • December 10, 2008
    • 09:43 PM
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  • hi, i really suggest that you see an integrative doctor. they do different kind of testing and use natural alternatives. in my experience when doctors and their tests couldn't find anything the natural doctors always could. and plus the natural way is the best thing for us. hope you get to feeling your best soon!! to find an integrative doctor in your era: try: wellness.com/find/Integrative%20Doctor
    greaterhealth 2 Replies
    • December 11, 2008
    • 01:53 AM
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  • ask for a lymes disease test and make sure they give you the right one http://info.lymebook.com/matthewgoss.html SYMPTOM CHECKLISTThis is not meant to be used as a diagnostic scheme, but is provided to streamline the office interview. Note the format — complaints referable to specific organ systems are clustered to better display multisystem involvement. NAME_______________________________________DATE__________________ RISK PROFILE (PLEASE CHECK) Tick infested area ___ Frequent outdoor activities ___ Hiking ___ Fishing ___ Camping ___ Gardening ___ Hunting ___ Ticks noted on pets ___ Other household members with Lyme ___ Do you remember being bitten by a tick? No ___ Yes ___ when ________ Do you remember having the “bull's eye rash?” No ___ Yes ___ Any other rash? No ___ Yes ___ Have you had any of the following? CIRCLE ALL YES ANSWERS 1. Unexplained fevers, sweats, chills, or flushing2. Unexplained weight change (loss or gain — circle one) 3. Fatigue, tiredness, poor stamina4. Unexplained hair loss5. Swollen glands: list areas _______________________________________________6. Sore throat7. Testicular pain/pelvic pain8. Unexplained menstrual irregularity9. Unexplained milk production; breast pain10. Irritable bladder or bladder dysfunction11. Sexual dysfunction or loss of libido12. Upset stomach or abdominal pain13. Change in bowel function (constipation, diarrhea) 14. Chest pain or rib soreness15. Shortness of breath, cough16. Heart palpitations, pulse skips, heart block17. Any history of a heart murmur or valve prolapse? 18. Joint pain or swelling: list joints _________________________________________________19. Stiffness of the joints or back20. Muscle pain or cramps21. Twitching of the face or other muscles22. Headache23. Neck creaks and cracks, neck stiffness, neck pain24. Tingling, numbness, burning or stabbing sensations, shooting pains, skin hypersensitivity25. Facial paralysis (Bell's Palsy) 26. Eyes/Vision: double, blurry, increased floaters, light sensitivity27. Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity28. Increased motion sickness, vertigo, poor balance29. Lightheadedness, wooziness, unavoidable need to sit or lie down30. Tremor31. Confusion, difficulty in thinking32. Difficulty with concentration, reading33. Forgetfulness, poor short term memory, poor attention, problem absorbing new information34. Disorientation: getting lost, going to wrong places35. Difficulty with speech or writing; word or name block36. Mood swings, irritability, depression37. Disturbed sleep — too much, too little, fractionated, early awakening38. Exaggerated symptoms or worse hangover from alcohol
    PUNKYB33 7 Replies
    • December 11, 2008
    • 02:54 AM
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  • Try here: http://www.wrongdiagnosis.com/sym/easy_bruising.htm
    aquila 1263 Replies
    • December 11, 2008
    • 02:42 PM
    • 0
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  • Addison's Disease needs to be ruled out.Do you crave salt?If so,that's indicative of Addison's.:)
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 00:43 AM
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  • Addison's Disease needs to be ruled out.Do you crave salt?If so,that's indicative of Addison's.:) I do salt my food more heavily than most. I never considered it might be a symptom though.
    ShowJumper18 10 Replies
    • December 31, 2008
    • 01:41 AM
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  • Check your pulse while lying down, then again when you stand up. See if there is a 30 beat per minute or more difference.
    pamelasmc 82 Replies
    • December 31, 2008
    • 01:49 AM
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  • Check your pulse while lying down, then again when you stand up. See if there is a 30 beat per minute or more difference. Nope. I did it a few times and there was only a difference of about 15-20.
    ShowJumper18 10 Replies
    • December 31, 2008
    • 03:24 AM
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  • Then it looks as if we've uncovered another symptom,one that might save your life.Please keep me posted.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 00:53 PM
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  • Then it looks as if we've uncovered another symptom,one that might save your life.Please keep me posted. Care to explain what the symptom indicated to you? The 'might save your life' part was a little unsettling. :o
    ShowJumper18 10 Replies
    • December 31, 2008
    • 04:46 PM
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  • The salting of your food excessively is a symptom of Addison's Disease.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 06:08 PM
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  • I had alot of these same symptoms when I was your age and weirdly enough, by the time I was 18 years old, they finally resorted to "one last diagnoses" to check my gall bladder and lo and behold, I had SEVERAL gall stones and needed my gall bladder removed!! THIS IS NOT A COMMON DISEASE FOR A 16 YR OLD.!! My Doctor was shocked to discover that this was the problem, but, it was INDEED the problem! Your mom should INSIST that they run a test on your for gall bladder problems! They only discovered it, after having me drink this strawberry tasting, chalky textured, dye, that they watched go through my body, by an xray type thing. It found the problem immediately! I was sooo happy! Not at the thought of surgery, but becasue like you, I had been through every test under the sun for 2 years and nothing was ever found! I think they thought I was even 'CRAZY" at one point, because they put me on pych meds., all because they couldn't figure out what was wrong and so , of course there MUST NOT be a problem, right? :o( Anyhow, good luck sweetheart, I will pray for you and that they find your diagnosis soon. And, if does happen to mean surgery for something? Don't be scared, it is sooo worth having the prblem fixed and put behind you and really, it's not all that bad.Love and hugs,Lavida
    scotts_Babe 1 Replies
    • December 31, 2008
    • 07:18 PM
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  • Thank you all for your replies. I have still not gotten a diagnosis and the last doctor I saw wanted to send me to a psychologist. :rolleyes: She was saying that it could be stress/depression. I am 100% positive that this isn't the case, I'm a straight A student, an athlete, I have plans for my future, and I have a great life. No stress here! If anything, I'm less stressed now than I have been in a while (other than my being sick...that's a little bit of a downer.) However, I recently started having sharp pains in my ribcage. I first thought my bra may have been causing it but that doesn't seem to be the problem. Then, last night, I was watching a movie; sitting straight up in the chair, not putting any pressure/laying on my arm or anything, and I wanted to reach for my glass and couldn't move my arm. It was only my left arm, there was no pain or tingling sensations I simply couldn't move it. After a few minutes I was able to lift it up and hold it for a few seconds before it fell back down. This lasted for about 20 mins before I regained full use of the arm. I've been able to use it all day today, but it still feels weak in comparison to my right arm. Should I be worried about this?
    ShowJumper18 10 Replies
    • January 4, 2009
    • 01:42 AM
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