Discussions By Condition: I cannot get a diagnosis.

my doctor keeps blowing me off

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • May 16, 2008
  • 08:44 PM

and it's making me so mad!!!!

around last july, i got this red blotchy rash on my torso, and around the same time, i started having panic attacks and feeling generally sick. i was put on medicine (lexapro) because my doctor thought i had an anxiety disorder. as for the rash, he said it was rosatia. after 6 months, the medicine stopped working and the panic attacks resumed. i was then put on celexa and ended up in the ER 4 days later because my limbs would feel like they were on fire and then they would go numb and i couldn't breathe. about 2 months ago, the panic attacks stopped but i am still sick. i don't feel like myself at all and i get horrible migraines where i can't walk. i feel dizzy, nauscious, brain feels like it's in a vice constantly. it never goes away. from time to time i still get the episodes where my limbs (mostly my legs) feel like they're burning or tingle and then go numb, and i also sometimes i wake up in the middle of the night internally shaking (scary). i would always feel worse after eating so i went on a no gluten/sugars/wheat/anything with yeast diet (basically the candida diet) and i only eat fruits, veggies, some fish and chicken. i also take wheat grass, fish oil, vitamin c, multivitamin supplements. i have noticed little improvement. my doctor said i have "an acute panic disorder with a food phobia". i don't think so.

recently it dawned on me that i still have this dang rash after 10 months and that it's probably related to why i'm sick. i googled it and found out it was tinea versicolor - it's caused by a fungus that is already present in your body and is fairly common, but most people who have it are perfectly healthy. however, i read that if you are sick, it means your body has some serious issues with this fungus, and you probably have a hormonal or immune disorder.

i had just gone to my doctor today about a bladder infection and the first thing he said to me was "i see you're in today for something REAL!" and it made so angry i almost cried. and even though he looked at my rash and said it IS tinea versicolor, he said it has nothing to do with how i'm sick, which is not "real", apparently.

has anyone had this rash before who was sick, or knows what i should be tested for? i've been sick for all of this year so far, and have been too sick to work full-time and i really need to start working because my rent is going to skyrocket since one of my roommates flaked out.... PLEASE HELP and THANK YOU SO MUCH!:p

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10 Replies:

  • I have had that rash and I have to tell you, I have been experiencing headaches, blackouts, nausea, confusion and loss of memory on top of many other problems. My doctors don't believe me either, but now the places where I had the rash are white..They have lost all pigment. I know that the medicine they gave me to treat the rash (a body shampoo called ketoconazole) worked wonders on the rash. However they still have not figured out what is wrong. It has been two years and they still don't know. But like I said, they think I am exaggerating. One doctor actually told me I was crazy. I have had panic attacks and numbness and tingling in my fingers but that is it. I am going to see my NEW doctor on May 30th. I will tell you I have had an MRI, 4 EEG's, countless labs run and more and more they are telling me it is in my head. It sounds like we might be having something similar going on. I will write back if on the 30th they figure this out. Best of luck to you!
    NancyF515 2 Replies Flag this Response
  • "I see you're in today for something real"?? :eek: Go to a different doctor...I don't blame you for being frustated, and I do the same thing when I'm really mad too, so it's not unusual. And, nobody has a panic disorder caused by being afraid of food, that's just bs. You shouldn't have a rash or be sick this long; something is wrong and your doctor is a idiot! :mad: If somebody said that to me, I'd walk out of that clinic, and wouldn't go back. And don't feel bad, I have something that nobody believes I have, too, so I guess we're in the same boat. But don't give up finding out why you have this, no matter how hopeless it seems. I hope you find out what this is, and I hope you get better. Good luck.
    Anonymous 42789 Replies Flag this Response
  • thank you! best of luck to you as well!!if you find anything out from your new doctor please let me know!!!! i will be getting a second opinion this monday, and if that doctor finds anything i will be sure to let you know too :)
    Anonymous 42789 Replies Flag this Response
  • You would need the RX shampoo for the rash if it is Tinea; it's a six week program and you need to leave the shampoo on all over your body for ten minutes every other day, including your head. You need a dermatologist. Seems like you were mis-diagnosed which created anxiety. Your doctor is an **s; I've found there are a lot of nice female doctors out there. Try hypnosis for your anxiety:http://potentialsunlimited.com/index.cfm?resellerid=23&keywords=potentials%20unlimited&creative=1058023745&gclid=CK6lvsibrJMCFSQtagodsg_MoQ
    Monsterlove 2921 Replies Flag this Response
  • I have had that rash and I have to tell you, I have been experiencing headaches, blackouts, nausea, confusion and loss of memory on top of many other problems. My doctors don't believe me either, but now the places where I had the rash are white..They have lost all pigment. I know that the medicine they gave me to treat the rash (a body shampoo called ketoconazole) worked wonders on the rash. However they still have not figured out what is wrong. It has been two years and they still don't know. But like I said, they think I am exaggerating. One doctor actually told me I was crazy. I have had panic attacks and numbness and tingling in my fingers but that is it. I am going to see my NEW doctor on May 30th. I will tell you I have had an MRI, 4 EEG's, countless labs run and more and more they are telling me it is in my head. It sounds like we might be having something similar going on. I will write back if on the 30th they figure this out. Best of luck to you!The doctor said you were crazy? That is so outrageous! I don't blame you for going to a different doctor, I would too. And I've had something that said to me before too, I've been having all kinds of problems for 8 years, and went to doctor after doctor too, and I was seeing this one doctor about my problems, and I had all kinds of tests done; everything normal, and he told me not to think about it...luckily, I was referred to another doctor not too long after that, so I didn't have to go back to him, and that doctor was so nice, and caring; he wasn't a ***k like the other one was, and he always listened to everything I said, and never once told me not to think about it, or anything else rude like that, but I didn't get to go to him very long because he got transferred to another hospital a year later. But, I know how you feel; nobody believes I have anything wrong with me, either, and they also think it's all in my head since nothing ever shows up on tests...but I've never had anybody say it, though...they didn't have to, it was on their faces. Good luck with the new doctor, I hope you find out what's going on.
    Anonymous 42789 Replies Flag this Response
  • i agree that my doctor is an **s and i appreciate your advice, but my problem isn't anxiety-related. i don't feel stressed and i've always been laid-back. i believe that my having panic attacks was my body's reaction to something. i haven't even had an attack in a few months, i just feel sick and totally off. my doctor said i didn't need a dermatologist (great huh?) and gave me a prescription of this cream that he said would make the rash go away. when i gave the prescription to the pharmacy, they laughed and said it was selsun blue i needed. which i have heard works, i guess i'll just have to try it.
    Anonymous 42789 Replies Flag this Response
  • panic attacks can be caused by many different things.. from neurological issues .. to even chemical sensitivities. (One can often get chemical sensitivities if one is having "food intollerances" issues. Im not sure if food intollerances can cause panic attacks...but something like that wouldnt surprise me as I know they can cause many problems) (the rash thing depending on what it really is could be causing neuro issue eg panic attack). It will be interesting to see if you are right about what it is and if it goes away with the treatment which is supposed to work for the current rash diagnoses. Get yourself a decent doctor.. a doctor with your doctors attitude.. dont deserve patients.
    taniaaust1 2267 Replies Flag this Response
  • Maybe you should see an allergist and get all of the allergy testing done. I think the Bach Flowers Rescue remedy (found at health food stores) and hypnosis will still help a lot.
    Monsterlove 2921 Replies Flag this Response
  • I have had that rash and I have to tell you, I have been experiencing headaches, blackouts, nausea, confusion and loss of memory on top of many other problems. My doctors don't believe me either, but now the places where I had the rash are white..They have lost all pigment. I know that the medicine they gave me to treat the rash (a body shampoo called ketoconazole) worked wonders on the rash. However they still have not figured out what is wrong. It has been two years and they still don't know. But like I said, they think I am exaggerating. One doctor actually told me I was crazy. I have had panic attacks and numbness and tingling in my fingers but that is it. I am going to see my NEW doctor on May 30th. I will tell you I have had an MRI, 4 EEG's, countless labs run and more and more they are telling me it is in my head. It sounds like we might be having something similar going on. I will write back if on the 30th they figure this out. Best of luck to you!Have you had your B12 checked? All of your symptoms meet this deficiency.
    Anonymous 42789 Replies Flag this Response
  • Try here: http://health.yahoo.com/skinconditions-overview/tinea-versicolor/mayoclinic--8DF54E32-2A5D-9994-EB8CB502ED7F36D7.html
    aquila 1263 Replies Flag this Response
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