Discussions By Condition: I cannot get a diagnosis.

My doctor has failed me

Posted In: I cannot get a diagnosis. 23 Replies
  • Posted By: xmissxdanax
  • February 29, 2008
  • 04:25 PM

My doctor all but called me a hypochondriac yesterday, and I need help.

My symptoms, which have been going on and becoming more and more apparently in my everyday life, effecting my work, etc include:

weight gain, uncontrollable anxiety, panic attacks, libido loss, vaginal dryness, neck pain, facial muscle twitching, shoulder pain/twitching, trouble falling asleep, trouble staying asleep, chronic fatigue, brain fog, yeast infections, urinary tract infections, heart palpitations, acid reflux, horrible gas, chronic diarhia/loose stool, bouts of constipation, change in body odor, change in breathe odor, change in hair texture, dandruff, worsening eczema, occasional chest pain, difficulty catching/holding breath, foul smelling urine with floating particles, chronic sinus infection, headaches, difficulty orgasming, vision changes - specifically in the right eye, muscle twitch next to right eye

I realize this is all across the board, which is the only things that really makes me wonder if I am just going crazy. Almost a year ago, a chiropractor did an x-ray on me which indicates thorasic scoliosis and phase 1, encroaching on phase 2 neck area degeneration. I had to stop seeing him because I felt he was making things worse. When I showed the x-rays to my GP yesterday, he accused me of slouching in the x-ray. I remember standing flat against the wall, so I couldn't have been slouching. When I asked for a new x-ray to confirm, he said no.

Hypo/Hyperthyroidism and Graves' Disease all run in my family, and I did a checklist to see if that might be my problem. I checked almost all the symptoms, and when I showed my doctor, he dismissed it, saying my test (which I didn't know he had run) came back within normal range. I was also checked for Lyme, and my initial test came back weakly positive while my Western Blot came back negative. I remember what could have been a bite, what became a small-bullseye rash on my rear. It only became painful because I thought it was a zip coming or a spider bite, and I tried to squeeze it.

I have been diagnosed with Vulvodynia, for which I use lidocaine as necessary, and chronic ear disease. A few years ago, I was diagnosed with cholestatoma after a wave had burst my eardrum and failed to heal properly. I have had 6 surgeries to try and reconstruct the hearing bones and ear drum. The new eardrum has dissentigrated every time. I have had chronic neck pain since my second to last surgery (May 2006) and ringing, draining, and loss of hearing since my last (August 2007). This may is our last attempt to fix it before my doctor gives up. I wonder if there is another condition impeding my healing and causing the new drum to fall apart.

My mom was also just diagnosed with lymphoma in the sacrum. She was misdiagnosed for over a year before a doctor finally sent her to the hospital and they found 2 giant tumors pressing on her spinal cord. I don't think my problems are so severe in comparison. This was the catalyst to finally say "enough is enough, I need a doctor to tell me what's going on." Putting me on Zoloft and telling me to go home aren't exactly the kind of confirmation I need.

I will answer any additional questions, I know this is a lot of information. I really appreciate any help anyone can give me. I'm female, I am 21, I don't smoke, I drink socially but lightly, I used to weight 140, now I weigh 190, and I'm 5'0", I have a desk job and I'm a part time student, nothing too strenuous. I'm engaged and happily so. My health concerns are affecting my relationship, and I just don't know what to do.

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23 Replies:

  • I forgot to include this before, but I am also thirsty all the time. Water doesn't satisfy, and milky drinks make it worse. I also get dizzy/lightheaded/spacy sometimes. I used to feel faint as soon as 15 minutes of feeling hungry without eating, but since being on zoloft I have no appetite at all. I can't focus. I have stomach cramps a lot, like I'm about to have diarhia, and most of the time I do.
    xmissxdanax 12 Replies
    • February 29, 2008
    • 05:21 PM
    • 0
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  • My doctor all but called me a hypochondriac yesterday, and I need help. My symptoms, which have been going on and becoming more and more apparently in my everyday life, effecting my work, etc include: weight gain, uncontrollable anxiety, panic attacks, libido loss, vaginal dryness, neck pain, facial muscle twitching, shoulder pain/twitching, trouble falling asleep, trouble staying asleep, chronic fatigue, brain fog, yeast infections, urinary tract infections, heart palpitations, acid reflux, horrible gas, chronic diarhia/loose stool, bouts of constipation, change in body odor, change in breathe odor, change in hair texture, dandruff, worsening eczema, occasional chest pain, difficulty catching/holding breath, foul smelling urine with floating particles, chronic sinus infection, headaches, difficulty orgasming, vision changes - specifically in the right eye, muscle twitch next to right eye I realize this is all across the board, which is the only things that really makes me wonder if I am just going crazy. Almost a year ago, a chiropractor did an x-ray on me which indicates thorasic scoliosis and phase 1, encroaching on phase 2 neck area degeneration. I had to stop seeing him because I felt he was making things worse. When I showed the x-rays to my GP yesterday, he accused me of slouching in the x-ray. I remember standing flat against the wall, so I couldn't have been slouching. When I asked for a new x-ray to confirm, he said no. Hypo/Hyperthyroidism and Graves' Disease all run in my family, and I did a checklist to see if that might be my problem. I checked almost all the symptoms, and when I showed my doctor, he dismissed it, saying my test (which I didn't know he had run) came back within normal range. I was also checked for Lyme, and my initial test came back weakly positive while my Western Blot came back negative. I remember what could have been a bite, what became a small-bullseye rash on my rear. It only became painful because I thought it was a zip coming or a spider bite, and I tried to squeeze it. I have been diagnosed with Vulvodynia, for which I use lidocaine as necessary, and chronic ear disease. A few years ago, I was diagnosed with cholestatoma after a wave had burst my eardrum and failed to heal properly. I have had 6 surgeries to try and reconstruct the hearing bones and ear drum. The new eardrum has dissentigrated every time. I have had chronic neck pain since my second to last surgery (May 2006) and ringing, draining, and loss of hearing since my last (August 2007). This may is our last attempt to fix it before my doctor gives up. I wonder if there is another condition impeding my healing and causing the new drum to fall apart. My mom was also just diagnosed with lymphoma in the sacrum. She was misdiagnosed for over a year before a doctor finally sent her to the hospital and they found 2 giant tumors pressing on her spinal cord. I don't think my problems are so severe in comparison. This was the catalyst to finally say "enough is enough, I need a doctor to tell me what's going on." Putting me on Zoloft and telling me to go home aren't exactly the kind of confirmation I need. I will answer any additional questions, I know this is a lot of information. I really appreciate any help anyone can give me. I'm female, I am 21, I don't smoke, I drink socially but lightly, I used to weight 140, now I weigh 190, and I'm 5'0", I have a desk job and I'm a part time student, nothing too strenuous. I'm engaged and happily so. My health concerns are affecting my relationship, and I just don't know what to do.i'd find another doctor. Too many Docs pull the "crazy patient" card whenever they can't figure out what is ailing the patient. But I'd also narrow down your symptoms when you describe them to another doc. I could see how it could be overwhelming for a Doc to hear all that. For some of those symptoms you should go directly to a gynecoligist.did you have any kind of injury that lead to these symptoms or did they all manifest on their own?have your been tested for vitamin and mineral deficiencies?if you see another doc try fousing on your anxiety and heart palpitations, and twitching.
    alexburton 48 Replies
    • February 29, 2008
    • 07:45 PM
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  • I have never really been injured, no car crash or anything. The anxiety and neck pain started first. Thought it was dental, so I got my wisdom teeth out. The pain didn't go away though, and I only got stiffer. It is harder to turn my head one direction than the other. I have to sleep on a heating pad at least 3 times a week because of the pain. It doesn't help the pain that much, but it does help lull me to sleep. So, I guess the symptoms that really concern me and are most prevalent at this point in time (this all has been going on in various stages for a year or more) include:facial muscle twitchinganxiety/constant tension/panic attacksneck stiffnessneck painheadachesfeeling of pressure in my skull, like it might popwooziness/light headednessforgetfulnessdifficulty concentratingjoint pain/deep bone ache, sometimes migrating I know that Lyme can be hard to diagnose, so I'm not sure if a false positive or a false negative is more common/meaningful. My doc assured me it's not Lyme or my thyroid. He also said muscle aches and twitching are harmless, don't mean much, and that there isn't much to be done for it. I have a really hard time believing all that. At this point, I don't know who to see. A new GP? A specialist?
    xmissxdanax 12 Replies
    • February 29, 2008
    • 07:58 PM
    • 0
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  • Wow, the one actual Lyme patient and there is no response yet from BLAZE - Blaze you better reply!;) Unless you find a Lyme literate doctor, you are not going to get the lyme disease dealt with. I think this is important, but feel you need a LLD to get proper testing done. You are also showing nearly all of the symptoms of candida overload. Candida is poorly tested and poorly treated by Western MD's. Consider finding a more holistic doc to help you with this. Google candida or visit these websites for more info: www.candidasupport.org, and www.wholeapproach.com. Candida is hard to get under control, and will take up to two months or more. But getting this under control will eleviate a host of your seemingly unrelated symptoms! You mention thirst, and that water doesn't quench it...what are you drinking? What foods do you eat daily and do you have any food cravings? Do you crave sugar, breads, butter/fat? Get a good quality PROBIOTIC and take this daily. This will help rebuild your intestinal flora and help to boost up your immune system. Jarrow makes several good ones, but you can find this at any good healthfood store. I think NAET would be very helpful for you .Visit www.naet.com for info. Also Traditional Chinese medicine including acupuncture. Best wishesDOM
    acuann 3080 Replies
    • February 29, 2008
    • 08:40 PM
    • 0
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  • Before I went to my doctor, I did think it was all just candida, and I did read about how hard it is to test, especially when you're doctor calls you a hypo and won't test for it because he's already declared you crazy... When I was diagnosed with Vulvodynia, the GYN put me on diflucan for 4 weeks. I felt better around week 2, and the facial twitching started around week 4. Before that, I was taking these candida cleanse pills that smelled aweful. I burped them for hours, and I don't remember everything now, but I had some die-off symptoms. I wasn't sure if that was good or bad, so I just stopped. I drink a lot of orange juice. I crave fruit, juicy fruits like watermellon, honeydue, oranges. I can't get dry foods down sometimes without swishing some water or something first. Like I have cotton mouth all the time. I guess I crave sweet things more than anything, which is strange now that I think about it. I used to crave bitter salty things, like green olives, but for the past year, I have been more about fruit and sweet things. I discussed accupuncture with my mother-in-law and she thinks it would help me. She said they talk to you, actually listen, and get the whole story before they get started. I have no idea about insurance coverage or price of that, though. And when I first heard my "weak positive" result for Lyme, I did some research and it does seem like I have a boatload of Lyme symptoms, but I don't understand why my Western Blot, which is supposed to be more accurate, was negative? And if that was something common, why would my doctor be so confident that it wasn't that? And how do I find an LLD? And how in the world do I find a doctor who would test me for candida overload? Thank you so much for responding.
    xmissxdanax 12 Replies
    • February 29, 2008
    • 08:54 PM
    • 0
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  • Get checked out for diabetes (you could be at least pre-diabetic, hypoglycemic, or glucose intolerant) and yeast infection also. Many of your symtoms do fit. BTW I couldn't believe you were just 21 yrs old after reading all that was wrong with you. Be careful though, I think you may be also like another poster... could be over-doctored and at risk for dr caused diseases. use only necessary medicines; strive for as little medicines in your life as possibble. People who do this tend to have healthier lives in general;. And pay good attention to proper nutrtion, avoid fad diets. Stomach cramps can indicate dehydration :eek: or over-hydration :eek:.... possibly from having bloodsugars in during your day. You probably get low blood sugars from time to time also. Learn about dehydration and over-hydration, and learn to keep you fluid intake sane so your body has the fluids and electrolytes in needs to function. http://www.symptomsofdehydration.com/ tdwi I forgot to include this before, but I am also thirsty all the time. Water doesn't satisfy, and milky drinks make it worse. I also get dizzy/lightheaded/spacy sometimes. I used to feel faint as soon as 15 minutes of feeling hungry without eating, but since being on zoloft I have no appetite at all. I can't focus. I have stomach cramps a lot, like I'm about to have diarhia, and most of the time I do.
    TaylorDeelwithit 382 Replies
    • February 29, 2008
    • 09:27 PM
    • 0
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  • Currently, I only take Yaz and Zoloft. I'm working to switch from Yaz to something generic. This past summer was a heavily medicated one, between getting my wisdom teeth out and ear surgery. I was on antibiotics for almost a month and a half total. Since then, it's just been Yaz, until December, when I started Diflucan for 4 weeks, and then Zoloft 3 weeks ago. Since starting Zoloft, I fidget all the time. I'm told I should give it a month before I really start passing judgement on whether or not it works, but I really think it's treating a symptom, not a cause. It's helping some with the anxiety, but that's about it. I can't remember if I mentioned this anywhere, but when I was at the chiropractor almost a year ago, my spine looked "wicked curved" in the x-ray he did. When I showed this to my doctor, he said I must have been slouching. Hard to slouch when they put you up against a wall. I asked for a new x-ray of my whole spine, either to properly diagnose scoliosis or to rule it out for good. I'm already enrolled in a seminar in April - Yoga for Scoliosis - and they encourage you to bring your xrays so they can help you find poses that will do the most good. In general I lean toward that holistic approach. I'm trying to move back to that, but it just takes so much out of me. Please don't think I'm hoping for some magic pill to cure me. I just want to know what's wrong so I can fix it. I don't want to feel like I'm 21 going on 50 anymore.
    xmissxdanax 12 Replies
    • February 29, 2008
    • 09:43 PM
    • 0
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  • You are young enough that if you made changes today .... you could probably make a huge difference in your life tomorrow. Some links you might find useful on your medications: http://www.askapatient.com/viewrating.asp?drug=19839&name=ZOLOFT http://www.askapatient.com/viewrating.asp?drug=21098&name=YASMIN Currently, I only take Yaz and Zoloft. I'm working to switch from Yaz to something generic. This past summer was a heavily medicated one, between getting my wisdom teeth out and ear surgery. I was on antibiotics for almost a month and a half total. Since then, it's just been Yaz, until December, when I started Diflucan for 4 weeks, and then Zoloft 3 weeks ago. Since starting Zoloft, I fidget all the time. I'm told I should give it a month before I really start passing judgement on whether or not it works, but I really think it's treating a symptom, not a cause. It's helping some with the anxiety, but that's about it. I can't remember if I mentioned this anywhere, but when I was at the chiropractor almost a year ago, my spine looked "wicked curved" in the x-ray he did. When I showed this to my doctor, he said I must have been slouching. Hard to slouch when they put you up against a wall. I asked for a new x-ray of my whole spine, either to properly diagnose scoliosis or to rule it out for good. I'm already enrolled in a seminar in April - Yoga for Scoliosis - and they encourage you to bring your xrays so they can help you find poses that will do the most good. In general I lean toward that holistic approach. I'm trying to move back to that, but it just takes so much out of me. Please don't think I'm hoping for some magic pill to cure me. I just want to know what's wrong so I can fix it. I don't want to feel like I'm 21 going on 50 anymore.
    TaylorDeelwithit 382 Replies
    • February 29, 2008
    • 10:31 PM
    • 0
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  • Heres a link on what Blaze believes is her problem.http://www.quackwatch.com/search/webglimpse.cgi?ID=1&query=electromagnetic&case=&whole=&lines=&errors=&age=&maxfiles=25&maxlines=20&maxchars=3000&filter=&cache=yes&rankby=DEFAULT Heres a link on one of her other problems also.http://www.quackwatch.com/search/webglimpse.cgi?ID=1&query=Lyme Quacks want patients to come along who are dying for a diagnosis and they will help the patients get exactly what they are seeking to die for especially if they pay for the treatment.:eek: If you want to live a healthier life... stay away from things that quack, unless it has feathers.:p Here I am;) It's Lyme and coinfections! Aagh! I can't believe they are ignoring your positive! Seriously, join Lymenet. Your symptoms, even the female ones, are classic Lyme. They'll help you find a doctor who isn't too chicken to treat it. You likely have coinfections, too. Click on "symptoms": http://www.canlyme.com/ When to Suspect Lyme: http://www.angelfire.com/biz/romarkaraoke/whento.htm Lymenet: http://flash.lymenet.org/ubb/ultimatebb.php Post that you need to find a Lyme Literate Medical Doctor and a reliable lab. You will need to be tested for Lyme and all coinfections. I would also research microwave sickness, especially given your ear situation. Certain types of tumors have been linked to cordless/cell phone use. I have microwave sickness along with Lyme, babesia, and several viruses, and I believe EMR exposure and infections like this work together. Do you have Microwave/EMR Sickness? http://f1.grp.yahoofs.com/v1/MLqvR8GaZldTPvsXLf1-4gU0LwqA1kYRuSE-VAw9XhO62B0j6NAn2yQVmBOGEPMVURb8vJp8xVS8z1HsPHE-w4wlPRYN6b3JvQ/Do%20You%20Have%20Microwave%20Sickness.pdf Electrical Sensitivity & Hypersensitivity: http://www.ei-resource.org/illness-information/related-conditions/electrical-sensitivity-&-hypersensitivity/ Bioinitiative Report: http://www.bioinitiative.org/report/index.htm
    TaylorDeelwithit 382 Replies
    • February 29, 2008
    • 10:41 PM
    • 0
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  • In regards to the side effects of my medications:Oh my god I had no idea.I started Yaz right after I got off the antibiotics, so about the time the candida would have been taking hold, I started the crazy pill? No wonder I'm losing my ***n mind.
    xmissxdanax 12 Replies
    • February 29, 2008
    • 11:30 PM
    • 0
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  • I too had a family history of thyroid disease- just in my mom- years ago. Nothing like the multiple family members you have...For eight years, I was told that my thyroid gland was okay, despite numerous symptoms. I also had a lot of neuro smptoms- similar to yours. Lots of fatigue and headaches.But, because my thyroid hormone levels were always normal and happy, I was reassured, many times, that my gland was healthy. I was just a hypochondriac, because all my labs were normal. Surely, I was just imagining my symptoms and going to the doctor because I had nothing better to do.As it turns out, my 8th neurologist tested my thyroid antibody levels to see if perhaps I might have a rare complication of autoimmune thyroiditis called hashimoto's encephalopathy. Sure enough, both the thyroperoxidse and thyroglobulin antibodies were elevated. Whoops, maybe there was something wrong with my gland after all! After I was diagnosed with HE, they did an ultrasound of my thyroid and it was full of tiny nodules from the autoimmune destruction. I was so upset. To cope with this upset-ness, I continue to post here to warn other patients that thyroid hormone levels aren't the whole story. If you have a family history of thyroid disease, and/or a lot of thyroid symptoms, it might be worthwhile getting the antibodies checked and an ultrasound done. Then if these are normal, it's okay to be told that your gland is healthy and happy.Your symptoms might actually be HE symptoms. While the stereotypical ones are psychosis, seizures, and coma- I had none of these- just a lot of fatigue (which I would describe as oppressive), almost daily headaches, neck pain, balance problems, memory and concentration issues...Of course, there's a lot of other things it could be too. You might want to get checked for celiac, and other things.The most important thing is not to give up. You deserve an explanation for your symptoms.
    Anonymous 42789 Replies
    • February 29, 2008
    • 11:34 PM
    • 0
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  • I just did the test where you spit in a glass of water when you wake up, and sure enough, a bunch of white stuff drifted to the bottom, there were strings hanging down, and there where floating particles, so I think you are spot on with candida. Wow, the one actual Lyme patient and there is no response yet from BLAZE - Blaze you better reply!;) Unless you find a Lyme literate doctor, you are not going to get the lyme disease dealt with. I think this is important, but feel you need a LLD to get proper testing done. You are also showing nearly all of the symptoms of candida overload. Candida is poorly tested and poorly treated by Western MD's. Consider finding a more holistic doc to help you with this. Google candida or visit these websites for more info: www.candidasupport.org, and www.wholeapproach.com. Candida is hard to get under control, and will take up to two months or more. But getting this under control will eleviate a host of your seemingly unrelated symptoms! You mention thirst, and that water doesn't quench it...what are you drinking? What foods do you eat daily and do you have any food cravings? Do you crave sugar, breads, butter/fat? Get a good quality PROBIOTIC and take this daily. This will help rebuild your intestinal flora and help to boost up your immune system. Jarrow makes several good ones, but you can find this at any good healthfood store. I think NAET would be very helpful for you .Visit www.naet.com for info. Also Traditional Chinese medicine including acupuncture. Best wishesDOM
    xmissxdanax 12 Replies Flag this Response
  • You gotta be careful with all the tiny pills. You know they must be powerful if such a tiny pill can do so much in a persons body. It seems a lot of folks are having problems with the Yaz btw... here is a google search result with some links on it. I just tyoed in Yaz and side effects.http://www.google.com/search?sourceid=navclient&gfns=1&ie=UTF-8&rls=GWYA,GWYA:2006-23,GWYA:en&q=Yaz+side+effects The askapatient website is a good one to check out on some drugs. Now some medicines you need to take.... get real sick with a horrid infection that is treatable you need an antibiotic no doubt. Deal with the side effects and such. But some meds you have to wonder does one really need them.... weigh the pros and cons and all the risks then decide. But when you start taking multiple meds, then you need to look at all you are taking and decide which you really need and which you might find a better way to go. In regards to the side effects of my medications: Oh my god I had no idea. I started Yaz right after I got off the antibiotics, so about the time the candida would have been taking hold, I started the crazy pill? No wonder I'm losing my ***n mind.
    TaylorDeelwithit 382 Replies Flag this Response
  • I am going to say that 75% of bacterial infections can be cleared up without the use of antibiotics. Goldenseal, berberine, garlic, Chinese medicinal herbs can all help rid the body of bacteria. What happens is that docs have no knowledge of herbal medicine, and will just write a script for an antibiotic - that is all they know and all they have been trained. XmissXdanax,Sounds like a candida cleanse is in order...I hope you read all about how to do this and about "die off" symptoms which can occur. Please go slowly and you shouldn't have any uncomfortable symptoms. The two key players in addition to an anticandida cleanse are PROBIOTICS and digestive enzymes. These both help to facilitate the cleansing. I have used the Threelac, and love it as it is very easy to use and very effective. Buy it from a reputable website that offers a money back guarantee and you can always send it back if you don't notice it helping. I noticed a change within a week taking it. I have also used wild oregano oil, NOW's candida cleanse, udecenoic acid by Thorne (expensive product and didn't notice it helping much), raw garlic, and pau'darco. Often you can find a product containing several of these herbs, like the one I got from NOW. Good luck and it sounds like you are on the right track towards better health:). Best wishesDOM
    acuann 3080 Replies Flag this Response
  • My doctor all but called me a hypochondriac yesterday, and I need help. My symptoms, which have been going on and becoming more and more apparently in my everyday life, effecting my work, etc include: weight gain, uncontrollable anxiety, panic attacks, libido loss, vaginal dryness, neck pain, facial muscle twitching, shoulder pain/twitching, trouble falling asleep, trouble staying asleep, chronic fatigue, brain fog, yeast infections, urinary tract infections, heart palpitations, acid reflux, horrible gas, chronic diarhia/loose stool, bouts of constipation, change in body odor, change in breathe odor, change in hair texture, dandruff, worsening eczema, occasional chest pain, difficulty catching/holding breath, foul smelling urine with floating particles, chronic sinus infection, headaches, difficulty orgasming, vision changes - specifically in the right eye, muscle twitch next to right eye I realize this is all across the board, which is the only things that really makes me wonder if I am just going crazy. Almost a year ago, a chiropractor did an x-ray on me which indicates thorasic scoliosis and phase 1, encroaching on phase 2 neck area degeneration. I had to stop seeing him because I felt he was making things worse. When I showed the x-rays to my GP yesterday, he accused me of slouching in the x-ray. I remember standing flat against the wall, so I couldn't have been slouching. When I asked for a new x-ray to confirm, he said no. Hypo/Hyperthyroidism and Graves' Disease all run in my family, and I did a checklist to see if that might be my problem. I checked almost all the symptoms, and when I showed my doctor, he dismissed it, saying my test (which I didn't know he had run) came back within normal range. I was also checked for Lyme, and my initial test came back weakly positive while my Western Blot came back negative. I remember what could have been a bite, what became a small-bullseye rash on my rear. It only became painful because I thought it was a zip coming or a spider bite, and I tried to squeeze it. I have been diagnosed with Vulvodynia, for which I use lidocaine as necessary, and chronic ear disease. A few years ago, I was diagnosed with cholestatoma after a wave had burst my eardrum and failed to heal properly. I have had 6 surgeries to try and reconstruct the hearing bones and ear drum. The new eardrum has dissentigrated every time. I have had chronic neck pain since my second to last surgery (May 2006) and ringing, draining, and loss of hearing since my last (August 2007). This may is our last attempt to fix it before my doctor gives up. I wonder if there is another condition impeding my healing and causing the new drum to fall apart. My mom was also just diagnosed with lymphoma in the sacrum. She was misdiagnosed for over a year before a doctor finally sent her to the hospital and they found 2 giant tumors pressing on her spinal cord. I don't think my problems are so severe in comparison. This was the catalyst to finally say "enough is enough, I need a doctor to tell me what's going on." Putting me on Zoloft and telling me to go home aren't exactly the kind of confirmation I need. I will answer any additional questions, I know this is a lot of information. I really appreciate any help anyone can give me. I'm female, I am 21, I don't smoke, I drink socially but lightly, I used to weight 140, now I weigh 190, and I'm 5'0", I have a desk job and I'm a part time student, nothing too strenuous. I'm engaged and happily so. My health concerns are affecting my relationship, and I just don't know what to do.I have some symptoms similar to you and also some that are different.You reminded me,because i also had a xray done by a chiropractor about a year ago that said scoliosis but i just presume this is a different issue from my horrific symptoms but in your case i dont know whether its related to all your other symptoms or a seperate matter.Also i had 2 weak positive Lyme Disease tests but a negative western blot too.It might be a good idea to get a provoked 24 hour heavy metals urine screen but get it done with a good reputable lab. Id definitely change doctors if theyre trying to say youre a hypochondriac or that its psychosomatic-i am getting that now too.This might sound controversial to some but if your symptoms are really destroying your life maybe you could try a trial for treatment for Lymes disease regardless of the tests if you can find a knowledgable doctor?
    Anonymous 42789 Replies Flag this Response
  • Hi,I would definately look for a better specialist. My son and I went through quite a few before finding one who would actually listen and believe our symptoms were real. Let us know how you are.Teresa
    TeresaC 41 Replies Flag this Response
  • I think you may have a genetic problem called Turner Syndrome. Try here: http://www.nlm.nih.gov/medlineplus/ency/article/000379.htm I have it too. You may not have all the signs & symptoms, and although this page sounds like you would have obvious physical deformities, the truth is no one but a trained doctor would be able to tell if you have it. Get checked. It's a simple blood test.
    aquila 1263 Replies Flag this Response
  • That is fascinating because I have always had ear infections, and I now have a permanent tube in 1 ear because my eustacian tube doesn't function properly. I will definitely present this to my new doc, when I get one, and ask to be tested. I haven't gotten much more than an inch taller since middle school. If I hadn't gained weight, I could still wear my clothes from middle school. Some still fit because they were loose then. I have never heard of this, and I never would have thought to ask, and I have to doubt many doctors really look for it. Thank you so much I think you may have a genetic problem called Turner Syndrome. Try here: http://www.nlm.nih.gov/medlineplus/ency/article/000379.htm I have it too. You may not have all the signs & symptoms, and although this page sounds like you would have obvious physical deformities, the truth is no one but a trained doctor would be able to tell if you have it. Get checked. It's a simple blood test.
    xmissxdanax 12 Replies Flag this Response
  • can you find a preventative medicine doctor..have him run a couple of dozen hormone tests on you...for openers..
    Monsterlove 2921 Replies Flag this Response
  • A falsely positive lyme test can easily happen too apparently. I was reading something on this and how this occurs, not too long ago. IF you get LYME thou ruled compeletly out, by a lyme literate doctor (no good seeing any doctor about that!).. one of the next things you may want to consider is Chronic Fatigue syndrome. ALL your symptoms can be caused by CFS (also called chronic fatigue immunity dysfunction sydrome CFIDS). I believe you also probably have irritable bowel syndrome (which goes hand in hand with CFS).. IBS would cause the constipation, diarhearrea (oh i cant spell it either) and gas. Be aware that some medications can cause facial twitching etc as side effect eg SSRI drugs can do that.
    taniaaust1 2267 Replies Flag this Response
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