Discussions By Condition: I cannot get a diagnosis.

My Doctor can't figure out whats wrong with me

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: SBSTEVEN
  • July 11, 2011
  • 11:24 PM

Hello. I am a 27 year old male, about 40 pounds overweight and have mild asthma. Below are the symptoms I have been having. As far as being tired and have the feeling of not wanting to do anything due to my fatigue, well that's been going on for years. The rest of my symptoms like the chest pains, sore throat etc has been more recent, like the past 1 year or so. My doctor believes it might be due to sleep apnea. I had a sleep test done and it came back that I have a VERY mild sleep apnea and the sleep specialist said that he doesn't believe that even if I did have severe apnea it would be enough to give me all of these symptoms. I hope someone here can help me. Here are my symptoms and I pretty much feel like this every day and its driving me nuts. Im getting to the point where I want to quit my job and just be home sleeping all day because of how I feel.

Flu like symptoms
Sleepy most of the day

Fatigued / Tired
Get hot out of nowhere and sweat a lot
Really Dizzy / Light Headed
Lack of concentration
Short term memory loss
Mood swings
Chest pains
Heart skips beats, feeling of heart dropping to my stomach
Weak muscles
Sore throat / dry mouth
Visual disturbances (blurring, sensitivity to light, eye pain)
Feeling like fainting
Always getting sick (sore throat, fever, chills, pains)

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1 Replies:

  • Sorry to have to tell you this. If your doctor has ruled everything else out, it fairly clearly appears that you probably have ME/CFS. It can manifest as slow onset or rapid onset. Unfortunately there is no cure and most who certainly do have it never recover and you could get worst. Most of us are unable to work and are on disability so you are very lucky if you are managing to do so. Check out http://wwcoco.com/cfids/bernesx.html for a good symptom list based on scientific studies. The best medical defination of it worldwide (which dont allow as many missed things to be mistaken for the illness) is the Canadian consensus doctument for medical practioners, So check out the PDF file at http://sacfs.asn.au/news/2006/09/09_22_canadian_consensus_documents_overviews.htm Take care as this is a very misunderstood illness and a bad physican who dont understand it well or what subgroup you are in it can make your condition permanently worst by wrong treatments eg GET and CBT (which are actually not recommended at all now in some countries as this isnt a psychological illness and those things can make one worst). I strongly suggest to educate yourself about it by patient forums before you start trying to educate your doctor on that this is what he's missing. Take care.. doing too much at this point may have you permanently crashing to a point you cant recover from. You have the most hope of recovering in first couple of years. This is the point where the most can be done to help eg making sure you get enough rest, boosting your immune system etc etc Note this isnt a "womans illness" as many naive about it doctors tend to think. 25% of those who get it are male (hence you may have a harder time getting an offical diagnoses).
    taniaaust1 2,267 Replies Flag this Response
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