Discussions By Condition: I cannot get a diagnosis.

My daughter is very sick, please help

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: calatynch
  • March 13, 2008
  • 11:41 PM

:( On February 16, 2008, our world was turned upside down. Our daughter had just finished her last high school bowling match of the season when 10 minutes later she had a severe nose-bleed come out of no where! She has never had nose-bleeds in the past and this was serious. We were able to slow it down and she was walking to the restroom to clean up when she slumped up against a wall and then blacked out. Luckily she had two friends with her and she did not hit her head. They gently laid her on the ground and then she stared crying about having horrible head pain in both her temples. She then blacked out again for a brief period of time. When she came to, she could not see anything and then began screaming that she had shooting pains going down both her arms and the pain in her head had moved to the middle of her head in the back. She then started vomiting and had cold sweats, but she felt extremely warm. Her pulse was racing. She actually stopped breathing temporarily then her arms began tremoring. She was rushed to the hospital by ambulance and spent the next 8 days in the hospital. They ran every test on her looking for possible clots, anyerisums, tumors, blockages, etc... MRI/MRV/MRA, CT Scans, spinal taps, EEG's, EKG's, and they all came back negative. Her blood work also looked normal. They basically wrote her off and told us it was a psychological problem and she needed to see a therapist. The day before they released her, she started having problems walking on her right leg and then her face and arms on her right side of her body became numb. She is now stuttering too.

She has been home three weeks now and has had no improvemements. The tremors, stuttering, weakness on the right side of her body (she is using a walker to get around). We took her to Children's Hospital in DEtroit, MI and saw the Chief Neurologist and he gave us the same diagnosis as the doctors in our hospital. We also took her to a psychologist who does not agree with their diagnosis and feels it is more serious.

We cannot believe this is all related to a psychological disorder. We are taking her to U of M, Ann Arbor Hospital tomorrow, but i am fearful that they will tell us the same thing.

Her pain is getting worse in her head and arms. PLEASE HELP!

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4 Replies:

  • I'm sorry i dont have any answers, I just want to say how i feel for you at this time & hope that you get answers & help for your daughter soon & that it has a favourable outcome. God Bless x
    Tootsie 628 Replies Flag this Response
  • We also took her to a psychologist who does not agree with their diagnosis and feels it is more serious. We cannot believe this is all related to a psychological disorder. We are taking her to U of M, Ann Arbor Hospital tomorrow, but i am fearful that they will tell us the same thing. Her pain is getting worse in her head and arms. PLEASE HELP! sorry to hear about your daughter, scary for you all. That is a very common thing many doctors will do thou, if they cant work out what is wrong.. put it all down to being psychological! AIDS patients were originally told their illness was psychological, same with Multiple scerosis patients..and now days the same thing is still happening with chronic fatigue syndrome patients. All cause doctors dont like to admit that they dont have a clue what is wrong. It happens all the time. Get a letter from the psychologist your daughter saw to say that he/she doesnt think it is psychological. Take that letter with you when you see doctors, (this way for them to say it is..they have to be going against what other specialist has said..something they wont really like to be doing). It's probably best if you dont allow doctors to go fobbing you off to other psychologists as sooner or later.. you may get one decides to just go along with doctors that it is psychological and that will make it much harder for your daughter to get help. My own daughter had a problem with her sight..and a childrens eye specialist told us it was psychological, (he said something like "we see this kind of thing only in girls, they convince themselves that there is something wrong with them which their isnt") and told us to ignore her about it. My child ended up going right throu high school with not able to read the blackboard due to it, getting so far behind, that she ended up dropping out of school, before year 10. It was only then that it was realised by doctors.. that yes she did actually have an eye problem and couldnt read! (too late thou as her schooling was ruined).
    taniaaust1 2267 Replies Flag this Response
  • :( On February 16, 2008, our world was turned upside down. Our daughter had just finished her last high school bowling match of the season when 10 minutes later she had a severe nose-bleed come out of no where! She has never had nose-bleeds in the past and this was serious. We were able to slow it down and she was walking to the restroom to clean up when she slumped up against a wall and then blacked out. Luckily she had two friends with her and she did not hit her head. They gently laid her on the ground and then she stared crying about having horrible head pain in both her temples. She then blacked out again for a brief period of time. When she came to, she could not see anything and then began screaming that she had shooting pains going down both her arms and the pain in her head had moved to the middle of her head in the back. She then started vomiting and had cold sweats, but she felt extremely warm. Her pulse was racing. She actually stopped breathing temporarily then her arms began tremoring. She was rushed to the hospital by ambulance and spent the next 8 days in the hospital. They ran every test on her looking for possible clots, anyerisums, tumors, blockages, etc... MRI/MRV/MRA, CT Scans, spinal taps, EEG's, EKG's, and they all came back negative. Her blood work also looked normal. They basically wrote her off and told us it was a psychological problem and she needed to see a therapist. The day before they released her, she started having problems walking on her right leg and then her face and arms on her right side of her body became numb. She is now stuttering too. She has been home three weeks now and has had no improvemements. The tremors, stuttering, weakness on the right side of her body (she is using a walker to get around). We took her to Children's Hospital in DEtroit, MI and saw the Chief Neurologist and he gave us the same diagnosis as the doctors in our hospital. We also took her to a psychologist who does not agree with their diagnosis and feels it is more serious. We cannot believe this is all related to a psychological disorder. We are taking her to U of M, Ann Arbor Hospital tomorrow, but i am fearful that they will tell us the same thing. Her pain is getting worse in her head and arms. PLEASE HELP! Is your daughter on birth control pills or does she have an IUD? Was she on any medication at all before this started?DOM
    acuann 3080 Replies Flag this Response
  • hemorrhagic hereditary telangiecstasia?
    rad-skw 1605 Replies Flag this Response
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