Discussions By Condition: I cannot get a diagnosis.

My daughter has had low back pain for 18 months...help!

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Anonymous
  • January 24, 2007
  • 09:03 AM

My 10 year old daughter has had low back pain that has increasingly gotten worse since 9-05. Had 3 opinions with orthopaedist. First doctor did bone scan for stress fracture-negative, MRI at T-12 for suspect tumor-neg, said growing pains, do PT. Second opinion said had stress fracture even tho did not show up on bone scan, put in brace, no activity, third opinion said muscles in lumbar had sympathy for previous injury in back, go to PT, throw away brace, quit complaining. Each night she cannot get to sleep, sitting or riding in a car is bad, looks pale, nausea at times. Pain is chronic, level 3 all day nonstop, level 9-10 at night. Tried ibuprofen, ice, massage, no relief. Appears healthy otherwise. I have read that back pain in this age is not normal. Yet, no one has a good diagnosis. Who will listen? I have seen her in so much pain and she has learned to live with it.

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13 Replies:

  • Does she wear a backpack to school? Does it fit properly? This may seem trivial, but I think it is a real problem for young people these days and all the books they carry. Check this out. Have you tried acupuncture or chiropractor? This would really help. This may take some time and I would recommend a minimum of 4-6 treatments...to find an acupuncturist near you please go to www.acufinder.com and type in your zip code. Find a chiro who specializes in treating kids. Lastly, has she had her kidneys checked? How is her urination? Hope this helps.Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 24, 2007
    • 03:03 PM
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  • Has she seen a chiropractor? If not, try seeing one. And there's always a possibility that the pain is internal, not in the muscle or bone, but in organs. The kidneys are towards the back of the abdominal cavity, so there's a chance that it's an organ that hurts.
    deadlysauce 67 Replies
    • January 24, 2007
    • 03:57 PM
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  • She could have RSD, usually people get it in limbs, mine was in chest, spread to both sides of chest. Is her skin shiny over the affected area. Is it hot or cold to touch. Check out RSD on internet.Good Luck , mine is in remission and I am doing well now. But it was a living nightmare before I got it under control. I take only two ultram and 1/2 an flexeril at night now.
    Anonymous 42789 Replies
    • January 26, 2007
    • 05:50 AM
    • 0
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  • I was wondering if you ever found out what was wrong with your daughters back? I have a 14 year old daughter that has been having lower back pain for about 1 1/2 years. We have gone through all the test that you have and have not found anything. If you have any information i would appreciate it very much.
    samiam 4 Replies Flag this Response
  • I was wondering if you ever found out what was wrong with your daughters back? I have a 14 year old daughter that has been having lower back pain for about 1 1/2 years. We have gone through all the test that you have and have not found anything. If you have any information i would appreciate it very much. What are your daughter's periods like? Does she have painful periods, irregular cycle, or anything like that? Does she have any urination problems - frequent, burning, history of urinary tract infections? DOM
    acuann 3080 Replies Flag this Response
  • her periods are irregular and have been for about 1-2 years.
    samiam 4 Replies Flag this Response
  • Is she by chance taking bc pills to regulate her period? BC pills can cause low back pain as a side effect. If not, then has she had a lower abdominal/vaginal ultrasound to rule out ovarian cysts or fibroids? This can cause low back pain as well as lots of bloating and painful periods. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • lately her periods when she has them are painful (cramps) and she has never had a urinary tract infection or bladders infections.
    samiam 4 Replies Flag this Response
  • no she is not on the pill, but i will check into the other things you mentioned. Thank you for caring
    samiam 4 Replies Flag this Response
  • no she is not on the pill, but i will check into the other things you mentioned. Thank you for caring You are quite welcome. Also I would have a good gyno check her for endometriosis - this can be hard to diagnose, but she sounds like this could be a possible issue. Endo is extremely painful, and hard to treat. Acupuncture and Chinese herbal medicine is brilliant for endo - I have treated this many times in my clinic. Acupuncture can be very effective for low back pain - consider this form of therapy, I think it would help. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • My daughter has had lower back pain for 5 years, starting in 5th grade. We went to her Dr. many times going thru x-rays, urine, blood, CAT scan, and so on with no explanation. I did get an extra set of books from school that year thinking it was her back pack, but it did not make a difference. Whenever she would be on her feet alot she would complain. 9th grade it got worst! She started not going out with her friends sometimes because her back hurt. She did start her period finally and she would take motrin, tylenol rapid release, midol, and use the heating pad. We even took a friend home early one night to take her to the ER. That was joke! They pretty much told her it was in her head. I made an appointment with an orthopedic that specializes in the back. He did a MRI, xray, and bone scan with no answers. He did rule out cancer and all those scary thoughts that goes thru a parents mind. I took her to my OB and he did an ultrasound and said he did not believe it was anything female related. He did not want to examine her unless he suspected something with her being so young. We did find when it is around her period it gets alot worst. It is frustrating to see your child suffer especcially at a young age. I hate to hear that another child is going thru the same thing. I hope someday we can find an answer.
    Anonymous 42789 Replies
    • January 14, 2009
    • 03:51 PM
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  • I'm reading your post today, I know this is on old thread, but I am amazed at the similarities between my 13 y/o daughter and your daughter. We went through the same thing. Lots of back pain, fatigue, ankle pain, more pain during her monthly cycle. My husband and I would jokingly tease her that she was like an 80 year old woman. We didn't realize her pain was so severe! I thought maybe it was growing pains and puberty. But the pain has gotten worse and regular pain meds don't help her at all anymore. We had xrays (all negative), an ultrasound to rule out any issues with her uterus or any female organ problems, (normal results), and finally the blood work showed some answers. It's looking like an auto immune disease. ANA test showed it could be Lupus but more testing is necessary. We are going to a Rheumatologist next week for more blood work. Have your doctors done complete blood work? I hope they are taking you seriously and doing all the investigating they can. If they dismiss her pain, get a new doctor! I hope you've made some progress with her condition.
    Anonymous 42789 Replies Flag this Response
  • My 12 year old is going through the same bad back pains. We just saw the Orthopedist and she said she thought it was growing pains. We just finished 3 weeks of PT and it didn't help. Now she wants 8 weeks more of PT and said the PT didn't do the right excercises with her. I am not convinced that is what this is. They did a full xray on her and didn't see anything so she said their was no reason to do an MRI. I disagree. My daughter has not started her period yet. Someone please give me some advice. Thanks
    Brand0811 1 Replies
    • August 28, 2013
    • 02:45 AM
    • 0
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