Discussions By Condition: I cannot get a diagnosis.

my daughter has all over nerve pain that no one can diagnose I need help

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • April 22, 2014
  • 09:11 PM

nov 2013 my 17 y/o daughter had a rapid onset of pain in her hands, feet and chest. since that time it has spread throughout her body. she has had mri, ct, lymes test, nerve test, and multiple blood tests, all which seem to be "normal" yet she still has this intense pain that comes and goes. It seemed like it was getting better from mid Jan till mid April but now its back. It is so bad that the only thing the helps is narcotics and those don't help really except to put her to sleep. We have seen a neurologist, psychiatrist, pain management, PT, infectious disease, and rheumatologist. No one has an answer as to what is the cause....or a real diagnosis other than "pain". Anyone out there ever hear of such a thing?

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2 Replies:

  • A lot of the lyme disease testing comes back as false. Insist on having the test done through igenex labs in California. Your Dr can send away for it and the lab testing is extremely flawed - especially if you live north of USA border. Sorry, that is my only guess and I hope you can figure it out. Keep fighting till you do.
    Anonymous 1 Replies Flag this Response
  • Have the doctors test her interleukin-2 levels. This is a immune protein/hormone at the root of most all un diagnosable inflammatory conditions. I too suffer from this pain and so much more with no diagnosis. All that is wrong with me is this inflammatory cytokine is raging through my body. I had to convince the doctors to test me for it after 3 years of their not finding anything to diagnose. My immune hormones are out of balance! Viruses, bacteria and parasites can cause this to happen too.
    Anonymous 0 Replies Flag this Response
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