My daughter has been sickly since birth. She was diagnosed with cyclic vomiting syndrome when she was around nine years old, so I'm used to bouts with illness. However, six months ago, my now 13 year old daughter began vomiting, complained of headache, stomachache, and dizziness. She was hospitalized twice for abdominal migraine, and after about six or so weeks, she began feeling better. She was placed on 25mg. of Topomax twice daily to try to control her episodes. Since then, she has been dealing with severe episodes of dizziness, which incidentally was not a symptom in her earlier years. This past Monday, after she had been ill for two weeks, I took her to the emergency room. She had been unable to keep food or drink down for two weeks, despite anti-nausea medication such as Reglan, phenergin, and Zofran. Her doctor put her on another migraine medication called Relpax, but she had been unable to digest it.
While at the emergency room, she began to twitch, in the manner of having a cold chill. The doctor assured me that it was probably her electrolyte levels being off-kilter, and after she was given I.V. fluids, I.V. Zofran and torodol, she stopped, so I assumed she was correct. I took her home, and the next day, late in the afternoon, she started to have her "cold chills" again. They progressively worsened into jerky muscle spasms in her neck, shoulders and arms. I took her back to the emergency room, and by the time they got her back to a room, her feet and legs were involved. She was jerking so hard that she looked like she was having a seizure or some sort of palsy attack, but was fully concious the entire time. The doctor this night gave her I.V. fluids, more Zofran, more torodol, and Ativan. She fell asleep, but continued jerking, much more minimal, though. They sent us home again, with an appointment to see a neurologist the next day, and was given an EEG, with CT scan and MRI to be done next week.
She was just given these tests six months ago when she was admitted into the hospital prior, and they all came out negative. What is wrong with my daughter? Please help. I'm at my wits end, and scared to death for her.
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