Discussions By Condition: I cannot get a diagnosis.

My brother needs help....

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: morningstar
  • January 3, 2007
  • 05:18 PM

:( I am hoping someone out there has a suggestion or maybe has gone through this....
My brother is what one would consider a healthy male. He' had every blood test and other tests...under the sun. He has been in the ER numerous times for what they call anxiety or panic attacks which is a bunch of bunk. I say this because they have also had him on a plethera of med's for anxiety, depression etc.... The doctors tell him to go to a phsyc. which he has done many times... Last night he sent me an email begging me to help him research this "ailment", below I have typed in some of what he wrote to me..this is just a quick rundown but maybe and I pray, hopefully someone has an idea of what is going on with him. This problem is ruining his life and nothing is working and there is nothing wrong with him internally that the doctors can diagnose...but could it actually be something. Thank you for any info or advice....This has been going on a few years now and I am so worried about him.

..." Well today i woke up and wanted to do a small load of laundry mainly because i haven't washed my blue uniform in 6 months and my blacks as well, so i needed to do that, now where i'm going with this is that anytime i do a physical activity i have one of my "episodes" as I can only call them. the one that always ends me up in the ER and them saying it's a panic attack. I'm not sold on that. Up until last year i was able to carry three baskets of clothes with a cigarette in my mouth, and now and even since quitting smoking awhile ago, if I carry a small load a short distance i begin by having a breathing problem, get nervous, the shakes and feel my heart start to pound mildly. It lasts for an hour or so. So far not one doctor can tell me why this happens and all they say is they want me to see a phsych. and go on meds. I'm just starting to taper of to 5 mgs of valium and doing ok with it. I wonder how much of an effect the benzodiazipines have had on me and if i'm having side effects from it. my symptoms are from unexplained skin rashes, loss of appetite, vision changes, nervousness, paranoia, thoughts of suicide, breathing troubles, loss of weight, mood swings, lethargic, crying spells, memory loss, no interest in anything, not even sex. the last time i had sex i had an episode that was so bad my heart would not stop pounding and the nervousness was unimagineable. I'm burned out at this point and it is daily struggle to even go to work. From what i read online, benzos can have some damaging effects and thought you might be able to find some stories that are like mine or helpful medical advice that no one can seem to give me. I really need help and pretty much tired of everyone around me and this problem. And I WANT MY LIFE BACK......."

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9 Replies:

  • http://www.drcranton.com/yeast.htmGo to this side. It sounds like advanced candida to me.It could also be toxicity. Does he eat a lot of tuna or canned food?What does he eat?Read this link please.
    Anonymous 42789 Replies
    • January 3, 2007
    • 05:28 PM
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  • I am a 40 year old woman living in Iowa, who also has had a mysterious illness that doctors can't seem to figure out. Dizziness, shortness of breath, weakness/fatigue, chest discomfort, etc.I too have been on Lorazapam (Ativan), benzodiazipine for almost two years. I am on a very low dose (total of .5 mg. per day), but, have had weird symptoms also, and have often wondered if they might be induced by this drug.Has your brother noticed these weird symptoms starting when he decreased the dosage? (I noticed he wrote that he has been doing that in an effort to get off it). I am wondering if that may be what is inducing these "episodes".Has he also had a complete pulmonary and cardiac work up. Believe me, I know how frustrating it is when doctors can't figure it out, so they tell you it is "stress", or "anxiety", but, what they fail to grasp is that they too would be feeling the same way, if their body was acting this way, with no explanation.I hope to hear back from you.Jo
    Anonymous 42789 Replies
    • January 13, 2007
    • 01:39 AM
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  • mitral valve prolapse? as much as 20% of population has this to differing degrees..can be diagnosed with an echocardiogram..on the bright side - it's almost always harmless
    Anonymous 42789 Replies
    • January 13, 2007
    • 01:50 AM
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  • My husband went through this- ruled out his heart through a cardiologist. The only way we knew his heart rate was slowing to dangerously low levels, though, was through multiple trips to the ER and having him hooked up to monitors during the "episode." He then saw a Neurologist who did the tilt-table test and some kind of sweat test, and dianosed him with an autonomic nervous system disorder. Bottom line- don't see more general docs, see specialists in all the fields giving you problems. Good luck!!
    Anonymous 42789 Replies
    • January 13, 2007
    • 01:56 AM
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  • i agree that there are features present which suggest a bad reaction to food or some environmental factor.i agree that candida (yeast)is possibly indicated.whats all this washing?is there a basement involved?my only other guess would be hypervitaminosis.,and in particular too much vitamin d.,or selenium.people do often self medicate with this stuff and it can be tempting to take too much.selenosis is increasingly common for this reason,brazil nuts being a natural source.more than a few a day and you are easily in trouble!has there been a change of diet ,maybe in the period after giving up smoking?it might be an idea to try an elimination diet doctor will advise.or go back to the foods he ate when last completely well.i share the mitral valve suspicion,and it should be investgated.dont be dismissive of anxiety.it may well be present as a consequence of this worrying problem,and it would help if it could be mitigated to stop it complicating the clinical picture.this is the sort of thing which victorian doctors would suggest "a long sea voyage"!good advice really if you think about it,but impractical in the modern world!
    Anonymous 42789 Replies
    • January 13, 2007
    • 00:35 PM
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  • i had these symptoms in 2004, final diagnosis was metabolic syndrome and medication reactions. is his thyroid normal? is he takings meds for these symptoms? i was told anxiety attacks too-given zoloft for it. since then, symptoms are less far less frequent, but more severe when the do occur. even if he doesnt believe it is anxiety related- anxiety medications might relieve his symptoms while he researches other possible diagnosis. im sorry hes dealing with this and proud of you for being such a good sister to him. illness are very stressfull and support is very important to recovery. if his metabolism/thyroid and normal i would go back to the respiratory/cardiac doctor and ask for a portable monitor. this could help rule out a few problems. good luck.
    kamsae 88 Replies
    • January 14, 2007
    • 04:13 PM
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  • Hi, I feel for your brother it is horrible to feel so bad all the time.I am 44 years old and I have panic attacks.Not anxiety attacks, panic attacks. There is a definate difference.It is very true about panic disorder.I wish I could say it is all my head and make it go away for it interferes with my life and how my days are managed. Yet this is a horrible thing.For me it is an everyday scruggle.I cannot cross a body of water in a vehicle unless I can see tree's.I cannot go through tunnels, I cannot take a shower with the door closed.( The steam from the shower or bath seems to smother me)I cannnot even go over a small ramp in town, I have to go out of the way.I hate it... I hate it so badly that sometimes I hate myself.I do not know why I have these episodes. I can be driving all happy and singing with the music on the radio and one will hit me from no where. I will begin to shake very badly and cannot seem to catch my breath, like I am smothering.I fight it.I pull over on the side of the road and wait for it too pass and continue on. Sometimes I do have to call for someone to come pick me up, and someone to drive my vehicle back or go back and get it.I do not want to have this terrible problem.I cannot do things in which I so much desire.I have had it so bad by just being at a red light and it come on me out of the blue and I cannot focus or even move my vehicle from the trembling and the not being able to breathe. So looking like a *****d, someone has to move my vehicle.I cannot keep my grandchildren as I want to all the time.As A teen I drove my life in Houston and in PortAurthor, TX. across the old rainbow bridge, which then was very very high and narrow. I never had a problem.Now if I am in Orange, TX.I have to go all the way around back to Beaumont just to get to Nederland. This is alful and so embarrasing.I have never did drugs, or smoked any kind of weed or anything, I do not drink alcohol either.This is horrible what your Brother is suffering, we do get tired and sick and tired of being sick.I'm sure I should not drive.But I will NOT let this keep me down anymore than it has. I have only one life to live and I am just trying day by day to make it count with a memory somewhere here or there.I do not take medicine, I have tryed them all. They seem to do no good, I do not want to have to depend on med's.Maybe I should. But I choose to keep on keeping on.I keep a paper bag in my vehicle and when I have an episode I breathe in it.I had one the other day thinking I could make it over the ramp, trying my best to make it so desperatly over that ramp and beat this! I kept telling myself I can do it, I can do it. LOLI did'nt.luckily my husband was in his truck behind me. We were both going to fill our gas tanks up on both our vehicles. I stopped the truck in all that traffic, riggs flying by on a one lane overpass ramp. I pulled to the little edge. My husband got in my truck and slowly backed it back down the ramp on the Interstate. I was then ok and went forward out of my way about 4 miles but got to the gas station.Yep, Sounds crazy huh?I am a smart person.( can't spell too good tho) HA! Not missing any marbles LOL HA. I was trying to fight this battle.But I just know I have to go the long way round.Hey I've been hospitalized for this, put on meds, just to depress you. Doctors would disagree with me. But I do not want to be on antidepressants to feel numb inside. I have tryed for many a year, I hope oneday they will go away for good.When I first started having them I was young, did not know what it was.I would wake up in the night and run outside to get air.Go to the ER, then it would be over. It is not that I thought I was dying ... I knew I was! And then when you get to the hospital and they tell you that your vitals are all fine you begin to wonder what in the heck is going on? Everyone looking at you like your crazy! THIS IS REAL!!!!!!!I have the breathing problems in the morning especially and I have taught myself to breath slowly and try to be still, talking about problems seem to bring the episodes on to I have noticed.Your brother is really hurting inside, if not physical then mentally.It hurts not to have the answers to our questions and not be able to be well.The pain is great and we do feel hopeless...Just try to encourage him, talk to him. Really listen.It gets old for the people that care about us to hear or complaints all the time, and this is normal but the feelings he has are real and he has to have someone to be able to keep him going, to care... he has to have a reason to keep living and that only comes from people that love us.I hope things get better for you and your Brother.Kay
    Anonymous 42789 Replies
    • January 18, 2007
    • 06:49 AM
    • 0
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  • I Understand What Your Brother Is Going Through. I Am A 33 Year Old Female And I Suffered With All Same Symptoms For Years. I Have A Lot Of Confidence In My Regular Doctor. After Having These Episodes For Years And Just Fighting Through Them With A Cold Wash Cloth To Wipe Myself Down Until Finally I Would Just Pass Out And Then When I Woke Up After Just A Few Seconds My Body Would Be Totally Calm. My Husband Finally Talked Me Into Going Back To My Doctor After We Ended Up In The Er One Night Because It Seemed Like I Was Having Some Kind Of Seizure, I Could Not Pass Out But I Could Not Come Back To My Self. The Er Dr Told My Husband He Was Going To Give Me An Adavan Nerve Pill After He Had Ran Test For About 2 Hours And Everything Was Fine. The Dr Said If This Pill Brought Me Out Of It And Calmed Me Down I Would Need To See My Regular Dr The Next Day For Panic Attacks. So The Pill Brought Me Out Of It Within About 20 Minutes. My Regular Dr Started Me On Zoloft And Told Me To Take An Adavan With It For The First Couple Months Until The Zoloft Had Time To Take Affect And Then I Could Stop The Adavan But I Would Still Have To Take The Zoloft Probably For 6 Months To A Year To Fix A Chemical Imbalance I Had. I Am 6 Months Into My Medication And I Have Not Took The Adavan In More Than 3 Months At All. I Have Not Had An Attack In More Than 2 Months. In The Beginning The Zoloft Will Trigger The Attacks Without The Adavan Because It Is Trying To Balance Your Body This Is Why It Is Important To Take The Adavan At First. Believe Me I Was Just Like Your Brother I Thought I Was Losing My Mind Or Dying Of A Heart Attack But My Dr Assured Me This Was Not So. I Never Knew How Bad A Panic Attack Could Be Until About 1 Month Before I Started Taking My Medication. I Now Feel Better Than I Have In Years. I Dont Know That This Will Help But It Sure Did Me.As
    Anonymous 42789 Replies
    • January 26, 2007
    • 05:38 AM
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  • I have been reading this thread and others,because I have all the same symptoms. I am 51 and have had these attacks for years. Last month I started having fainting spells on top of the already awful panic attacks. Doc put me on a month long heart monitor, seems I have tacchycardia (sp) But does that cause panic?Also put me on lexapra and ativan.Not helping much. Also afraid to leave the house and live my life,this is awful, whatever it is,just venting and hoping one of us will find an answer..Thanks and good luck,Fair
    Anonymous 42789 Replies
    • February 6, 2007
    • 11:31 AM
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