Discussions By Condition: I cannot get a diagnosis.

My bones hurt! =(

Posted In: I cannot get a diagnosis. 33 Replies
  • Posted By: k333ly
  • May 16, 2008
  • 04:04 PM

I'm really lazy and just copied this from an email I sent my old biology teacher...to see if he had an opinion. I have not been able to see a doctor for this, because I am currently without insurance....
My meds right now are
ortho tri cyclen and wellbutrin sr 150 mg x 2
no problems with the birth control ever, and have been on it for a few years....no problems with wellbutrin at all since january. I currently have been keeping a healthy diet, I excersize a lot , run a few times a week, take a multivitamin everyday! etc


It's Erin McElduff-
You're a very smart guy and know a lot about the human body!

Does this sound like anything serious?


*Rash when I get out of the shower, like tiny red spots all over. Doesn't last long.

*After drinking my lymph nodes are all swollen, kind of hurt but no really. The more drinks, the more swollen and painful. They've been swollen for months now anyways, but I have never been sick in at least 6 months. They haven't grown any though that I've noticed, they're just about an inch big, they just hurt more and are a bit more swollen after a few beers. Hard alcohol doesn't mess me up as much, but after a few beers my neck hurts so bad, like I pulled all the muscles in it. The day after it doesn't hurt as bad, just where my lymph nodes are.

*I had to leave work early the other day and for the past few days I can't catch my breath fully. With no physical activity to cause it- such as at work I was calling service customers and I couldn't leave a message without gasping for air. Still can't talk in full sentences

*I have some growing lump in my mouth (maybe an infected salivary gland??) It's on the floor of my mouth, near my gum line. It was the size of a pea and it was soft, now it's about an inch long and getting hard. Doesn't hurt though. It's not attached to anything though. so could it be a stone with blockage behind it? It just grew recently, I've had it for months. (which I doubt is totally related, but annoying. It doesn;t hurt at all)

*The worst part of it all is my BONES hurt! They really really hurt! It was just my one arm and now both my lower arms and my lower legs hurt constantly. ( I feel no pain in my joints however.)
It gets worse through the day and advil or ibuprofen does nothing. They're getting weaker and I'm getting really tired! I started randomly getting really painful shooting pains through up my leg without doing anything, almost makes me fall over. My arms are just incredibly achy! It may not be bones, but it doesn't feel like muscles or my whole arm. It's just a really deep throbbing annoying pain.


*I've always bruised really easy, but as never this bad. When I went running the other day I came home with golfball to baseball sized bruises ALL over my legs. I can't wear shorts without someone thinking I get abused.


I just really want my arms to stop hurting. My legs aren't as bad. It's really frustrating because I can't do anything and it's getting gradually worse. I'm only 20, I can't possibly have osteoporosis or arthritis could I? Or do I have some kind of evil virus??


Any input would be muchly appreciated!!! =] Thanks!

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33 Replies:

  • Some of your symptoms are serious enough to be looked into. The breathing problem and aching in arms and legs could be caused by a vascular problem or maybe even a heart problem. You could have something autoimmune such as Sjogrens as well, and that alone could give you both vascular and heart trouble. I think you need to see a doctor. Good LuckKiera
    Anonymous 42789 Replies Flag this Response
  • http://www.deltadental.com/images/MouthFloor.jpg that's exactly what the bump in my mouth looks like, same size and everything-except only on one side.
    k333ly 59 Replies Flag this Response
  • I too think you need to go and see doctor as some of your symptoms can be caused by very serious problems.. eg bruising, problems with lymph nodes and bone pain = leukemia (of cause other things can cause those symptoms too.. but it COULD be something serious so dont mess about and go and see your doctor!!) (I lost a young aunt due to leukemia)
    taniaaust1 2267 Replies Flag this Response
  • I don't know...I'm almost afraid to go to the doctor...or then they barely do ANYTHING about it and send me home with a "diagnosis" of fibromyalgia or something.. when I just spent a lot of money for nothing...I think I'll go get that lump in my mouth checked out first and see if that is anything. I haven't been in the woods/field for years, I haven't seen a tick on me since I was around 13 or so. Is there any way the bone pain could be arthritis related? Even my hands are starting to hurt.
    k333ly 59 Replies Flag this Response
  • I don't know...I'm almost afraid to go to the doctor...or then they barely do ANYTHING about it and send me home with a "diagnosis" of fibromyalgia or something.. when I just spent a lot of money for nothing...I think I'll go get that lump in my mouth checked out first and see if that is anything. I haven't been in the woods/field for years, I haven't seen a tick on me since I was around 13 or so. Is there any way the bone pain could be arthritis related? Even my hands are starting to hurt.
    k333ly 59 Replies Flag this Response
  • You have a lump in your mouth that could be caused by Sjogrens syndrome. Sjogrens syndrome can also cause vascular problems that would account for the heavy breathing and it can also give you arthritis pain. Sjogrens and many other autoimmune diseases are all systemic diseases, meaning they can attack multiple parts of your body. See a doctor. Kiera
    Anonymous 42789 Replies Flag this Response
  • Hyperparathyroidism... google it. enlarged lymph nodes, bone pain, fatigue...be sure to have doctor check calcium levels AND parathyroid levels- one doesn't mean anything without the other.
    Anonymous 42789 Replies Flag this Response
  • Look up Hyperparthyroidism. symptoms include possible swollen glands and bone pain. doctors should check for calcium levels and parathyroid levels at the same time. One doesn't mean anything without the other.
    MelanieMac 8 Replies Flag this Response
  • I'm sorry to scare you, but any kind of lump should be looked at for cancer.
    aquila 1263 Replies Flag this Response
  • Thank you for all your replies! I really appreciate it. I doubt it would be anything cancerous. The lump is getting a bit more swollen, but I only notice it every few days. Weirdly enough, yesterday I didn't have much bone pain at all! Today is been on and off. Usually in the mornings it's not that bad, then later and later inthe day it gets worse and worse. Even my hands are starting to hurt.
    k333ly 59 Replies Flag this Response
  • Just an update.The other day at work I was significantly out of breath, which freaked me out worse and made the whole problem worse. I had some blood in my mouth ( from my throat?) and went the hospital since the docors couldn't fit me in. Their diagnosis: Checked for blood clots with blood work and a x-ray no blood clots. Sent me home with an inhaler that kinda works, but not as much as I wish it did. So yeah, told me to go to the doctor to get autoimmune disorders and such checked out in the my blood. Never had that done.Somehow from barely scratching my overly calloused heel on a nail (I mostly gave myself a stone bruise, it never puncted my foot) well I was fine for 2 days and forgot about it and walked around. yesterday I wake up with my foot swollen and 3 red swelling lines coming out of the area in my foot and up my heel. Diagnosis: advanced Cellulitis This is so frusterating! I get cellulitis from a TINY 1/2 cm scratch that didn't even bleed!? I NEVER get skin infections. So Yeah, I guess the only thing wrong with me is ashma, allergies, and cellulitis.Which I have NEVER had allergies or ashma in my whole entire life. So sneezing, no wheezing, no coughing, no itchy eyes, no runny nose, nothing. That's IT. I'm done with doctors. Just done. I can't spend anymore money or waste any more of my time on people who don't look at anything I tell them to and dismiss me with some random common disorder....which I have only one symptom for. Maybe I am a hypochondriac!
    k333ly 59 Replies Flag this Response
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  • I don't know...I'm almost afraid to go to the doctor...or then they barely do ANYTHING about it and send me home with a "diagnosis" of fibromyalgia or something.. when I just spent a lot of money for nothing... I think I'll go get that lump in my mouth checked out first and see if that is anything. . i hate to say this but could maybe part of your problem of the doctors not being all that helpful, be that you are not expressing what you are experiencing very well to them??? Im saying that in referance to your part of your post where you say you'll get lump in mouth checked out first to see if that is anything. When you go to the doctors.. one needs to bring the doctors attention to ALL the SYMPTOMS you have..and then allow them to test whereever they deem to be most relevant first. If you are just going to a doctor and not telling them EVERYTHING eg if you are just focusing on one of your symptoms...one can hardly expect them to easily come to the right diagnoses.................... As far as fibromyalgia goes.. it IS a genuine illness and is often present along with other conditions. If FM is part of your issue.. it would be helpful to know..as then you can research to find out in what other issues FM sometimes appears in if the FM diagnoses dont cover all your symptoms. It may help to lead you to a full diagnoses. An Fibro diagnoses needs to be done properly..and isnt just a waste basket diagnoses a doctor throws someone into cause they have pain happening everywhere. Fibromyalgia diagnoses should be based on testing Fibro tender points with a certain amount of pressure.. one needs so many for a proper fibro diagnoses to be made. http://www.immunesupport.com/fibromyalgia-tenderpoints.htm ...................... If you are telling your doctors everything.. and they arent sending you for testing to rule out autoimmune things etc etc. Please go to another doctor. What's more important.. money or your life?
    taniaaust1 2267 Replies Flag this Response
  • I told the gal (nurse PRACTIONER)-couldn't get a doctor at the hospital.That I had ALL The symptoms listed above.BOne pain = no explanation Lump in mouth= see a dentistblood in mouth= you scratched the very back of your throat somehow...and everything else is ashma/allergy related. I made SURE I told them everything. Doesn't matter. As I said before...I"m done. =( It's pointless.
    k333ly 59 Replies Flag this Response
  • Sounds to me like Addison's Disease. Make sure your doctor checks you for it:http://en.wikipedia.org/wiki/Addison's_disease You need to be under the care of an Internist who will determine what this is. ER's are not going to do this for you. Find someone you can work with.
    Monsterlove 2921 Replies Flag this Response
  • I told the gal (nurse PRACTIONER)-couldn't get a doctor at the hospital.That I had ALL The symptoms listed above. BOne pain = no explanation Lump in mouth= see a dentistblood in mouth= you scratched the very back of your throat somehow... and everything else is ashma/allergy related. I made SURE I told them everything. Doesn't matter. As I said before...I"m done. =( It's pointless. ok ((hug)) If your doctor cant give an answer for something.. insist they then send you to a specialist who can. eg with that bone pain.. they managed to come up with nothing. Even if they then try to get rid of you by saying it's probably just Fibromyalgia (without the proper checks).. you can then insist they refer you to someone who specialises in it. You probably need to see more than just an ordinary doctor.
    taniaaust1 2267 Replies Flag this Response
  • All the symptoms goes back to 1 of the medications you are taking and a allergic reaction to it.Wellbutrin sr 150 mg x 2I was taking that medicine and only that medicine to stop smoking. After two months of taking it. My hands started to swell up and puff up, half my face went slack (like tom cruises face in that movie), my bones throughout my body hurt, my chest swelled up and it was hard to breath. I went back to my Doctors and they were telling me all sorts of different diseases. Which I was like uhm, no I never had any of those diseases that in my life. I did some research on the web and found out others taking Wellbutrin were having the same problems as I was. After 1 week and half after stoping Wellbutrin my body went back to normal.
    Anonymous 42789 Replies
    • October 14, 2008
    • 11:42 AM
    • 0
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  • okay, so the doctors just said I have stage 2 COPD and Hypothyroidism. Got off the wellbutrin, still have seizures and was put on tegretol. God prednisone withdrawls hurt. So I can't take narcotics because I'll have fits, and have a huge prescription to tramadol. Go me. Only 3 years of meth abuse, 7 years of smoking cigs and pot and now I'm already killing myself. Quitting smoking and drinking tomorrow. I'm depressed.
    k333ly 59 Replies
    • October 14, 2008
    • 10:59 PM
    • 0
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  • Hi K, Are you still following this thread? Just checking up on you. It sounds like so many of us. You have multiple medical issues which can sure lead to being depressed. It is very frustrating to look for answers about health issues. Please let us know how you are doing. There is a possibility of Lyme disease, but you haven't gotten enough from doctors to really help you understand much. Lyme and other tick borne diseases can cause the pain and the breathing problems (Babesia causes breath and bruising, etc.) and can cause depression, and lots of other things. I have had a couple of lumps here and there which were also caused my Lyme. But you do need to find out WHAT your lump is about and probably have it removed and sent to the pathologist. If you do have Fibromyalgia, it can be caused my Lyme disease or other infection you are dealing with... One of the very telling symptoms is that your symptoms are WORSE after alcohol! That is very much a Lyme thing. That is one of the questions you have to answer on the basic Lyme questionnaire. I don't drink so I have no experience with that. You do not have to be out hiking in the woods to get this. If you are near a bush from a downtown area, if you have pets or have friends with pets, if birds can stop at your home or window sill, etc. The tiny ticks that we don't see are the nymph stage of the deer tick. They are so tiny that we don't usually see or feel them. Because of that, we have NO idea that we might have Lyme disease. Where do you live? I would get to a doctor who will REALLY sit down with you and go over things. ER's are mostly only good if you are bleeding or a bone is sticking out, they function with life and death pretty well, but tricky illnesses are best for your internist or a specialist. Good Luck and don't give up looking. It can take a lot of patience and some time to get a decent diagnosis. At your tender age, you should not be having such issues. Work to get healthy and begin a new effort to take good care of yourself. It sounds like you are trying! We on this forum can help support you.
    Anonymous 42789 Replies
    • October 15, 2008
    • 06:42 PM
    • 0
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  • hey, i think i have a similar problem, started off with little red dots, look like blood coloured burst blood vessels under my skin, they started appearing randomly on my torso a few months ago, now gradualy appearing on my upper and lower arm,.then the bruises started! i never bruise easy in the past, but latley i bruise even from the lightest of knocks :/ and then the bone pain started.. wrists ankles, arms legs back and now my neck, the pain isnt too bad i suppose but its not nice either, gets worse everyday, i dont know if i have some sort of vitimin deficiency or.. but its kinda scary :/ im 23 and work as a bartender by the way, so i work nights and dont get as much sun as i should be getting, i dont know if that has anything to do with it? vit D deficiency perhaps? anyway , i hope everything go's okay for you, goodluck :)
    Anonymous 42789 Replies
    • September 4, 2010
    • 04:23 AM
    • 0
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  • my bones hurt alot. i am only 17 years old. i've only broken finger bones but my arm and leg bone sometime feel like i broke them. i don't have to do annything i can be sitting down on the couch and i get this feeling in my leg or arm. once i have it its like i really broke it i can't do any thing with it. if its my leg i can't get up and walk or i will fall or if its my arm i can't move it or else it will hurt 20 times more.does anyone know what is wrooong with my bones?
    Anonymous 42789 Replies
    • November 30, 2010
    • 04:29 PM
    • 0
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