Discussions By Condition: I cannot get a diagnosis.

My 5 Year Old Needs Help

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Annie8201
  • January 25, 2007
  • 04:45 AM

We are scrambling our brains trying to figure out what is going on with our 5 year old son. We are getting bounced around Dr.'s and no help! He has had headaches DAILY on his forehead, above ears, and back of neck; sore throat; feeling fatigued; a mildly stuffy nose and elbow/knee pain for the last four months. It never seems to go away. Tylenol, Ibuprofen, decongestants don't help. Had his adenoids removed - no help there. MRI of head showed mild sinus disease in maxillary, ethmoid and sphenoid sinuses. He's been on nasal steroid spray and antihistamine for 1 month - symptoms still there. He's also started on low grade fevers occasionally in the evening, maybe 1-2x per week. Been on different antibiotics for other illness and didn't seem to make a difference. Our poor little guy is suffering and I don't know what to do!!! Allergist? Neurologist? Rheumatologist? Honestly it sounds like sinus infection to me, but there doesn't seem to be one. I had a doosey that mimicked all if the symptoms, but there doesn't seem to be an infection. Did some bloodwork and his SED rate was 50 vs. 10, which is pretty high but isn't a specific indicator of anything, just that something is going on. Any ideas???

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7 Replies:

  • my nephew had some not all of those symtoms, and they found that he had a leaky heart valve.
    Anonymous 42789 Replies
    • January 25, 2007
    • 03:28 PM
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  • We are scrambling our brains trying to figure out what is going on with our 5 year old son. We are getting bounced around Dr.'s and no help! He has had headaches DAILY on his forehead, above ears, and back of neck; sore throat; feeling fatigued; a mildly stuffy nose and elbow/knee pain for the last four months. It never seems to go away. Tylenol, Ibuprofen, decongestants don't help. Had his adenoids removed - no help there. MRI of head showed mild sinus disease in maxillary, ethmoid and sphenoid sinuses. He's been on nasal steroid spray and antihistamine for 1 month - symptoms still there. He's also started on low grade fevers occasionally in the evening, maybe 1-2x per week. Been on different antibiotics for other illness and didn't seem to make a difference. Our poor little guy is suffering and I don't know what to do!!! Allergist? Neurologist? Rheumatologist? Honestly it sounds like sinus infection to me, but there doesn't seem to be one. I had a doosey that mimicked all if the symptoms, but there doesn't seem to be an infection. Did some bloodwork and his SED rate was 50 vs. 10, which is pretty high but isn't a specific indicator of anything, just that something is going on. Any ideas???I dont' want to scare you but have you seen a neurologist? A friends grandson was having the headaches for months and being treated for sinus infections etc - 5 yrs old. Doctor said he didn't normally do MRI'S AND cat SCANS on children but something told him something more was going on with this child. Turns out he had a malignant brain tumor. One of his symptoms was nausea when first sitting up in the morning and they were told by the speicalists that is a symptom of brain tumors. Anyway, they immediately opted to go ST. Judes Childrens Hospital for treatment and surgery. They could not say enough good about St. Judes. They cover all expenses that your insurance will not, they assist in housing for familys due to extensives stays etc. If it turns out to be this type of diagnosis please consider St Judes. Please get a 2nd opinion, no one should be having daily headaches, something is wrong, keep searching until you find the answer.
    Grammy_Cindy 1 Replies
    • January 27, 2007
    • 03:52 PM
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  • Have you tried a chiropractor?
    Anonymous 42789 Replies
    • January 28, 2007
    • 07:26 PM
    • 0
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  • We are scrambling our brains trying to figure out what is going on with our 5 year old son. We are getting bounced around Dr.'s and no help! He has had headaches DAILY on his forehead, above ears, and back of neck; sore throat; feeling fatigued; a mildly stuffy nose and elbow/knee pain for the last four months. It never seems to go away. Tylenol, Ibuprofen, decongestants don't help. Had his adenoids removed - no help there. MRI of head showed mild sinus disease in maxillary, ethmoid and sphenoid sinuses. He's been on nasal steroid spray and antihistamine for 1 month - symptoms still there. He's also started on low grade fevers occasionally in the evening, maybe 1-2x per week. Been on different antibiotics for other illness and didn't seem to make a difference. Our poor little guy is suffering and I don't know what to do!!! Allergist? Neurologist? Rheumatologist? Honestly it sounds like sinus infection to me, but there doesn't seem to be one. I had a doosey that mimicked all if the symptoms, but there doesn't seem to be an infection. Did some bloodwork and his SED rate was 50 vs. 10, which is pretty high but isn't a specific indicator of anything, just that something is going on. Any ideas???This is the immune system. He has a toxic overload and he is developing allergies and allergic responses.Most likely he has parasites in his guts and leaky gut syndrome.What's on his plate can be a path to healing or a path to sickness.http://www.beyondhealth.com/articles.htmRead this articles.You are going to need a Doctor of Integral Medicine.
    Anonymous 42789 Replies
    • January 28, 2007
    • 07:30 PM
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  • Its sounds like an auto immune problem ? try going to a pediatric rhuematologist and at least get started with blood work.The whole shabang.I hope and Pray he'll be o.k. I'm having the same problem of finding a diagnosis for my 3 1/2 yr old.Best of Luck Dawn
    dawns6 29 Replies
    • January 29, 2007
    • 02:45 AM
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  • What foods does he eat? Is he thirsty? Does he drink a lot of water? He should be drinking at least 5-6 cups water each day. Dehydration is a major cause of chronic headaches. I would suggest an allergist who specializes in food allergies. Could be something he is eating. Keep a food journal and write down what he eats and when he gets a flare up...try to do this for a week or two and see if you find a pattern. Sinus infections are often fungal and an antibiotic will just make the problems worse. Check into candida as a possibility. Go to www.wholeapproach.com and take their questionnaire. How is his digestion? Is he constipated? I agree that a chiropractor may be helpful...try to find one who is also a certified kinesiologist. Alternative medicine can often help in areas that Western medicine just can't. Hope this helps.DOM
    acuann 3080 Replies
    • January 29, 2007
    • 03:52 AM
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  • Have your house checked for mold/mildew spores. They can be very dangerous. Also have him tested for allergies and perhaps put on syrum shots if required. I had allergy shots from the time I was 6 until I was 12 or 13. Had adnoids out etc.
    jackrorabbit 113 Replies
    • January 29, 2007
    • 05:53 PM
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