Discussions By Condition: I cannot get a diagnosis.

My 15 year old daughter is so sick - no diagnosis after 1.5 months

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • April 17, 2009
  • 05:12 PM

My daughter first became sick with what felt like a pain under her tongue and feeling tired. The Dr. said it was a virus and said to give it a week. After a week he gave he amoxicillin. The pain increased over time and new symptoms began to appear. We returned he started her on prednisone. She preceded to get really sick and her dr. sent her to an ent dr. he tested her for lymes. the ilsa test showed positive , but the western blot igG band 41 was active and western blot IgM band 23 was reactive - but overall her test was negative. We also went to emergency room and she had a mri- which revealed nothing. She was also tested twice for mono it was neg.

She then went to a neurologist because of weird sensations of not know where her extremities were. She thought her head or foot was one place but it was really somewhere else. She has been in bed for 3 weeks know. The neurologist gave her a spinal tap and were waiting for the results. She's checking for lymes and ms. We were told it will be 2 weeks till we hear back. we have half a week left to week.

As far as lymes we live on the west coast ansd shes outside all of the time.
working with horses.

My daughter has not be able to go to school 3 weeks now. Her symptoms are Brain fog,migraines, light and sound sensitivity, swollen gland under tongue, periodic red sore on the inside side of her mouth, migrating joint pain, swollen hands, weird sensory perception(mentioned above)face is flushed, horse voice, tired and lethargic, pain in her back.......

We have gone to all the best drs and I never realized at this point we still would not have a diagnosis. Any one else experience something like this?

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  • My daughter first became sick with what felt like a pain under her tongue and feeling tired. The Dr. said it was a virus and said to give it a week. After a week he gave he amoxicillin. The pain increased over time and new symptoms began to appear. We returned he started her on prednisone. She preceded to get really sick and her dr. sent her to an ent dr. he tested her for lymes. the ilsa test showed positive , but the western blot igG band 41 was active and western blot IgM band 23 was reactive - but overall her test was negative. We also went to emergency room and she had a mri- which revealed nothing. She was also tested twice for mono it was neg.She then went to a neurologist because of weird sensations of not know where her extremities were. She thought her head or foot was one place but it was really somewhere else. She has been in bed for 3 weeks know. The neurologist gave her a spinal tap and were waiting for the results. She's checking for lymes and ms. We were told it will be 2 weeks till we hear back. we have half a week left to week. As far as lymes we live on the west coast ansd shes outside all of the time.working with horses.My daughter has not be able to go to school 3 weeks now. Her symptoms are Brain fog,migraines, light and sound sensitivity, swollen gland under tongue, periodic red sore on the inside side of her mouth, migrating joint pain, swollen hands, weird sensory perception(mentioned above)face is flushed, horse voice, tired and lethargic, pain in her back....... We have gone to all the best drs and I never realized at this point we still would not have a diagnosis. Any one else experience something like this?Hi looking4ananswer,The symptoms you have described are consistent with meningitis, which is an inflammation of the brain and spinal cord. Meningitis can be a primary viral or bacterial illness BUT it can also develop secondary to Lyme Disease.Viral meningitis is usually a more minor illness without the severity of signs & symptoms that your daughter is exhibiting. Bacterial meningitis, whether primary or secondary, is a much more serious illness. Diagnosis is through symptoms, exam, and, as she has already had, a spinal tap (lumbar puncture/LP). The cerebrospinal fluid is analyzed for the level of glucose, and also for the presence of DNA from the Borrelia burgdorferi bacteria, which is the cause of Lyme Disease, and any other bacterial presence.Treatment for meningitis is antibiotics, usually oral amoxicillin, doxycycline, or cefuroxime but sometimes intravenous antibiotics may be necessary to treat a persistent infection. Treatment usually lasts 2-4 weeks but may be longer, if needed.You mentioned that your daughter has already had a course of oral amoxicillin. How many days did she take it (or is she still taking it)? Also, are her symptoms staying consistent or are they continuing to worsen?Bacterial meningitis can cause serious complications so I would think that she should be taking an antibiotic now while awaiting the LP results. If she is not, you need to contact either the Neurologist or your daughter's Primary Care Doc. Give them full details of her current symptoms and ask if she should be taking an antibiotic.Best regards to you both,John<
    JonMac 165 Replies Flag this Response
  • the lp came back positive for lymes, she is starting iv antibiotics today for two weeks to start. she also has an appt. with a children's infectious disease dr. I hope so much we start to see some improvement. On thursday and friday she woke up and could not see for over a minute! Thanks for the advice. Ill keep you all posted.
    Anonymous 42789 Replies Flag this Response
  • the lp came back positive for lymes, she is starting iv antibiotics today for two weeks to start. she also has an appt. with a children's infectious disease dr. I hope so much we start to see some improvement. On thursday and friday she woke up and could not see for over a minute! Thanks for the advice. Ill keep you all posted.Hi again looking4answers2,Although having Lyme Disease is certainly nothing to cheer about, it's sure GREAT that your daughter has finally been diagnosed! She is certainly a less-than-well young lady at present.Is she being hospitalized now or will she have her IV antibiotics administered at home?My best to you both!John<
    JonMac 165 Replies Flag this Response
  • My daughter first became sick with what felt like a pain under her tongue and feeling tired. The Dr. said it was a virus and said to give it a week. After a week he gave he amoxicillin. The pain increased over time and new symptoms began to appear. We returned he started her on prednisone. She preceded to get really sick and her dr. sent her to an ent dr. he tested her for lymes. the ilsa test showed positive , but the western blot igG band 41 was active and western blot IgM band 23 was reactive - but overall her test was negative. We also went to emergency room and she had a mri- which revealed nothing. She was also tested twice for mono it was neg.She then went to a neurologist because of weird sensations of not know where her extremities were. She thought her head or foot was one place but it was really somewhere else. She has been in bed for 3 weeks know. The neurologist gave her a spinal tap and were waiting for the results. She's checking for lymes and ms. We were told it will be 2 weeks till we hear back. we have half a week left to week. As far as lymes we live on the west coast ansd shes outside all of the time.working with horses.My daughter has not be able to go to school 3 weeks now. Her symptoms are Brain fog,migraines, light and sound sensitivity, swollen gland under tongue, periodic red sore on the inside side of her mouth, migrating joint pain, swollen hands, weird sensory perception(mentioned above)face is flushed, horse voice, tired and lethargic, pain in her back....... We have gone to all the best drs and I never realized at this point we still would not have a diagnosis. Any one else experience something like this?You could check about gluten sensitivity or Celiac Disease.
    Anonymous 42789 Replies
    • November 10, 2010
    • 11:35 PM
    • 0
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