Discussions By Condition: I cannot get a diagnosis.

My 13 year old is having hot flashes...

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • February 28, 2007
  • 11:19 PM

My daughter is 13 years old and recently began complaining of feeling "really hot." She says it starts in her face and works down to the bottom of her trunk. She also has complained of problems falling asleep and staying asleep. Usually a hot flash is why she woke up.

The hot flashes were only every couple of days, and now are almost daily. I took her to the doctor who ordered blood tests and an ultrasound of her upper right quadrant. For the most part, the blood tests came back normal. Abnormal high levels were found for Calcium and Bilirubin, CO2 was high-normal. The ultrasound came back normal.

I am scaring myself to death because all I can think of is the paternal aunt that died as a child with liver failure and leukemia. If anyone has any ideas or experience with any of this, please respond. Thank you.


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12 Replies:

  • does she have any abdominal symptoms?? Has she had the seratonin in her blood as well as the seratonin breakdown of 5-HIAA in her urine measured?? nueroendocrine tumours can leak hormones which cause hot flashes, they usually aren't picked up via ultrasound and typical bloodwork as well. ( Not trying to scare you but its best to rule out the worst stuff first) What about thyroid tests?? Is she on any medications?
    prettyprettypumpkin 47 Replies Flag this Response
  • No specific abdominal symptoms. No urine analysis have been done at all, yet... I'm working on a ref to a ped endocrinologist right now. I actually have an aunt who has a pituitary tumor, as we speak! I think tsh came back normal. Her dr put her on amitriptyline (sp?) to help her sleep, that's all she has ever taken. She has an appt with a ped gi dr i april, regarding the bilirubin levels. I am just frightened of what may be diagnosed. She's my only child and I couldn't bear it if she suffered. And I am one of those silly people that cried when I had to have our pet gerbil put down... so I am kind of wrecked right now.Thank you for your response.Jeri
    Anonymous 42,789 Replies Flag this Response
  • Be strong. Believe it or not regardless of what it is, its going to be a lot harder on you than it is on her. Is she taking amitryptaline because she can't sleep from the hot flashes or another reason?? sometimes amitryptaline can cause flushing.
    prettyprettypumpkin 47 Replies Flag this Response
  • The amitryptaline was prescibed to help her fall asleep ( she would lay awake for hours, wanting to fall alseep) and stay asleep ( the hot flashes would wake her). The flushing was present before she started taking the med, but I imagine if it is a side-effect, it could cause the symptoms to worsen. Here's one for the record books... her father just called me ( he lives in another state, divorced since 1995) and informed me that he is being tested for leukemia! If it doesn't rain it pours, right?Feels like right now, I'm just going to have to hurry up and wait... Daughter is going with it, just trying to live with the hot flashes. She doesn't know that I am worried about what could be wrong with her. She signed up for soccer and is draining my checking account for equipment. I'm just going to let her carry on as usual and pray! Thanks for your responses, pumpkin.Jeri
    Anonymous 42,789 Replies Flag this Response
  • Has she started her cycle? If so, what is it like? Does she have any low back pain or discomfort? How frequent is her urination and does she wake up at night to urinate? Prior to the hot flashes did she have the flu or flu like symptoms? Prior to the hot flashes was she taking any antibiotics?Have you taken her temp and is it normal or low grade fever? Does she also have sweating with the hot flashes? Does she have a flushed face or red palms during the day?Does she have a dry mouth with thirst and does she drink a lot of water during the day?Does she crave sweets and have any blood sugar signs? Ie fainting or lightheadedness or irritability if goes without food. Sorry for all the questions, but there is a reason your daughter is having these symptoms, and I don't think your doc is being thorough enough. A naturopathic or other alternative practitioner may be able to pinpoint more clearly what is happening. In Chinese medicine hot flashes are a sign of yin deficiency, and it is possible she is showing this imbalance due to her growth, but it could be something else as well. If you could answer these questions it will help.Best wishes.DOM
    acuann 3,080 Replies Flag this Response
  • DOM, Her cycles started 2 years ago at age 11. Very regular, lasting about a week. Discomfort is mainly abdominal pain for the first 2 days that she treats with ibuprofen. Urination is not abnormally frequent. She has woken at night to go to the bathroom, but it's usually once a night. Since the Amitryptaline, she pretty much sleeps through the night. Temp is normal. Her face turns red, broad red splotches on her cheeks. Hadn't thought to look at her hands, though. She has stated that the hot flashes start at her head and work through upper body and then lower trunk... but nothing about the arms or legs. Sometimes there is sweating, sometimes not. I've noticed that exercise brings on hot flashes, too. No complaints of dry mouth or excessive thirst. She keeps a bottle of water with her and sips throughout the day.She loves sweets, as do I... she does eat more than she should, but I attested that to boredom. I appreciate your opinion. I am going to have her see 2 different specialists at this time... Finally got the referral to the pedi endocrinologist. If all else fails I would be open to ideas about natural remedies, but I must first rule out worst-case scenarios.thank youJeri
    Anonymous 42,789 Replies Flag this Response
  • Please do not listen to anything Shula or Acuann tell you. My sister just passed away because Shula and Acuann told her that her doctor was wrong and she did not have a serious condition. Acuann even told her to get acupuncture to get healed. These people are going to be investigated for practicing medicine without a license. Shula and Acuann are specifically wanted in connection with my sisters homocide. Thats right homocide. If she would have listened to her doctor instead of these internet quacks she would still be here today. Rest assured I will do everything in my power to put these two behind bars and shut this website down for good.
    Anonymous 42,789 Replies Flag this Response
  • Thank god someone is going to prosecute those two. They have been doing this for awhile now, telling folks to leave their doctors and goto acupuncturists. I knew this would eventually happen, my prayers are with that poor girls family. I hope Shula and Acuann rot in prison for what they are doing on here.
    Anonymous 42,789 Replies Flag this Response
  • Well...I'm 13 and I get hot flashes also. I've been diagnosed with fibermyalgia. That might explain sleep problems. Does she have lots of muscle or joint pains?
    Anonymous 42,789 Replies Flag this Response
  • I have a 15 year old haviing the same issues, she has not been to doctor yet, I am personally scared thinking every possible bad scenerio.I am have been looking for different answers and options all over the web. Any advice would be greatly appreciated Janet
    janet77 1 Replies Flag this Response
  • I'm 13 and I get hot flashes a lot.. :/ My mom can be freezing and I'll be really hot. They alaays last about 10-15 minutes...And it BURNS ME UP. I'm actually having one right now, that's why I looked this up! I'm scared, do you think it's something serious?! I REALLY don't wanna die anytime soon...Should I tell my mom?
    Anonymous 1 Replies Flag this Response
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  • I'm 15 years on I started my period at 14 I'm on birth control its the implant. And I've been having hot flashes I pee a lot my shoulder back and neck have been hurting and or irritated and If I feel one hair on me I constantly itch it and today my temp was at 100 for atleast 2 minutes . And I get pains under my ribs and really bad cramps even when I'm not on my period.
    Anonymous 1 Replies Flag this Response
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