Discussions By Condition: I cannot get a diagnosis.

muscle weakness, need diagnosis

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: pinkjulielynn
  • March 17, 2007
  • 01:10 AM

I am a 29 year old female experiencing increasing muscle weakness. I have a normal brain and spinal MRI, a normal bone marrow biopsy and chest x-ray and a normal EMG. My blood tests for myastethis gravis, lupus, AIDS, and Rhem. Arthritis are all normal. Here are my symptoms:

muscle weakness (unable to climb stairs, lift 20 lbs.) (3 weeks)
stable low wbc (for 3 years)
eye inflamation and infection (staphyloccal blepharitis, papillary conjuctivitis) (5 weeks)
colitis (decreased strength in spincter muscles) (3 months)
hand tremors

My neurologist, the hematologist, and internal medicine doctor have said there is nothing they can do with me but today I couldn't even put on my own pants.

Reply Flag this Discussion

2 Replies:

  • Ask for a lumbar puncture. These tests are very good but painful! They seem to be the window to your health and show what a blood test will not.I had one with many of the symptoms you have and I have been diagnosed with MS at 39.
    Anonymous 42789 Replies Flag this Response
  • My Niece (19) At Time Just Turned 20, Was Diagnosed With A Muscle Diease Called Dermatomyositis, She Got So She Could Not Lift Her Arms Above Her Head To Wash Hair, It Is A Diease That Destroys The Muscle, At One Time She Could Not Move From Her Neck Down, She Has Really Been Sick And Is In Hospital Not You Might Want To Check It Out. It Took Them Along Time To Find Out What Was Wrong With Her.
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.