Discussions By Condition: I cannot get a diagnosis.

muscle pain and cardiomyopathy

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: jaymitowv
  • October 27, 2007
  • 04:22 AM

:confused: Wondering if anybody can help. I have been have problems with muscle pain for more than years. Pain is mainly in thighs and lower back and upper arms. pain is constant but gets much worse with exertion. over the years ive had many tests and been found to have dilated cardiomyopathy, sleep apnea, growth hormone deficiency, and carpal tunnel. have been treated for all this and nothing improves. when i see neurologists, they say they dont know what it is but since its not killing me they would just call it fibro and treat it as such. none of the meds from neurologists or pain clinic help at all. seems like there has to be some underlying condition tying all this together. still able to function but in serious pain. any suggestions would be appreciated. also need doctor who specialises in metabolic muscle diseases. thank you

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3 Replies:

  • It is Fibromyalgia. To treat it, you need a Bioset practicioner. Find one close to you and go. www.bioset.net trust me...all the neurologists in the world aren't going to help. This will. I am living proof. My story is long. My recovery was not. best wishes, mommy cat:)
    mommy cat 1,654 Replies
    • October 29, 2007
    • 11:22 PM
    • 0
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  • Dilated cardiomyopathy can effect all aspects of your life. When was the last time you saw your cardiologist? What is your ejection fraction? Do you have pulmonary venous hypertension?
    rad-skw 1,605 Replies
    • October 31, 2007
    • 08:24 AM
    • 0
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  • Also is the muscle pain lingering or just a feeling of over-taxed muscles such as you might get by climbing stairs.
    rad-skw 1,605 Replies
    • October 31, 2007
    • 08:29 AM
    • 0
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