Discussions By Condition: I cannot get a diagnosis.

Multiple tests - No diagnosis. Please help!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: sazer15
  • February 11, 2011
  • 03:45 PM

My mother-in-law was a healthy 49 year old (about 150lbs) woman up until a year ago.
Mid January 2010 she got the flu. About 2 weeks after that she started to experience this:
- Waking up out of a dead sleep by "jolts" through her arms and sometimes legs. The jolts come in waves and are very uncomfortable. They are a burning/tingling sensation just underneath the skins surface.
- After each wave of the "jolts" she experiences serious nausea, wretching, and diarreah.
- Frequently, but not always, she will experience extreme exhuastion along with these other other symptoms. Sometimes the exhaustion is so bad she can't walk.
- The "jolts" will subside if she walks around but come back as soon as she lays down and starts to sleep.
What we do know is that it is very cyclical. The jolts always start between 6-7am. The nausea doesn't go away regardless of whether she is sitting, or standing. Sometimes she will feel better after lunch but will ALWAYS feel better by 10pm.
- Also, we have ruled out environmental as she has experienced this in Nova Scotia (where we are from), Toronto, and Boston (We have been to the Lahey clinic looking for results).

Here are things that she did/happened that were a little different prior to when all this started.
- She went to a "jiggle gym". You sit/stand on a machine that vibrates you. She did not like this and did not go back.
- My husband and I returned from Queretaros, Mexico from a mission trip right before she was sick. Neither him or I got sick on the trip but thought maybe we brought something back?

So far she has seen multiple doctos (regular, gastro, general internal, homeopathic, nerologist, etc) and had many, many tests (blood work, xrays, urine tests, biopsy's, colonoscpy, etc) and everything has come back "normal". She has tried multiple prescriptions and nothing has worked. She went on a gluton free diet for 6 months because a doctor told her she had celiac disease. She does not and the diet didn't help. She has lost over 30 lbs and is down to 120 last we checked.

We are desparate and need help!
P

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4 Replies:

  • Hi, I myself have condition which causes monoclonus http://en.wikipedia.org/wiki/Myoclonus as you described you mother-in-law having, but not at a certain time of the day. Your mother-in-law thou doesnt sound like she has the condition which has caused myoclonus in my case (thou the condition I have can be triggered off by the viral illnesses). Anyway.. check out the myoclonus link I put above and maybe use this medical term to search instead of "jolts". best luck in finding the exact cause
    taniaaust1 2267 Replies
    • February 12, 2011
    • 04:02 AM
    • 0
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  • Has she been tested for diabetes? http://www.wrongdiagnosis.com/d/diabetes/symptoms.htm Or possibly anemiahttp://www.wrongdiagnosis.com/p/pernicious_anemia/symptoms.htmhttp://www.wrongdiagnosis.com/a/anemia/symptoms.htm
    gr8tful 175 Replies
    • February 12, 2011
    • 08:08 AM
    • 0
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  • My mother-in-law was a healthy 49 year old (about 150lbs) woman up until a year ago.Mid January 2010 she got the flu. About 2 weeks after that she started to experience this:- Waking up out of a dead sleep by "jolts" through her arms and sometimes legs. The jolts come in waves and are very uncomfortable. They are a burning/tingling sensation just underneath the skins surface.- After each wave of the "jolts" she experiences serious nausea, wretching, and diarreah.- Frequently, but not always, she will experience extreme exhuastion along with these other other symptoms. Sometimes the exhaustion is so bad she can't walk.- The "jolts" will subside if she walks around but come back as soon as she lays down and starts to sleep. What we do know is that it is very cyclical. The jolts always start between 6-7am. The nausea doesn't go away regardless of whether she is sitting, or standing. Sometimes she will feel better after lunch but will ALWAYS feel better by 10pm. - Also, we have ruled out environmental as she has experienced this in Nova Scotia (where we are from), Toronto, and Boston (We have been to the Lahey clinic looking for results). Here are things that she did/happened that were a little different prior to when all this started. - She went to a "jiggle gym". You sit/stand on a machine that vibrates you. She did not like this and did not go back. - My husband and I returned from Queretaros, Mexico from a mission trip right before she was sick. Neither him or I got sick on the trip but thought maybe we brought something back? So far she has seen multiple doctos (regular, gastro, general internal, homeopathic, nerologist, etc) and had many, many tests (blood work, xrays, urine tests, biopsy's, colonoscpy, etc) and everything has come back "normal". She has tried multiple prescriptions and nothing has worked. She went on a gluton free diet for 6 months because a doctor told her she had celiac disease. She does not and the diet didn't help. She has lost over 30 lbs and is down to 120 last we checked. We are desparate and need help!P My symptoms were almost identical . . . my Dr. finally came up with Hepatitis A
    Anonymous 42789 Replies
    • February 13, 2011
    • 07:14 PM
    • 0
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  • Hi guys, Thanks for the suggestions. We went back to Boston, she had more tests including 2 MRIs which showed nothing. The doctor then said she was going to try her on hormonal replacement therapy. I am VERY happy to report that we are having great results with this. Up until last week it was something like 27 days with very minimal symptoms which only lasted a short time in the morning. However, she needed a refill on her prescription and her family doctor was reluctant to do it as hormonal replacement drugs can cause cancer if taken too long. So she started trying a more "natural" replacement and has now been severly sick for two days (same symptoms as my post in #1). She has started the hormonal drugs again that she was first prescribed and we are now waiting and praying that they will start working soon (today is only the second day). I can keep this thread going and keep updating you if anyone wants more information. Just let me know. Thanks guys!
    sazer15 1 Replies Flag this Response
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