Discussions By Condition: I cannot get a diagnosis.

Multiple symptoms...Parathyroid? More than 1 disorder?

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • August 1, 2010
  • 08:38 AM

Basic Info:
I am a 19 year old male, 5'11", around 200lbs, Caucasian
Prescriptions:
Adderall XR, Gabapentin, Lamotrigine, Ambien
Symptoms:
I have dealt with recurring periodic depression since 14 years old which is exacerbated by stress and also suffer from mild mood swings, irritability, difficulty concentrating, hypersensitivity to certain sounds, insomnia(as I type this I have been nearly 48 hours without sleep), and forgetfulness. I also think it is odd that I reached my full adult height and was able to grow a beard around the age of 14 as well. I expected to continue growing to a height similar to my father(6'4") or his brother(6,7"). The above prescriptions seem to help a lot (last 6 months) but I included the mental symptoms in case they are somehow related.
My physical symptoms are periods of nausea and upper abdomen pain, lack of appetite, frequent throat and sinus infections since childhood, feeling lightheaded(especially upon standing), frequent urge to urinate, inability to urinate( I often have to push very hard to urinate and this can sometimes take upwards of 5 mins. Once I do begin urinating, I often release a normal amount of urine but sometimes only a trickle.), occasional burning sensation after urination or ejaculation accompanied by an extreme urge to urinate(but only able to produce trickles), and inconsistent ejaculation time during sex(ranging from less than 3min all the way to having difficulty achieving an erection and sex upwards of 30min). I also feel groggy upon waking from sleep whether I have had 2 hours of sleep or 12 and have difficulty getting out of bed.
I recently had my prostate checked and the doctor said it felt normal and had some basic lab work done. The labwork showed that I have a slightly high calcium level. The doctor wanted additional lab work done but I do not currently have insurance but I will have in the near future. I also have larger than normal tonsils and adenoids. I have lost 30lbs. in the last 4 months because I am never hungry which I initially thought was because of my adderall, however, I feel no difference in appetite between the days I take it and the days I do not. My sister and my father are both hypoglycemic and I have diabetic relatives on both sides of the family so this is also a possibility. Wouldn't the initial lab work have shown a sugar abnormality? I do not use recreational drugs except for the occasional joint or beer( i'm a college student). I have exhausted many hours researching this and can't seem to figure out what the problem is. Other than the above symptoms, I'm a pretty healthy, strong guy with a resting heartbeat between 60 and 75. I enjoy kickboxing, wrestling, and other physical activities but I am finding that my stamina is decreasing. If anyone out there can please help connect the dots or find a relationship between my symptoms, I would deeply appreciate it.

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7 Replies:

  • Hi there.Just a couple of thoughts. One is that if you are having sinus issues, are you taking decongestants? If yes, that could explain the difficulty in urination. They can do that. Also, please check out the book "Too fast too bright too loud too tight" about sensitivity processing disorder. I think you may find some tips in there, it stuck out when you wrote that you have a problem with noises. I also think that the gabapentin and lamotrigine could be the cause of your fogginess or sluggishness. Why are you taking those meds anyway? They are not typically used for ADHD or depression.Good luck
    Anonymous 42789 Replies Flag this Response
  • Hi there.Just a couple of thoughts. One is that if you are having sinus issues, are you taking decongestants? If yes, that could explain the difficulty in urination. They can do that. Also, please check out the book "Too fast too bright too loud too tight" about sensitivity processing disorder. I think you may find some tips in there, it stuck out when you wrote that you have a problem with noises. I also think that the gabapentin and lamotrigine could be the cause of your fogginess or sluggishness. Why are you taking those meds anyway? They are not typically used for ADHD or depression.Good luckHey thanks for the input. I'm not taking any decongestants and do my best to stay away from things I am allergic to. I will definitely check out the sensitivity processing. I'm taking the lamotrigine because it is often used off label for bi-polar disorder. I also take the gabapentin as something to smooth me out a bit and chill me down. Honestly, it doesn't work very well except at very high doses. Personally, I would feel better taking klonopin or something similar to that. Thank you for the advice.
    Anonymous 42789 Replies Flag this Response
  • I looked into the sensitivity processing disorder and found out about misophonia. It exactly describes some of the problems I have had to go through in dealing with sound and the loudness of the sound often has nothing to do with it. The instant anger and annoyance of certain sounds and inability to hear people speaking have bothered me for a long time. For instance, I constantly change the volume level on the television in order to feel comfortable and hear the speech. I often give up and turn on the subtitles with the volume down very low. My girlfriend thinks I don't want to talk to her because I can't stand to be on the phone for any length of time and also can not understand people clearly, alternatively, I send close to 200 texts a day so I have no problem communicating with people. I think one of the reasons of this are the horrible ear infections I had as a child that constantly came with the sinus infections mentioned above.
    Anonymous 42789 Replies Flag this Response
  • Update: It took a good case of ED to get me to go back to the doctor again. The doctor thought I had a prostate infection and prescribed me Ciprofloxacin for two weeks. Tests show a normal parathyroid level but still elevated calcium. Tests also showed extremely high cortisol levels and slightly low blood sugar (I have not had an extensive sugar test yet). It's been two weeks since I finished the antibiotic and did not get better while taking it. Curiously however, I had an almost complete turn-around as far as urination and ED about 3 days ago. Coincidentally, I also stopped taking Gabapentin about a week ago; so I'm eye-balling it as a possible culprit. I'm now down to 181 lbs. from 235 lbs. 6 months ago and although I've always wanted to slim down, I'm starting to get concerned. I have a large ribcage, broad shoulders, and a large skeletal structure in general and I'm already starting to look too thin for my body type. Insomnia is still persistent, but the clonazepam I was recently prescribed seems to work better than the ambien. I'm taking multi-vitamins and forcing myself to eat meal bars in the hope that I won't suffer too much from malnutrition. Some days, like today, I just generally feel like ****. Any help would be deeply appreciated. Thanks
    Anonymous 42789 Replies
    • October 1, 2010
    • 01:39 PM
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  • Another update: My girlfriend is getting me to eat more food and eat more often and I have been hovering between 170-175 lbs. I force myself to eat even though I get sick when I eat. I wouldn't mind getting back up to about 190 lbs but it's all I can do to keep my weight above 170, so gaining weight doesn't seem like much of an option. I'm getting tired of people commenting on my weight loss and telling me how good I look now that I've lost weight. They think I've been dieting which is definitely not what I have been doing. I feel weaker and seem to bruise easier, and some of my old boxing and football injuries are starting to bother me now. I've had a couple of cracked ribs, a broken hand, and a broken foot, among others. These fractures ache occasionally, especially my ribs; that being my most recent injury(~1yr ago). Today it is my left knee, tommorrow who knows. I feel weak and it bothers me a lot. Kudos to my little brother(18yrs. 260 lbs.) for beating me for the first time in arm wrestling. A big blow to my pride and a big boost to his. I'm sorry if I ramble or if I treat this message board like a blog but I need somewhere to vent and I suppose this is a good place for it as someone on this website may have the answers I'm looking for. I have gotten all of my medical records for the past year together and I am going to give them to my doctor thursday to see if he can make some sense out of them. I have an appointment for a cystometry Nov.2 as well. I will ask my doctor thursday if he thinks I need to see an endocrinologist. I'll keep you guys updated, although I doubt anyone is reading this since I started the thread quite some time ago. I don't know if there is a way to bump threads so that they will be more likely to be seen. I can't help but feel as though all of this is somehow connected.
    Anonymous 42789 Replies
    • October 26, 2010
    • 04:39 PM
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  • Another note: I was told my cortisol levels are way higher than normal. I'm not sure how it fits in with the other symptoms but thought it was worth mentioning.
    Anonymous 42789 Replies
    • October 26, 2010
    • 05:26 PM
    • 0
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  • Dude.After reading through all your updates, i haven't really got any suggestions for you, but I'd just like to say your not the only one with those symptoms.After reading your first post describing your condition, your symptoms are almost identical to what I am experiencing down to a T (apart from the nausea) and i am also clueless on how to resolve them.I exercise a lot and I'm in good shape like yourself, but my doctor hasn't really helped and has run out of ideas and has suggested possible physiological issues.To be honest i think the key to most the issues we both experience are down to not really sleeping, if we could just do that, i really think many of the problems such as stress, depression, difficulty concentrating, forgetfullness, sensitivity to certain sounds would go away as they are all have a strong connection with the mind not getting enough rest.Also the physical benefits of getting more sleep would help us with weight control, urnination and hopefully more consitency with ejaculation time.The last point about ejaculation is really bothering me, to ensure that I can actually ejaculate during sex I make sure I go a whole day without masturbation so it gets built up, even then I can have peneterate sex for over 30 mins, its only when I seriouly get sucked off that i can actually **m, the risk is sometimes, when I go without masturbation is that I **m too quick, its really inconsistent.My Doctor did recommend sleeping drugs but stated they were highly additive and is huge risk in the long run.Please keep updating this post with any findings you may come across.
    Anonymous 42789 Replies
    • January 2, 2011
    • 03:43 PM
    • 0
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