Discussions By Condition: I cannot get a diagnosis.

multiple symptoms with tongue burning

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • March 29, 2007
  • 11:00 PM

It all started in oct 2006. I had a severe allergic reaction when i use nasocort aq nose spray and then i used benadryl antiobiotic cream on a cut i had,. i was rushed to the hospital and they gave me stemitil (antinausea med) made my vomiting and dizziness worse. anyways things started doing down hill from there. On a daily basis some days better than some, i would have these episodes of sudden sleepiness followed behind by nausea vomiting burning in patches on my skin, my tongue would burn worse (its been burning 24/7 since the incident), visual impairment, difficulty breathing, feeling to black out felt chills my hands and feet extremely cold. I recently had 3 new symptoms two weeks ago i felt my bottom lip tingle then it swell. then 2 days after that my tongue swell and did my throat i was rushed to the hospital , and then yesterday my hands and feet felt like pins and needles and now today i felt a tingling at the back of my head, and moves to my face, and felt chills. and last week my skin started itching like crazy and these huge looking bumps appeared. i saw two drs at a mayo clinic recently. the first referred me to an allergist the allergist insist i dont have an allergy problems and says its just anxiety/panic attacks. Now even though i told him my tongue was swollen and was rushed to hospital he was adamant and almost angrily told me i need to see a physciatrist and if i got the all clear he would do allergy test on me.

in total i saw 10 doctors which includes an internist, endocrinologist, neurologist, rheumotolist and the allergist and did tons of blood test, mri ct scan.. all came back negative.. it seems to me that when drs cant find any thing in a test.. they assume its in your head or you have anxiety.

i know deep down that something is wrong. i have lost over 15 lbs since this all started, i was weighing 127lb in oct 2006. i am eating but my body is not retaining any nutrients it seems. as the days go by without a diagnosis its getting worse with new symptoms appearing..

HELP SOMEONE.. I KNOW IM NOT CRAZY.

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4 Replies:

  • it sounds like it may be whipples disease. I have similar symptoms, but mine checked out negative. its worth a shot though. the only way they can tell is though a biopsy of your intenstines. Its not all bad, they just knock you out and use a scope. the procedure takes about 20 minutes and you dont remember anything.good luck. oh ya, this is done through a GI doctor.
    Anonymous 42789 Replies Flag this Response
  • thanks for replying but what is whipples disease.. and i forgot to mention this before but i m allergic to numerous meds. so anything that requires me to be knocked out is out of the question .. until an allergist is willing to give an allergy test i will no clue if i can even use novocane.. i have two caviities and not able to do anything about them.. im suffering.
    Anonymous 42789 Replies Flag this Response
  • I know it sucks, but please don't completely rule out the anxiety. It may not be the basis of your problem,but it can make your symptoms more severe and can actually cause a histamine release (just like allergens do) and result in hives and swelling. Obviously you do need an allergy profile done also because the anxiety usually just amplifies the already existing condition (though it is possible that it is the root cause, this is very rare). I would strongly suggest addressing the anxiety part so you can see the underlying more clearly. You aren't crazy. There is something wrong, just make sure the anxiety isn't makeing it worse.
    emsbabydoll 73 Replies Flag this Response
  • It all started in oct 2006. I had a severe allergic reaction when i use nasocort aq nose spray and then i used benadryl antiobiotic cream on a cut i had,. i was rushed to the hospital and they gave me stemitil (antinausea med) made my vomiting and dizziness worse. anyways things started doing down hill from there. On a daily basis some days better than some, i would have these episodes of sudden sleepiness followed behind by nausea vomiting burning in patches on my skin, my tongue would burn worse (its been burning 24/7 since the incident), visual impairment, difficulty breathing, feeling to black out felt chills my hands and feet extremely cold. I recently had 3 new symptoms two weeks ago i felt my bottom lip tingle then it swell. then 2 days after that my tongue swell and did my throat i was rushed to the hospital , and then yesterday my hands and feet felt like pins and needles and now today i felt a tingling at the back of my head, and moves to my face, and felt chills. and last week my skin started itching like crazy and these huge looking bumps appeared. i saw two drs at a mayo clinic recently. the first referred me to an allergist the allergist insist i dont have an allergy problems and says its just anxiety/panic attacks. Now even though i told him my tongue was swollen and was rushed to hospital he was adamant and almost angrily told me i need to see a physciatrist and if i got the all clear he would do allergy test on me.in total i saw 10 doctors which includes an internist, endocrinologist, neurologist, rheumotolist and the allergist and did tons of blood test, mri ct scan.. all came back negative.. it seems to me that when drs cant find any thing in a test.. they assume its in your head or you have anxiety. i know deep down that something is wrong. i have lost over 15 lbs since this all started, i was weighing 127lb in oct 2006. i am eating but my body is not retaining any nutrients it seems. as the days go by without a diagnosis its getting worse with new symptoms appearing..HELP SOMEONE.. I KNOW IM NOT CRAZY.Please donot give up. You do not have anxiety or panic induced anything. The panic andanxiety comes from not knowing what is wrong with you. My 26 year old daughterwas just diagnosed with Myalgic Encephalomyelitis or M E. She spent 3 years bedbound being told what she has is all in her head. Doctor after doctor told hershe was having panic attacks, or it was fear of becoming an adult or worst ofall, she had been molested as a child and this was the result (and that wasfrom a neurologist). The world is full of lazy, incompetent doctors. I cannotbegin to tell you how many emergency room visits we had with no results butscorn. She knew she was sick, and I knew it too, so never give up. I do not yetknow enough about M E to tell you if you have this horrible disease, but thereare several excellent web sites which list symptoms. I know that one of them is allergy to foods and medications. It is in basic terms an inflammationof the brain stem in response to a virus or exposure to carcinogens. The brainno longer knows how to process anything including the autonomic nervous system.She could not process food either. She survived by drinking chocolate milk. Herintestinal tract did not work. She was chronically constipated in the extreme.Sadly she had a complete breakdown and could no longer process any informationat all. She was stuttering and stammering. I called her regular doctor and shelaughed at me. I took her to a different doctor in the clinic (a big no-no inthis small town). He took one look at her and told me to get in touch with asocial worker, that she was permanently disabled from this virus. If onlysomeone in all the years of specialist visits had just tried harder, maybe shecould have been helped earlier before her mind was infected. Keep going, don'tgive up. I don't know what you have but it's something awful and just becauseyou have been to a big clinic like Mayo doesn't mean anything. My daughter wasat University of Washington and it amounted to the same thing..nothing. Myprayers are with you.
    crazy4bears2 1 Replies Flag this Response
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