Discussions By Condition: I cannot get a diagnosis.

Multiple Symptoms with no diagnosis.. doctor is at a loss....

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: erhacker
  • June 12, 2008
  • 03:01 AM

Hey, about 7 months ago I went to the er with extreme pain in my abdomine. At first they thought I had apendisitis but then decided that I had a ruptured cyst. Well, after that things rapidly started to get worse. I had to go in for a colonoscopy for excessive rectal bleeding, and at the appointment to set up the time for the test the doctor noticed that my thyroid was enlarged so he ordered blood tests and an ultrasound. Turned out my thyroid is moderatly enlarged with multiple nodules on the right side. My bloodwork however all came back normal. My doctor decided to send me to an endocronoligist, he however said that tehre is nothing wrong with my thyroid. I have also had extreme pain in all of my joints, at least two of my joints are in pain everyday. My heart rate has consitently been between 95 and 130 bps for the past 4 months. I developed carpal tunnel, tendinitis in my knee and elbow. I also have not been able to lose weight at all my son was born a year ago and even with exercise and diets and healthy eating there has been no loss just a staedy gain. My doctor has run all the tests for all the autoimmune disorders (Lupus, RA, ect.), as well as for lymes and the other tick bourne disease, all of those tests also came back negative. In the past 3 months I have started having extreme fatigue, not being able to get up in the morning, not being rested when i wake up after a full nights sleep. It has started to interfere with me being able to play with my one year old. Does anyone have any suggestions?

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7 Replies:

  • Hashimoto's Disease? Try here: http://www.bellaonline.com/articles/art44901.asp
    aquila 1263 Replies Flag this Response
  • In the past 3 months I have started having extreme fatigue, not being able to get up in the morning, not being rested when i wake up after a full nights sleep. It has started to interfere with me being able to play with my one year old. I suggest to have a sleep study done to rule out things like sleep apnea or other sleeping issue causing the tiredness after full nights sleep. Also low morning cortisol levels can cause morning tiredness. I suggest you get your doctor to check your morning cortisol levels. Another problem it could be but you probably dont have enough symptoms for this??..is chronic fatigue syndrome (this can also cause cortisol issue if it's found your levels arent right). CFS can cause your symptoms (except the rectal bleeding). It's well known that people with CFS often have high heart rates too of over 100 bps. To check out CFS symptoms http://wwcoco.com/cfids/bernesx.html I dont currently think you've had no where near enough tests yet to go thinking you could have CFS but keep it in mind in case your tests dont help to work out what is wrong.
    taniaaust1 2267 Replies Flag this Response
  • You can have a thyroid problem even with normal blood work; find a different endocrinologist; most will put you on thyroid if you are low-normal with a goiter, which it sounds like you have. You have other problems, too, but this is a start. If you can find a new type of doctor called a "Preventative" doctor in your town, go to him.
    Monsterlove 2921 Replies Flag this Response
  • Hey, about 7 months ago I went to the er with extreme pain in my abdomine. At first they thought I had apendisitis but then decided that I had a ruptured cyst. Well, after that things rapidly started to get worse. I had to go in for a colonoscopy for excessive rectal bleeding, and at the appointment to set up the time for the test the doctor noticed that my thyroid was enlarged so he ordered blood tests and an ultrasound. Turned out my thyroid is moderatly enlarged with multiple nodules on the right side. My bloodwork however all came back normal. My doctor decided to send me to an endocronoligist, he however said that tehre is nothing wrong with my thyroid. I have also had extreme pain in all of my joints, at least two of my joints are in pain everyday. My heart rate has consitently been between 95 and 130 bps for the past 4 months. I developed carpal tunnel, tendinitis in my knee and elbow. I also have not been able to lose weight at all my son was born a year ago and even with exercise and diets and healthy eating there has been no loss just a staedy gain. My doctor has run all the tests for all the autoimmune disorders (Lupus, RA, ect.), as well as for lymes and the other tick bourne disease, all of those tests also came back negative. In the past 3 months I have started having extreme fatigue, not being able to get up in the morning, not being rested when i wake up after a full nights sleep. It has started to interfere with me being able to play with my one year old. Does anyone have any suggestions?Have you ever been tested for having Fibromyalgia also known as fibrositis?
    Anonymous 42789 Replies Flag this Response
  • Chiari malformation??:confused: I was recently diagnosed with CM after suffering from various symptoms for years. Most likely I was born with CM but it was made worse by pregnancy and delivery of my son. One of the symptoms I had was a bout of severe abdominal pain that lasted for a few weeks that no one could diagnose. I aslo suffer from headaches, trouble sleeping, light sensitivity, neck and shoulder pain, frequent hiccups and many other symptoms. I have not had any cardiological sysmptoms but know that other people have had them. Easiest way to diagnose is with an MRI of the brain. Hope this helps!:)
    jefr0g 4 Replies Flag this Response
  • :oalso forgot to mention above that the pituitary gland can be affected which affects hormone levels and that could possibly affect your thyroid.
    jefr0g 4 Replies Flag this Response
  • There is no definitive Lyme Disease test. You could easily have a negative blood test yet be infected. (I was "fortunate" enough to have had the characteristic bulls eye rash, but my blood test was always negative). Most people never develop the bull's eye rash either. Lyme causes fatigue, joint pain, neurological problems, confusion, Bell's palsy ---any combination of these and more. Find an infectious disease specialist who is "up to speed" on Lyme. It must be diagnosed based on clinical symptoms. Good luck to you.
    Anonymous 42789 Replies Flag this Response
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