Discussions By Condition: I cannot get a diagnosis.

multiple symptoms - need help please

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: snowflyer
  • February 8, 2008
  • 03:38 AM

My husband has been experiencing several symptoms over the 2 years that have been increasing in severity and frequency: numbness/tingling in hands and feet, pain behind 1 eye and an eye tick, redness/discoloration of toes, differences in temperature of hands to the touch (1 feels cold while the other does not), neck pain, and loss of hair on his lower legs. He has been to several doctors and ruled out any orthopedic issue with his neck or back, lyme disease and MS. One doctor suggested thoracic outlet syndrome and basically told him to take pain meds or live with it. However, this is clearly not realistic. Does anyone have any thoughts/suggestions as to what may be going on? Thank you.

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6 Replies:

  • Any history of smoking? Overweight, other issues?I'm thinking it might be something neurological, perhaps involving his peripheral nerves, including maybe his autonomic nerves. Besides MS, what other neuro diseases has he been checked for? Has he been checked for ALS/Lou Gerig's? Did they do EMG studies at all? What imaging was done on his head and neck?Other things that come to mind include maybe a vasculitis or autoimmune disease.Where is the pain in his neck? Did they check his thyroid function? Low thyroid can cause headaches, numbness/tingling, and hair loss. You may want to make sure they checked thyroid antibodies and not just his hormone levels to absolutely rule out a thyroiditis. You can also have low thyroid function coming from the brain as well, which typically would produce a low TSH and low T4.Is he on any medications?
    Anonymous 42789 Replies
    • February 8, 2008
    • 04:18 AM
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  • Raynaud's Phenomena?Patients with secondary RP can also have symptoms related to their underlying diseases. RP is the initial symptom of 70% of patients with scleroderma, a skin and joint disease. Other rheumatic diseases frequently associated with RP include systemic lupus erythematosus, rheumatoid arthritis, and Sjogren's syndrome. For further information, please read the Scleroderma, Systemic Lupus Erythematosus, and Rheumatoid Arthritis articles.
    rad-skw 1605 Replies
    • February 8, 2008
    • 11:18 AM
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  • Thanks for the replies. Here are the answers to your questions:1. Non-smoker2. No meds3. No weight issues4. Neck pain is in center of neck and continues into top of shoulders and goes to middle of shoulder blade area.5. Has had CT scans amd MRIs of head and neck which were unremarkable other than neck appears very straight on x-ray.6. Has had EMG and spinal tap done. No thyroid testing. He is going for a complete physical in a couple of weeks to start the diagnostic process over again and I will have him ask for the thyroid testing you suggested. Also any other suggestions of what do to or type of doctor to see is appreciated. Thank you.
    snowflyer 1 Replies
    • February 8, 2008
    • 04:44 PM
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  • Loss of hair makes me think hormones/glands...try a new Preventative doctor...they run tests for multitude of hormones and make up balanced formulas related to the deficiencies...I know a good one in California...
    Monsterlove 2921 Replies
    • February 9, 2008
    • 06:21 AM
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  • Loss of hair on your calfs is a sign of Addisons Disease, I suggest you get your doctor to check this out.
    Larkenn 20 Replies
    • February 26, 2008
    • 00:40 AM
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  • It sounds like Cushings syndrome there is a good doctor in CA if you cant get any help. go to goodhormonehealth.com also google cushing help and there is a message board and your husband can see if he exsperiences symptoms the same way as others with it. They just found my pit tumor I thought I had lyme and MS too turned out to be a pit tumor and cushings is a hard disease to diagnose I really recomend this doctor he will find out what is even if its not cushings. It doese sound hormonal though.
    Anonymous 42789 Replies
    • February 26, 2008
    • 06:47 AM
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