Hi, I'm new to the whole message board thing, so bear with me here...
I'm a 40 yo female with severe hip, front of thigh, groin, and sacroiliac pain on the left side. I've been dealing with minor back problems for the last five years, but about 8 months ago, the pain in my hip and sacroiliac area suddenly became debilitating and every small movement makes it worse. The pain is progressing and I now must walk with a cane or lean on a shopping cart when I'm out. My life revolves around trying to avoid more pain. Xrays only showed mild arthritis in lower back, but not enough to be causing severe pain. My dr. started me with flexeril and ibuprofin, and started me on Vit. D therapy for 8 weeks because she said my levels were low. After several more weeks of no relief, she sent me to 6 weeks of phys. therapy, which seemed to make things even worse. Eventually, phys. therapy kicked me out, saying I needed more tests. More bloodtests, everything normal, and Vit. D was back up. Then came MRIs of my lumbar, thoracic, and cervical spine which showed a protruding disc at C5 and L5, but with no nerve impingement, so dr. said it didn't explain the pain. I was referred to a pain management neurologist, but my appt. isn't for another week. Yesterday my pain was so bad in my flank, thigh, and groin area that I was in tears all day. I am also having trouble urinating now and really have to strain when I go. This morning, my dr. sent me to the ER because she thought I had a kidney stone. Well, the ER did a urine test, and a CT scan of my kidney, hip, pelvis, and thigh and found nothing. I'm now home in bed feeling hopeless like I'm going to have to deal with this pain forever because no one knows what's going on with me.
I also have had chronic flu-like symptoms, extreme fatigue, along with some other weird, unexplained stuff, for several years. My dr. says it's fibromyalgia.
The pain I have in my hip/leg area is such a strange pain - It's searing, or burning, like my muscles are on fire. The area around my hip and sacroiliac area is extremely sensitive to the point I nearly jump out of my skin if it's lightly touched. I have difficulty getting out of a chair, or bed, and I have to walk my way up something in order to stand after bending over. I also have what I call "phantom itching" on my hip bone. It's an itch that feels like it's inside and on the bone and there's no way to scratch it to get relief.
I'm at the end of my rope here, and I don't know where to go next and I feel like no one believes me. I'm seriously starting to wonder if I might have MS, but I haven't mentioned it yet for fear my dr. will think, "Great, now she thinks she has MS too" and blow me off.
I'm not really sure what my question is here, sorry. But any ideas might be helpful. Is a pain management neurologist really who I should see next, or another kind of dr.? I don't want pills, I want to know what's wrong with me!
(edit) I just want to add that my dr. says my thyroid is fine, I am HIV neg, and I had a neg ANA test (former dr. thought I may have lupus - new dr. says no.) My dr. has run a full panel on me twice in the last six months, with everything coming back fine. The only unusual result I've ever had was the low Vit. D. level, which is back up now.
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