Discussions By Condition: I cannot get a diagnosis.

multiple symptoms and no help..suggestions please.

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Tinman
  • January 9, 2007
  • 07:11 PM

Ok, here's my short story.I'm a 38 year old husband and father. Always was very active. It started out about 3years ago with bad headeaches in back of my head.Never history of them before. With that i felt like i was having heart attacks at different times. This lasted about 6 months. ER several times and heart looked good and only what looked like scaring around pituitary gland. Those just dissapear and joint pain sets in like a nuclear bomb. Hits hard everywhere,all joints especially knees and elbows. So bad can barely walk or use arms for about 4 monthes.This started about 2 years ago. With that came bad skin acne on back,upper chest and shoulders and the weird thing about them is that they seem to be mirrored on my body. What pops up on one side pops up on other side in same location.Anyway without prednisone i'm extremely tired all the time. Got spider veins on my lower legs and the skin below my knees gets shinny to my ankles then dry. Below my eyes are really puffy all the time. I have swollen lymphnodes in my neck and under my right arm (they think its my lymph that is swollen) and half the time i feel like i can have a lump in the bottom of my throat,hard to swallow. Have had many sed rate test all come back normal and blood work always normal for years. White blood cells alittle high.Lyme always comes back normal and have been on antibiotics several times through out the last 4 years. I have no health insurance and pay for this all out of pocket.I live on pain pills and prednisone everyday until someday when my doc will probably think i'm an druggie because nobody can find anything wrong with me. My joints hurt so bad i can't do anything without being numb first. I have a couple of little bald spots. Always thirsty and i never get colds or flues or anything like that.All joints pop and crack and all are very sore all the time.Any suggestions?I would appreciate anything anybody has to say.We are open to anything,please. To be ohnest we have a very hard time affording tests and going to the doctor all the time ,for the same test that always lead no where!!!!!!! I FEEL LIKE I'M DIENG:mad:

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7 Replies:

  • You will die If you don't find a doctor that can look for zebras and not horses. I have had many of your symptoms. I also have the docs stumpted. Hopefully you have been tested for lymphoma. High white count, swollen lymp glands. I know so many diseases as I am searching for my problem. I also am medically trained.Here's my psychic answer and then my logic brain answer.Your heart is overloaded by the stress of your lymphatic symptom. the Cause is related to heavy metal exposure. It has screwed up your regulatorymechanism. you need a chelation program to remove the heavy metals from your blood and brain.My rational mind says. Lymphoma.
    Anonymous 42789 Replies
    • January 10, 2007
    • 04:54 AM
    • 0
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  • Hi Tinman, I'm sorry about all your medical problems. How have you been doing lately? My family also pays all of our doctor bills out of pocket. We have an benefits package that really works for us and is $40 a month for an average of about 50% off our medical bills. You can email me at roseyonnex@hotmail.com, and I will give you more info. Hope that helps a little!! Thanks! Rosie
    roseyonnex 2 Replies
    • January 11, 2007
    • 11:52 PM
    • 0
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  • Thank you for your response.since then i had a bout with my neck getting swollen to the point where food and pills would get stuck.it has gone down to a point and stopped there.Can eat more comfortable now but still feel it inside.
    Tinman 4 Replies Flag this Response
  • oh and where the bottom of my sternum is i have had like a bone growth there.it feels like a bone and it is about the size of a ping pong ball.
    Tinman 4 Replies Flag this Response
  • Dear Tinman...some of you sx are similar to mine...please check out this site... ahummingbirdsguide.com go to the list of sx. I found this yesterday and you won't believe it. There are things that have bothered me especially in the past year that I thought could never be a sx of a disease9I.E. gas, burping ect...) however, it's all there. It's called Myalgic Encephalomyelitis and I have a feeling there are many people with it and are going undiagnosed or are wrongfully diagnosed. I was diagnosed with Carcinoid Syndrome which has some similar sx but when I read this I knew. Best of luck and let me know what you think of the site...mommy cat
    mommy cat 1654 Replies Flag this Response
  • P.S. I am also 38 years old, mother of 1 and just noticed a few days ago that I also have a bump or growth on the bottom R side of my sternum as well. check out the site...I hope it helps. mommy cat
    mommy cat 1654 Replies Flag this Response
  • check out this site ahummingbirdsguide.com see how many sx pertain to you...good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
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